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AVM Survivors Network

Well its still not gone


#1

AVM still not gone. So disappointed. But it is what it is. Looks like another year to wait…


Oxcarbazepine/Trileptal
#2

Sorry to hear that, and the disappointment is understandable for sure. You are so right, it is what it is…one of the down sides to gamma knife for sure. The next year will fly by. Take Care, John.


#3

Melissa:

So sorry to hear that the monster is still there. Mine is too. Let’s hang in there together. I know you are disappointed and so was I. Together, lets take whatever the next step is. Remember, being pissed off, is not giving up. It just shows the strength of our resolve to beat this thing. All the best to you.

Sharon D.


#4

I am sorry to hear that and I’m sure you’re disappointed but stay strong and keep pushing through.