AVM Survivors Network


Welcome to AVM Survivors Network. Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.

Bens Friends

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them

New Member Introductions

New members, start your experience here. Introduce yourself and share your story. Let us welcome you.

AVM 101

Included in this category are resources written by members for members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information

General AVM Discussion

Open discussion about issues common to all.

Parents and Care Givers of AVM Patients

The challenges of dealing with a child with AVM can be almost overwhelming at times but there are also some practical considerations and common questions, irrespective of how old they are.

Types of Avm's

While brain AVM's are the most common type discussed there there are others. If you wish us to add a category please contact modsupport@bensfriends.org Please help start the discussion with your story and questions.

Financial & Legal

Practical aspects of dealing with an AVM. Discussions about affordable medication, fighting health insurance companies.

Emotional Support

Feeling down? Need to rant? This is the place

Prayer & Healing Energy Requests

Please invite others to join you here for religious thoughts, and prayer requests for yourself and others. This is a non-denominational space: all are welcome!

Symptoms & Treatment

Anything you have found that helps your symptoms.

Complementary Therapies

This is the place to discuss all the healing modalities that help you cope with AVM and help you nourish your mind, body, and spirit. Please remember to discuss any new therapies you are considering trying with your physician.

Recommend a Doctor, Therapist, or Clinic (Positive

Want to recommend a doctor, therapist, or clinic? Positive review only, please.


News from Bens Friends

Site Feedback

Discussion about this site, its organization, how it works, and how we can improve it.


This is an archieve of Blogs from the old site

Regional Groups

Wheres my Group? The new format didn't allow the old groups to come over complete. We have made a listing of the Regional groups that were active in the last 6 months so you can reconnect with your old friends and post your regions activities and meetings


FAQ about the AVM Community

Bens Friends Apps for mobile Devices

Bens Friends Apps for mobile Devices


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