General
Gastro AVM Cerebellum & Brainstem I’ve created this space with a view to us collating information about AVMs in the cerebellum, brainstem, pons and any other deeper-brain AVMs, as often these are referred to by doctors as untreatable but where I feel I’ve seen information that some of our members have had successful interventions. Spinal AVM This category is for people with a spinal AVM to collaborate, share stories, find related stories. Pulmonary AVM, Heart AVMs & HHT Group for discussion on pulmonary AVMS, also heart and HHT (hereditary haemorrhagic telangiaectasia) as these seem interrelated. AVM in Extremities Use the AVM in Extremities category for AVMs in arms, legs, wrist, ankle, hand, foot. Pelvic & Uterine AVM Please use this group to share experiences, concerns, good news etc. regarding AVMS in the pelvis or uterus. I hope that by creating this group, it will help especially women affected to share concerns or give encouragement. Financial & Legal Practical aspects of dealing with an AVM. Discussions about affordable medication, fighting health insurance companies. Facial AVM
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| About the General category |
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2 | 1825 | June 9, 2019 |
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AVM Survivors Site Rules
Hi all, I would like to remind everyone of the site rules here, Perhaps this is a message for new members or old ones that have never read them, Please if you have some time have a browse on the following link : http://w… |
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5 | 2494 | October 19, 2016 |
| Nikki Lilly's Come on Life: Highs, Lows and How to Live Your Best Teen Life |
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3 | 85 | September 28, 2020 |
| 3 year stroke anniversary |
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19 | 227 | September 28, 2020 |
| New pulsatile tinnitus |
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9 | 69 | September 27, 2020 |
| Whistling sounds |
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18 | 115 | September 26, 2020 |
| 4 Years! |
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6 | 66 | September 25, 2020 |
| Untreated AVM - sharp pain for 2 days owch |
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20 | 143 | September 24, 2020 |
| Mental imagery or hallucination? |
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9 | 234 | September 23, 2020 |
| 3 years post and finding it quite hard |
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6 | 82 | September 23, 2020 |
| Visual migraine after craniotomy |
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8 | 74 | September 18, 2020 |
| Can’t get my head underwater |
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7 | 105 | September 16, 2020 |
| Angiogram |
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12 | 211 | September 16, 2020 |
| Lifetime angiograms after successful embolisation? |
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28 | 209 | September 15, 2020 |
| Covid 19 vaccine trial |
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5 | 59 | September 15, 2020 |
| Be an AVM Patron |
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4 | 40 | September 8, 2020 |
| Slowly Recovering, and Fitting in Again |
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7 | 74 | September 7, 2020 |
| Post embolization |
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9 | 135 | September 6, 2020 |
| Flight travel after aneurysm embolization |
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11 | 109 | September 6, 2020 |
| Vimpat vs. Keppra |
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5 | 119 | September 6, 2020 |
| Headaches post embolization |
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9 | 43 | September 6, 2020 |
| Radiation necrosis |
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16 | 117 | September 5, 2020 |
| Connecting |
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2 | 56 | September 5, 2020 |
| One year post gamma knife - and no change |
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7 | 122 | September 4, 2020 |
| My AVM bleed strikes |
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7 | 266 | September 3, 2020 |
| Homonymous hemianopia |
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11 | 292 | September 2, 2020 |
| Embolization date |
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8 | 94 | September 1, 2020 |
| Increased risk? |
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6 | 142 | August 31, 2020 |
| Brain AVM in pandemic |
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9 | 155 | August 30, 2020 |
| Dexamethasone -- terrible reaction |
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5 | 155 | August 29, 2020 |