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AVM Survivors Network

Types of Avm's


Gastro AVM Facial AVM AVM in Extremities Use the AVM in Extremities category for AVMs in arms, legs, wrist, ankle, hand, foot. Pulmonary AVM, Heart AVMs & HHT Group for discussion on pulmonary AVMS, also heart and HHT (hereditary haemorrhagic telangiaectasia) as these seem interrelated. Spinal AVM This category is for people with a spinal AVM to collaborate, share stories, find related stories. Cerebellum & Brainstem I’ve created this space with a view to us collating information about AVMs in the cerebellum, brainstem, pons and any other deeper-brain AVMs, as often these are referred to by doctors as untreatable but where I feel I’ve seen information that some of our members have had successful interventions. Pelvic & Uterine AVM Please use this group to share experiences, concerns, good news etc. regarding AVMS in the pelvis or uterus. I hope that by creating this group, it will help especially women affected to share concerns or give encouragement.
Topic Replies Views Activity
1 976 September 20, 2016
5 25 July 9, 2020
4 75 July 3, 2020
20 261 June 9, 2020
2 52 June 2, 2020
22 302 June 2, 2020
4 77 June 1, 2020
6 74 May 25, 2020
4 50 May 22, 2020
18 182 April 14, 2020
7 89 March 16, 2020
11 471 March 13, 2020
16 4035 March 12, 2020
14 392 March 12, 2020
5 292 March 12, 2020
9 815 March 12, 2020
19 1170 March 12, 2020
37 2443 March 12, 2020
26 2933 March 8, 2020
12 181 March 4, 2020
2 51 February 29, 2020
5 409 February 29, 2020
6 448 February 4, 2020
6 102 February 18, 2020
4 520 February 19, 2020
5 457 February 2, 2020
14 1202 February 2, 2020
9 187 February 2, 2020
5 290 January 23, 2020
4 197 January 2, 2020