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AVM Survivors Network

Types of Avm's


Gastro AVM Facial AVM AVM in Extremities Use the AVM in Extremities category for AVMs in arms, legs, wrist, ankle, hand, foot. Pulmonary AVM, Heart AVMs & HHT Group for discussion on pulmonary AVMS, also heart and HHT (hereditary haemorrhagic telangiaectasia) as these seem interrelated. Spinal AVM This category is for people with a spinal AVM to collaborate, share stories, find related stories. Cerebellum & Brainstem I’ve created this space with a view to us collating information about AVMs in the cerebellum, brainstem, pons and any other deeper-brain AVMs, as often these are referred to by doctors as untreatable but where I feel I’ve seen information that some of our members have had successful interventions. Pelvic & Uterine AVM Please use this group to share experiences, concerns, good news etc. regarding AVMS in the pelvis or uterus. I hope that by creating this group, it will help especially women affected to share concerns or give encouragement.
Topic Replies Views Activity
1 975 September 20, 2016
3 52 July 1, 2020
20 259 June 9, 2020
2 44 June 2, 2020
22 299 June 2, 2020
4 76 June 1, 2020
6 74 May 25, 2020
4 49 May 22, 2020
18 180 April 14, 2020
7 85 March 16, 2020
11 466 March 13, 2020
16 4028 March 12, 2020
14 391 March 12, 2020
5 291 March 12, 2020
9 814 March 12, 2020
19 1169 March 12, 2020
37 2442 March 12, 2020
26 2926 March 8, 2020
12 180 March 4, 2020
2 50 February 29, 2020
5 408 February 29, 2020
6 445 February 4, 2020
6 102 February 18, 2020
4 520 February 19, 2020
5 455 February 2, 2020
14 1198 February 2, 2020
9 186 February 2, 2020
5 288 January 23, 2020
4 195 January 2, 2020
13 319 December 25, 2019