Hi Cam
Welcome to the little group of people who know about this rare medical condition. Rather than re-type everything about my experience, could I share this link with you, or you can google Amanda Buykx Uterine AVM and it will come up
https://avmsurvivors.org/t/uterine-avm-and-successful-pregnancy/2574
My advice, is find a good sonologist (ultrasound specialist) who can check for high velocity blood flow, and great interventional radiologist, and then if you are to get pregnant, stick with a specialist sonologist and a good Obstetrician who is willing to learn something new, and follow you up closely. You’ll note in my story I had placenta accreta and Previa, so that’s something to watch closely for as well
Best of luck, and feel free to contact me further if needed
Amanda