I was diagnosed with a uterine AVM last week and wondered if anyone on this forum was able to offer me any information, as I have been given very little by the health professionals.
I am a 32 year old mum of one (my daughter is 19 months old). She was delivered by csection in April 17.
I had a missed miscarriage on 1st Oct 18 followed by a D&C on 3rd Oct. 4 weeks later I was still getting positive pregnancy tests, so I returned to the early pregnancy unit. They scanned me and told me I had retained products, and needed to have the D&C operation again. I had the repeat operation on 9th Nov. As I was coming round from the general anaesthetic, the surgeon informed me that the operation had gone well, but she had found an AVM in my uterus. She told me it might have been there since birth, or caused by my csection or previous D&C, but it wasn’t anything too concerning and would just go on my medical records. I was later discharged with no further information or follow up appointment.
I had never even heard of an AVM before this, so
of course when I got home I googled uterine AVM and have been extremely worried ever since. Everything I read online suggests they are very rare and can cause problems with heavy bleeding, future fertility and future pregnancies. I have not yet been able to contact my surgeon, so am still very in the dark about what my AVM might mean for the future.
I am trying to tell myself that it can’t be anything too major, as surely the surgeon would not have discharged me with no follow up or information. I have had minimal bleeding since the D&C and stopped bleeding althogether yesterday.
If anyone has been through something similar, I would love to hear your story. My main questions are:
- could it prevent me getting pregnant in the future?
- could it cause problems with carrying a baby during pregnancy?
- should I be receiving follow up care (e.g. further scans or appointments).