So to begin with, I know this may be a monumental task. I was curious if anyone has set up local support groups for AVM/Epileptics/etc. for their areas in the past and what the rough logistics are. I live near OHSU, a neurological specialty hospital recognized nationwide and would like to begin the process of a physical community of support for those going through transitionary periods of adaptation or who are having moments of looking backwards. Any ideas or experience is very welcome. Please feel free to include other birth defects or diseases that may fall within this category without a group becoming overwhelmed with numbers. Cheers!
Fire, friend Dina (http://www.avmsurvivors.org/profile/DinaChon) and ask her about this. I am guessing she will be able to help you.