So thankful for this site. I wanted to use these discussions as a way to inform others, reach out for support, and to just record my journey as treatment for my AVM progresses. I just had my second embolization for an AVM in my occipital lobe. I have found it extremely challenging to stay calm in the hospital after the procedure, perhaps because I have to stay awake during it (to go through vision tests) so I don't have a long period of time when I'm waking up from anesthesia. I had a night in the ICU filled with some serious anxiety. I also have a high tolerance for opiates, so the pain medication doesn't quite put me in a comfortable daze. The steroids that I get immediately after the embolization just make me very emotionally unstable....very irritable and restless. Looking for tips and advice for how to deal with this? Has anyone requested meds for anxiety for their hospital stay? I've just been bringing calming music, lavender oil, movies, and my own blanket to keep comfortable....but it doesn't feel like enough.
On a positive note, I was surprised and pleased to find that this embolization was much less painful than the first. After my first, I started getting migraines and visual auras. I actually think that now this might be cleared up for the time being. Now 60% of the tangled mess has been removed and the blood flow rate has been slowed. I was able to skip out on the steroids after going home this time too. I have to do the glue 1 or 2 times after this, and then hopefully can have a craniotomy, or cyber knife radiation. So, I'm gearing up for a lot more time in the hospital. Please share your tricks for relaxation and keeping a low blood pressure!!!