Hi all, thank you for accepting me to the group. Our story…last August, my 8 year old daughter suffered a sudden onset headache and vomiting while on holidays. Following a ct the following morning she was diagnosed with a cerebral haemorrhage as a result of avm rupture. She was transferred to a children’s hospital here and then to a neurosurgical Centre. She had a very successful (10 hour) surgery. Thankfully she didn’t have any lasting side effects and recovered very quickly.
I have been doing a little reading. There is very little research, especially in paediatric ava’s. However I have found some literature which suggests a 15% recurrence in paediatric avm. She is due an mri/mra in November and a I assume yearly checks after this. Has anyone else come across this in the literature or had real life experience of recurrence. We are also awaiting a genetics follow up regarding possible hht.