AVM Survivors Network

Medication for pain and swelling?


I have a few AVMs in my face and one in my left orbital. I also have a lymphangioma in my neck. The AVMs are all low flow. I was wondering what medications others take when theirs become painful and/or swollen. Much appreciated.


I should mention I take Tylenol but that doesn’t always help. I’m not sure it’s been helping at all lately.


A lot of people do get on ok with Tylenol / paracetamol. I hope others can tell you about what else works. Fortunately, I’m free of these things.

Wishing you the best,


pinned globally #4


I have been on Celebrex which is anti inflammatory and I cant take opiates so I take CBD gummies for sleep or pain or mints I live in SF so marijuana is legal and my medical marijuana dr is a neuro who specializes in the part of the brain that got damaged in my stroke and she believes in marijuana for pain not opiates.
Her words not mine.


Medical marijuana is legal in Louisiana but the initial consultation is $200 and you have to go back every few months or so for follow up consultations and no telling what the cost of the actual product is.:roll_eyes: You also have to do refill consultations every 30 days which cost $25-$50. I would try it otherwise. I am on lamictal for anxiety and its actually intended as an anti convulsant but it doesn’t seem to do anything for the avms


@Geo Oh my goodness that is expensive! Do they allow you to grow your own at all? even though its legal here for everyone I still get my card just so I can talk to my neuro and then I can also get waited on first and purchase more. I also buy it for my moms back.
I plan on trying to grow it this spring I just worry about the squirrels eating it they seem to eat everything I grow which I normally dont mind cause everybody has cut down their trees in our neighborhood.
Here for a card it costs $60-80 for the first time and then $40 for renewal. Thats it. But the cost of marijuana actually went up when it became legal for everyone. They have 15% tax on top of the reg tax plus the raised price. the packaging is also tough to open so kids cant get into it but now I have trouble getting into it as well!
I know many people that are still buying it illegally cause its still cheaper.
Just heard a report that the state is saying that the have not made as much as they thought! I think they made 400 Million in taxes! Also many growers and retail places have gone out of business because of all the rules and taxes.


Well, that’s the only clinic I could find pricing for. There are a few doctor’s in my city that can “recommend” it but I can’t find much info. I most definitely cannot grow my own. The only legal growers in the state are two of the universities. There’s a pretty small limit on the number of patients that can get any. It’s only very recently been legalized here so it’s still heavily restricted. Unfortunate.


It’s quite a blunder that it’s so hard to get while opioids aren’t…