Good evening,
My name’s David, I’m 30 years old. Born in the UK and I live close to London.
In the summer of 2018…just after the football world cup in Russia.
I came home from work on a Thursday evening. It was the night before my nieces birthday.
I was doing excerise in my sister’s garden. Then I felt a forceful sudden urge to just sit down and rest. I had a bit of a headache and I felt like I just needed to go to bed. I thought I was simply just a bit stressed.
I went to the bathroom and I locked the door. I collapsed on the floor and I was in a state of bizarre shock. I had absolutely no idea what was going on…other then the fact that I was in a lot of pain.
I was vomiting too and then I passed out. I can’t remember what happened after that…but my family informed me of the slightly surprising details.
3 or 4 days later, I woke up in hospital. I had my family around me. I was probably in a good mood due to the medical drugs.
My short term memory had completely dismantled. It was an emotionally painful and pressurising experience. I couldn’t understand why my memory had rapidly declined in such a strange way.
I didn’t realise at the time, just how lucky I was to still be alive and to not have suffered an extreme long term injury. I was ok.
14 months later, I still require surgery. The AVM is above the left eye side of my brain. I think I’m stage 2-5 AVM. It has decreased in stage…but I’m still at risk, as it stands.
I had the gamma ray option too…but I would much rather just have the surgical procedure so it will be done and dusted, even though it carries a certain amount of fearful risks.
I have made many mistakes…but I have also kept fighting and I won’t ever give up.
It’s a very long story.
I have been very stupid and times and it inadvertently created a negative personality transformation, that I now 100% take sole responsibility for.
My surgery is likely to be in November…but I think it is going to get cancelled again and it will be later then that.
I’m currently doing some volunteer work, which I am proud of and it feels great. It is a role that I have personal interest in too. I enjoy working at the museum.
Feel free to ask any questions and I will also be responding to discussions on this website. I would like to see if I can offer advice and be of use to anyone else going through something similar.
It is a very strange and lonely experience…but, I remind myself that I am not a victim and it could have been a lot worse.
Thank you,
David