Hi my name is Barbara, I am 65 years old, In October 2015,I had a right frontal temporal intercerebral haemorrhage which caused a stroke , I also have 2 Bilateral MCA aneurysms 6mm. I suffered balance problems and lower left peripheral sight loss but these have improved massively. The appointments for MRI, Angiograms etc have been months apart and very long waits for results. The neuro surgeon and team have decided the safest treatment is Stereotactic radiosurgery (SRS) at Sheffield for the AVM and monitoring the aneurysms. I have an appointment at Sheffield 22nd March and have been trying to compile questions to ask, I was told the risks are low; possible brain swelling which will be treated with steroids and headaches. As it gets nearer and I have tried to find info, it seems the risks are more than said also could put pressure on the aneurysms, Sorry such an essay but would be grateful for anyone who has had the same with experience of after affects
Welcome to the site! I agree that I am reading stories of SRS carrying more risk than I thought, though I have no direct experience myself.
I recently gathered a lot of the gamma knife and other SRS stories together under some sub-categories in the Symptoms and Treatment category. As well as any responses you get from current members, I hope you’ll find some resources there.
I’m sure it is still a very good option to follow but will lead on to just ascertaining with your radiologist what they plan to do and what the specific risks are for where your SRS is focussed.
Very best wishes,
Hi, Barbara: I had a gamma knife procedure November 10th, 2016. I have a left frontal lobe, 2.5 cm AVM, which has not bled; however, I developed complex partial seizures (fainting, loss of awareness) in 2016. I was placed on anti seizure medications. Like you, I am in my senior years…66, to be exact. The neurologist and neurosurgeon recommended the gamma knife as a possible prevention from future strokes. Since the gamma knife procedure, I have felt quite well. I did have one fainting episode, and one loss of awareness episode after the procedure, but other than that, I have not experienced any side effects. I must say that I am now taking 2 seizure medications, however. My situation is different that yours, since I have not bled. I am glad I went through with the procedure. My neurosurgeon was very experienced treating AVMs using the SRS. Best of luck to you. My heart is with you.
I had cyberknife radiosurgery and about 7 months after i started having vision problems and brain swelling so they had to keep me on the steroids for way longer than intended.I am still dealing with it 10 months out, the swelling has gone down slightly.
Thank you for your input Richard, Nebula and Amcoffey
Well I had the treatment on the 22nd may, The Sheffield Gamma team are first class and everything went much better than I expected, so far no side effects and I am feeling well. thank you all for your support and experiences x
FANTASTIC! Great to hear that! Have they given you a schedule to go back for a check up on progress? 6m? A year? I hope it all continues to go the right way!
It’s a pleasure to be here for people.