Hello, my name is Michael and I’m new to this site. I’m 52 years old and originally from Salt Lake City, Utah, USA, but I now live in Abu Dhabi, UAE.
I was diagnosed in August 2016 with a 3mm un-ruptured AVM near my brain stem by the cerebellum pons point angle. I also have two flow related aneurysms.
For the last 5 years I have had electrical shocks from the top of my head down across my right eye to my cheek. It turns out the AVM is near, or goes around, my 5th nerve and when inflamed it causes nerve impulses that give me a shock sensation.
After this discovery I did a lot of research, praying, physician consults, and decided to fly to Cleveland Clinic in Ohio to have a gamma knife procedure. That was December 15th, 2016. It was 16 Greys of radiation for 85 minutes. They said I need an MRI every 6 months for the next 1-3 years.
About one month out I have low pain level headaches almost all the time and the right side of my head is still numb but that is my only side effect.
i recognize how lucky I am that this was found prior to a rupture. I appreciate everyone’s post and your inspirational stories.