Hi everyone! Recent AVM diagnosis....right cerebellum. I have no idea the grade or size just the radiologist reading from ER MRI finding stating a "prominent AVM on right cerebellum" Wanting to see who else is/has been in similar shoes. It has not ruptured. I've had headaches as long as I can remember, but on December 30th I went to the ER with the worst headache of my life, plus facial numbness, nausea,slurred speech, foggy head.
The ER physician didn't make a big deal out of the findings and never even told me to follow up with my primary. I didn't feel right about that so followed up with primary this past Tuesday. She was extremely glad I did and referred me to neuro surgeon in St. Louis. I don't meet with neuro until Jan 30, but am curious to connect with others in a similar boat and see what you have done for treatment and coping. Thanks in advance and I am so happy to have found this site!