We are in discussions with our 7 year old son's medical team regarding how to treat his residual AVM, and Gamma Knife has been presented as an option. Long story short, he had a major bleed 18 months ago which required an emergency craniotomy to remove the blood clot (cause of bleeding unknown), then 8 months later during an angiogram it was discovered that he had an AVM. He underwent a second craniotomy in December to remove the AVM, and we just found out that there continues to be a small but residual AVM in his brain. Treatment options include a third craniotomy, or Gamma Knife. The AVM is 2mm by 3mm and located in the right parietal lobe.
I have been doing a lot of reading and research about Gamma Knife, and from the forum here it appears that MOST people who choose gamma knife get some kind of edema followed by radiation necrosis. In fact, I don't know that I've come across a case yet where someone was successfully treated by gamma knife without those complications.
So, I'm on the hunt for GOOD NEWS stories - from those whose AVM was successfully obliterated by gamma knife, and who did not experience edema and radiation necrosis.
Thanking you in advance for any good news stories you can send our way.