I call them rogue arteries and vein

Well, Dee, welcome to avmsurvivors!

It sounds like you’ve been through plenty already (and it also sounds like you’re doing well, which is good).

I know a craniotomy sounds like a frightening deal but (if I can pitch my own worries in here) I’d have said that having a DAVF is worrying enough. I discovered mine before it bled and had to wait in the queue for at least six months for an embolisation and I worried myself to bits about the impact of a bleed. I couldn’t see how anyone would get through a DAVF bleed. However you have and I know @mike_az_21 has and so maybe we should have more confidence in the doctors.

I know you’re not a young person but here is a wonderful story from @HeatherC about her 15-year-old son who recently had a craniotomy after four embolisation procedures. My hope is that you get through as nicely as he has. Click on the blue text to read the full story.

Very best wishes,

Richard

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