I am 25 years old. I have within the past year been diagnosed with a cavernous malformation in the pons. I have seen two neurologists of which have basically stated they wouldn’t touch it because of the location. Anyone else in the same boat? Also the question arose of pregnancy with one of these? Basically doctors stated I shouldn’t be too worried. As you all know when you have a malformation in the brain that is a little easier said than done. I think a site like this is awesome. People all going through similar situations its nice to be able to come together for comfort.
Hi Haley. I did a search for you…http://www.avmsurvivors.org/main/search/search?q=Pons
The search box is located own the very upper right hand corner of this page. We have a sub-group here…http://www.avmsurvivors.org/group/pregnancyandavm
Plus another one…http://www.avmsurvivors.org/group/cavernousmalformationsupportnetwork