8am Tuesday (6/15) begins the 8-10 hour surgery to remove my son’s AVM. What I know to be true:
- 5cm, grade IV means the neurosurgeon has her hands full
- She’s really good at this (she said, “people don’t become neurosurgeons expecting surgery to be easy”)
- It’s going to be messy because there’s at least 1 major feeder they’ve not been able to reach for embolism.
- 4 previous and successful embolizations have helped to dry it up somewhat and prevent the “bloodbath” a resection alone would have been
- No previous bleed means the surgeon can focus on resection vs also contending with prior or emergent damage
- He’s going to lose some of his right field of vision
I started this post as a self-help tool to focus on facts vs my fears and have reached the limit of my ability to compartmentalize. So now I’ll just ask for the kind thoughts and prayers of this group for my son’s upcoming surgery.