AVM and night sweats

General
1

Hi All bit of a strange one for you AVM people… I am one year in with my AVM and had the knife about 4 months ago. over the last week or so, I have been waking up in bed wet through with sweat (sorry i know it sounds horrible) I feel fine and once up and showered no problem. I sleep with a leg out of bed under a quilt, its winter here so it is cold at night…

Anyone heard of this and being tied into a AVM.

Matty

2

Hey Matty,

That is an odd one, hopefully others will chime in who have had GK and experience of this.

Do you have a specialist nurse assigned for you? Maybe well worth giving them a call just to give you some reassurance too, I contact mine quite a bit.

Hope you have some relief soon, cant be nice waking up in sweats and then getting out into the cold :persevere:

Best wishes,

Corrine

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Thanks… i am calling in the docs tomorrow on my way to work…

Matty

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4

Hi Matty.

Strange you say that as there are some nights I get really hot and sweaty also- my partner says I feel like a radiator even if it’s a freezing cold night but I have never linked it to my AVM … maybe it’s just a coincidence but let me know what your doctor says!

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5

Hi Matty,
I, too, have experienced drastic temperature changes. I am newly diagnosed (3 weeks ago) but haven’t found out if it’s related to the AVM yet. Let me know if you hear anything from your doctors!

Lilly

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I will let you both know what the doc says…

Matty

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7

I, too, have the same symptoms…cool when I get into bed, then wake up very warm. It’s disruptive to good quality sleep, I have noticed this since the gamma knife surgery; not before. Thanks

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8

My dural av fistula was operated on 12 days ago. Since then, I wake up every 2 to 3 hours with a headache, throughout the night. I’ve noticed that each time I wake up, my bed sheet is usually soaked through with sweat. It’s pretty yucky, coming back from the bathroom and crawling into a cold, wet bed. My guess is that it’s one of the many surprises that comes with this condition. I hope this apparent symptom goes away for all of us going through it. :slight_smile:

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9

Thanks for that . seen the doctor he says its hormonal, it comes and goes… I see my specialist next month. i will see what he says…

Matty

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Ha . YEH I wasn’t sure about putting that but you broke the ice… Climbing tiered into a cold wet bed… But the weird thing is, I get in and i am soon asleep in the wet bed. lol.

Matty

11

Hi my daughter had her AVM removed after it ruptured just under a year ago and she is always roasting she sleeps with a fan at side of bed and no covers on she’s 18 x

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12

My son is five years past rupture and brain surgery repair. He is still very sensitive to being too hot and we keep our house very cool at night. We purchased a cooling pillow which helped him a lot. He doesn’t complain any more of night sweats, but there was a period when he did sweat at night. It seems to have improved as time has passed.

13

I wake up seriously sweating. I mean like clothes sticking to me and hair wet kind of sweating. I think it may be hormonal, but I have been doing it for years. So who knows?

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14

HI
good idea the pillow, thanks.

Matt

15

Hi Matty, after my gamma knife in jan 2017 I use to sweat at night to really bad. I never linked it to my avm till I have read other people suffering with same symptom. I was unfortunate and a another bleed June 2017 to which after that I never suffered the night sweats again. I reckon it could be linked to the GK. I use to think it was because I moisturise and it was making me sweat out, how wrong was I…

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