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Featured Discussions

Has anybody had Gamma Knife cure their AVM in one treatment?

I underwent the treatment at the back end of October and have had little side-effects so far.

In part my decision to choose GK was based on of the very high percentages of Obliteration (up to 90% in some cases) quoted by my doctors and medical journals, however, since reading this forum I think I've yet to come across anybody who was cured with just a single treatment. It's got me to wondering whether these percentages are accurate or if the figures have been distorted…

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What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.



Started by Lisa (Mollie's mum) in General. Last reply by Melissa Joyce Lott Conner 3 hours ago. 13 Replies

Hi everyone, How long do you have to wait to have a follow up angiogram after having gamma knife treatment for an avm. It has been 3 years since my daughter had a bleed from her avm and two years since she has had gamma knife. There have been no…Continue


Started by Tonna Wenger in General. Last reply by devongrace 10 hours ago. 8 Replies


How to bear physical pain? Questions about AVM (on the leg)

Started by Olga in General. Last reply by tinkersyl 11 hours ago. 6 Replies

Hello everybody! :)I'm 15-years-old and I have an AVM located on my leg - it goes from my buttock down to my knee. It is often a source of an intense pain which causes me to limp. My blood is also thicker - when I had a blood test a few years ago, I…Continue

Tags: leg, non-cerebral

i just wanna be ok

Started by PaTricia in Emotional Support. Last reply by devongrace 12 hours ago. 11 Replies

i am so so depressed idk what to do all i do is cry i try so hard to be happy stay strong but im so sad idk y i just wanna be fixed why has life done this to me just want to end it everything is so overwhelming in the middle of moving maybe if it…Continue

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Latest Activity

Melissa Joyce Lott Conner replied to Lisa (Mollie's mum)'s discussion ANGIOGRAM AFTER GAMMA KNIFE
"I had LINAC and I will have one the end of this year. That will make two years. Call her doctors…"
3 hours ago
Kanz replied to Kanz's discussion Swelling in the brain post Gamma Knife in the group Radiosurgery Patients (Gamma Knife/other)
"Hi Andy Thankyou for your reply. I have been off of the medication for a while now and the swelling…"
6 hours ago
Kanz replied to Lisa (Mollie's mum)'s discussion ANGIOGRAM AFTER GAMMA KNIFE
"Hi Lisa I had Gamma Knife done in April'13 and had a follow up angiogram in June'14 and…"
7 hours ago
Lisa (Mollie's mum) replied to Lisa (Mollie's mum)'s discussion ANGIOGRAM AFTER GAMMA KNIFE
"Thank you Louisa, big congratulations on being AVM Free, fantastic news! It gives me great hope xx"
7 hours ago
Martin Brooks replied to Martin Brooks's discussion Hemicrania Continua ?? in the group Coping with Headaches
"Hi and thanks for your reply, Yeah taking the meds away completely seems like all pain and no gain…"
7 hours ago
Lisa (Mollie's mum) replied to Lisa (Mollie's mum)'s discussion ANGIOGRAM AFTER GAMMA KNIFE
"Thanks for replying Caroline, it seems they have forgotten about Mollie! All the best to you for…"
7 hours ago
Lisa (Mollie's mum) replied to Lisa (Mollie's mum)'s discussion ANGIOGRAM AFTER GAMMA KNIFE
"Thank you Niyani 45% shrinkage is excellent xx"
7 hours ago
Lisa (Mollie's mum) replied to Lisa (Mollie's mum)'s discussion ANGIOGRAM AFTER GAMMA KNIFE
"Hi Jo, How are you? Did you have the angiogram done at The Cromwell? Mollie also had her gamma…"
7 hours ago
Captain Tilly Harkness commented on Captain Tilly Harkness's blog post Anxiety.
"Saw a Dr today as a follow up apt and she did not want to give me any medication as she did not…"
10 hours ago
devongrace replied to Tonna Wenger's discussion EMOTIONAL ROLLER COASTERS???
"I feel the EXACT same ywa- you are not alone there."
10 hours ago
Louisa replied to Lisa (Mollie's mum)'s discussion ANGIOGRAM AFTER GAMMA KNIFE
"Lisa, As other's have said, every case is different, but I had an angiogram one year after the…"
11 hours ago
tinkersyl replied to Olga's discussion How to bear physical pain? Questions about AVM (on the leg)
"heres some info that might help you:…"
11 hours ago

Most Popular Content 

1 Has anybody had Gamma Knife cure their AVM in one treatment?

Has anybody had Gamma Knife cure their AVM in one treatment?

Posted by Joe on January 27, 2015

2 What age were you?

What age were you?

Posted by Spots02 on January 28, 2015



Posted by Lisa (Mollie's mum) on January 29, 2015

4 Symptoms


Posted by Suzanne Spicer on January 24, 2015

5 Can you have seizures while on Dilantin?

Can you have seizures while on Dilantin?

Posted by delight67 on January 20, 2015


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Blog Posts


Posted by Captain Tilly Harkness on January 27, 2015 at 7:04am 21 Comments

After 8 weeks out of hospital I have been feeling quite anxious and worried about my brain bleeding again and how my avm is healing but on Friday I had my first panic attack and it was not nice. My friend took me to my G.P who was brill and gave me… Continue


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