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Featured Discussions

We’re on the move!

Ben’s Friends is getting a great new look!

Very soon you'll log onto http://www.avmsurvivors.org/ and find that your community looks and works differently than it did before.

Your old friends and your familiar moderators will still be there, though, and the conversations will continue BUT your blogs and PM’s (email messages) are private so we are unable to access and transfer this data so anything you wish to save,…


What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.


Gamma Knife Complications?

Started by Taylor in General. Last reply by LouisaC 3 hours ago. 3 Replies

I've been told that due to the location of my AVM that it is inoperable and the only treatment option is gamma knife (when we've decided treatment is 100% necessary). I was reading up on gamma knife and I kind of like the non-invasive route. But I…Continue

Is 7cm Large?

Started by Zilly74 in General. Last reply by Martin Brooks on Tuesday. 1 Reply

I have a 7cm cavernous hemangioma in my cervical spine. Is that considered large?It's symptomatic, but like everyone else, my neuros tell me it is not causing me issues, that is the one on my brain that I had gamma knife on 4 years ago. I know it's…Continue

Cerebral AVM

Started by Elijah's Mom in General. Last reply by Abbey 39 minutes ago. 2 Replies

Hi everyone, I'm new here. My 8 year old son suffered what his neurosurgeon BELIEVES to have been a ruptured cerebral AVM on May 5th of this year. I say "believes to be", as the AVM could never be 100% confirmed when he was admitted due to the…Continue

Seeking other AVM patients, NOT in the brain

Started by Jilliebean in Symptoms & Treatment. Last reply by Martin Brooks on Tuesday. 2 Replies

I'm somewhat new to this site. After reading a lot of posts, most people seem to have had a brain AVM. Mine was in the thoracic region (mid-back)and affected mostly my right leg (weakness, numbness, etc). I am looking for someone who has an AVM in…Continue

AVM Removal - Post-Craniotomy Q?

Started by Adrian in General. Last reply by Adrian yesterday. 8 Replies

Hi fellow AVMers...I have a couple of quick questions regarding my AVM removal via craniotomy.I had my AVM (right frontal lobe) removed in February 2011 after a bleed...since then I have only had 1 angio after surgery with follow up CTs and MRI's…Continue

Blood type - Positive or RH Negative?

Started by Zilly74 in General. Last reply by Angela on Tuesday. 1 Reply

Interested in knowing if you have an avm or hemangioma and are RH negative? I'm RH negative. I'm asking because it seems as if our blood type has a lower blood pressure, lower blood flow, and may have an extra vertebrae. It seems our blood type may…Continue

Latest Activity

Abbey replied to Elijah's Mom's discussion Cerebral AVM
"I would suggest sending scans/information to the barrow Institue or dr. Neil Martin at UCLA. Message me if you need contact info. Both are very knowledgeable about cerebral avms. Dr. Martin removed my cerebral avm in May. Best of luck!"
39 minutes ago
LouisaC liked alexalovesaya's photo
2 hours ago
John commented on alexalovesaya's photo

My sister ❤️

"Prayers to your beautiful sister and your family. Stay strong."
3 hours ago
LouisaC replied to Taylor's discussion Gamma Knife Complications?
"I totally agree with John's post...Every AVM case is different and the best answers would be from your neurosurgeon...Have faith in your doctor and stay strong and positive!"
3 hours ago
John replied to Taylor's discussion Gamma Knife Complications?
"The risk of bleed is also still there"
3 hours ago
amcoffey replied to amcoffey's discussion 4cm AVM Success Rate
"Good luck at your next MRI checkup, I hope they find that the AVM is gone! Thanks for sharing your story, reading all of the information on here has been helping me get through everything and ask more questions to my doctor"
4 hours ago
John replied to Taylor's discussion Gamma Knife Complications?
"Hey Taylor, next time you see your neurosurgeon or get an opinion, you should ask these questions. I am also in the situation. Yesterday my neurosurgeon had gone over complications for my situation. He actually told me nothing happens the day of the…"
4 hours ago
amcoffey replied to amcoffey's discussion 4cm AVM Success Rate
"Interesting, I have been considering getting a second opinion to get more of my questions answered. Thank you for your information!"
4 hours ago

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Most Popular Content 

1 4cm AVM Success Rate

4cm AVM Success Rate

Posted by amcoffey on July 19, 2016

2 AVM Removal - Post-Craniotomy Q?

AVM Removal - Post-Craniotomy Q?

Posted by Adrian on July 25, 2016

3 Recovery from AVM removal surgery?

Recovery from AVM removal surgery?

Posted by therapy4 on July 22, 2016

4 Eye Sight

Eye Sight

Posted by xman on July 1, 2016


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