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Featured Discussions

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What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.



Started by jasmine in General 10 hours ago. 0 Replies

Having glue treatment of my frontal lobe avm july 7th what should i expect?

Symptoms & Weather ???

Started by Carlysmom in Symptoms & Treatment. Last reply by eileen 11 hours ago. 3 Replies

Carly just has her MRI/MRA exam yesterday and there has been no growth since last year... PHEW!!! Does anybody else notice that symptoms (pain + swelling) increase when the temperature outside does?Continue

Donating blood as an AVM survivor

Started by Lauren in General. Last reply by eileen 13 hours ago. 2 Replies

Hey everyone! I'm wondering if anyone has any information as to whether or not an AVM survivor can donate blood when their AVM has been "obliterated".I went to donate blood with a friend today — it's been 6 years since the AVM in my brain was…Continue

Tags: survivor, AVM, blood, donating

How are we doing?

Started by JeremyH in General. Last reply by Angela 12 hours ago. 2 Replies

As most of you may or may not be aware, this asylum is run by the inmates. Less than a year ago I was new here and struggling to come to terms with my new lifestyle. A big thank you to all the people that offered helpful advice on my journey. I…Continue

Re-occurrence of an AVM

Started by Katie in Symptoms & Treatment. Last reply by eileen 19 hours ago. 2 Replies

I was diagnosed with an AVM in my right calf when I was 10. Was born with an enlarged calf, and it progressed through the years, resulting in pain and constant aches. Had one removal attempt when I was 10 in 2000, embolization in 2001, and a third…Continue

Tags: Extremity

Hey AVMSUVIVIORS and family

Started by Jerrod Black in General. Last reply by JeremyH yesterday. 1 Reply

I'm Jerrod"Tex" I've been on here for quit sometime. Joined in search of some answers, but in doing so I've found that I had inspired many that needed just a shoulder to lean on I'm a long term stroke survivor. Have help many in their search in…Continue

Latest Activity

wozza replied to James Larken Smith's discussion AVM Guide Question 3 - What (or where) is(was) the location of your AVM?
"I have 3 AVM's located within the dura of my spinal cord located at L1, L3 and L5."
3 hours ago
Richard replied to James Larken Smith's discussion AVM Guide Question 3 - What (or where) is(was) the location of your AVM?
"Right parietal lobe (removed via craniotomy)"
3 hours ago
Richard replied to Reena's discussion Angiogram
"For shower , was told to wait 24 hours, so the incision site can heal (the artery, by the groin)"
3 hours ago
Katie liked Shalon's group Extremity and Other Non-Brain AVMs
10 hours ago
jasmine posted a discussion


Having glue treatment of my frontal lobe avm july 7th what should i expect?
10 hours ago
eileen replied to Carlysmom's discussion Symptoms & Weather ???
"Just the opposite for me; but a very different disease process. Winter is awful for my VM; going outside makes my aberrant blood vessels get small (constrict), they feel brittle and inelastic. Then I go inside toward the heat. The diameter of the…"
11 hours ago
Angela replied to JeremyH's discussion How are we doing?
"I love this support group. I am on a few others for my Ehlers Danlos and for stroke unrelated to avms and a fibro site. The fibro site is always getting people upset and not always just letting people vent. When you are scared or in pain we tend not…"
12 hours ago
Angela replied to Carlysmom's discussion Symptoms & Weather ???
"Yes this is also common for people with Ehlers Danlos. I notice when the weather is hot and we have a high barometer I get more migraines etc. I try to drink more water etc"
12 hours ago

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Posted by SUSAN on June 17, 2016

2 AVM Guide Question 3 - What (or where)  is(was)  the location of your AVM?

AVM Guide Question 3 - What (or where) is(was) the location of your AVM?

Posted by James Larken Smith on May 1, 2012

3 Decision on children...Still have AVM

Decision on children...Still have AVM

Posted by Andrea Fisher on August 2, 2015

4 Angiogram


Posted by Reena on June 21, 2016


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