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Featured Discussions

Social Security Disability Resources

This post is designed to provide basic information on Social Security Disability.

This is not a site that's designed for legal advice. The decision was made to post this discussion in order to prevent any misunderstanding of SSDI.

We're happy to provide support, but recommend you arm yourself with as much information as possible. The U.S. Government provides countless booklets, far too many to provide here. Thanks.

Social Security Benefits -…
 

What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.

Forum

Need some opinions please

Started by Chelsea in General. Last reply by Martin Brooks 20 hours ago. 6 Replies

Had my first appointment with my neurosurgeon. He was convinced that a radiologist wouldn't do anything for me. Wants me to do an angiogram, that's fine.. Even rho I hate IVs. Also got a prescription for Vitagram whatever so I will go back on…Continue

Social Security Disability Resources

Started by Tim in Financial & Legal on Wednesday. 0 Replies

This post is designed to provide basic information on Social Security Disability.This is not a site that's designed for legal advice. The decision was made to post this discussion in order to prevent any misunderstanding of SSDI.We're happy to…Continue

Surgery Update

Started by Beth Ann in General. Last reply by Tim yesterday. 4 Replies

Thank you to all for your encouragement and words of support. I want to update you on what has been going on. On Monday, my MRI revealed that it was anatomically too risky to do my craniotomy and my surgery was cancelled. Further imaging and…Continue

positive feed back

Started by Chelsea in General. Last reply by Chelsea on Tuesday. 22 Replies

Hello, I am Chelsea and I was 26 last March when I discovered I had AVM. My case is in the right lower occipital lobe. Really scared and almost feel like I have the worst location possible...but will only know after I see medical researchers…Continue

Uterine AVM

Started by Lula1982 in General. Last reply by Louisa on Tuesday. 4 Replies

Hi.I was rushed to the hospital a day ago with heavy bleeding following a miscarriage 2 months ago. Initially we though it was retained product but after doing a Doppler scan revealed I. Have an AVM to the uterus which I was told is very rare. I…Continue

Monday's Surgery

Started by Beth Ann in General. Last reply by Martin Brooks on Monday. 4 Replies

After scheduling and rescheduling, I finally had my embolization this past Wednesday and all went well. Monday I am scheduled for a craniotomy to remove a vein from my carotid artery that was not reachable via embolization. Nerves are starting to…Continue

Getting Medically retired whats next?

Started by Trent in General. Last reply by Christine on Tuesday. 7 Replies

So I am getting medically retired from the Marine Corps after 10 years of service. My neurologist has told me that where my cavernoma is located if they were to remove it I could lose my right side,cognitive thinking, and speech. On top of all that…Continue

Anyone with Child with AVM/AVF??

Started by CPlatthy in Symptoms & Treatment. Last reply by Margo Aug 28. 3 Replies

My daughter was diagnosed initially with a Spinal AVM (C1-C2). She was 8 at the time - one year ago. We can feel it which is how we discovered it, to her she always thought this was "normal" none of the doctors had ever seen one as they said it was…Continue

Tags: Child

Why am I the only person in the family or elsewhere who looks for doctors and help???

Started by Lea in General. Last reply by Tim Aug 28. 2 Replies

It has been more than three years now since my family member was diagnosed with an AVM. Fortunately, it has not ruptured. However, there have been serious problems, personality changes...I am pro active. I see, by your many posts that tragic things…Continue

Tags: avm, about, apathy

AVM on my leg and im pregnant... What are the risks?

Started by aiyi lazaga in General. Last reply by Adrian Aug 27. 1 Reply

I had my surgery 5 years ago on my right leg. Ligation of the 2 major vessels of the the triforcation vessels on my right leg. Which means i only have 1 major vessel left to supply blood to foot. Currently, im on my 2nd tri of my pregnancy and im…Continue

Latest Activity

Lisa liked Rose Andrade's page Life After AVM
7 hours ago

Moderator
Adrian and ModSupport are now friends
11 hours ago

Moderator
Tim left a comment for Cathi Carrier
"Hello Cathi, and welcome! This site is full of supportive people, and offers a tremendous amount of information. There are thousands of survivors here, so stay positive and have hope. All the best!"
11 hours ago
Profile IconCathi Carrier, JF and Harris joined AVMSurvivors.org
11 hours ago
Zabbie replied to Zabbie's discussion doctors in the group Northern California Survivors
"Angela, I cannot thank you enough for all this information, it is very very helpful, and I understand why you are so grateful for Stanford's team after everything you and your sister went through...How are you doing currently with your AVM, is…"
12 hours ago
Zabbie replied to Zabbie's discussion doctors in the group Northern California Survivors
"Sandradee, thank you so much for taking the time to give me all the information! So your daughter is AVM free? I am so happy for you, I cannot imagine the stress and anxiety it must represent as a parent...I will go ahead and call, thank you again!…"
12 hours ago

Moderator
Madere (dancermom) replied to Ben Munoz's discussion Rest in Peace, Hall of Fame Moderator, Father, and Friend, William F.
"I think about you often, William. Peace and healing to your family."
13 hours ago
Trent is now friends with Lea and Louisa
17 hours ago

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Most Popular Content 

1 positive feed back

positive feed back

Posted by Chelsea on August 30, 2015

2 Need some opinions please

Need some opinions please

Posted by Chelsea on September 2, 2015

3 Headaches

Headaches

Posted by PKP on August 26, 2015

4 Monday's Surgery

Monday's Surgery

Posted by Beth Ann on August 29, 2015

5 embolisation recommendation

embolisation recommendation

Posted by Janey on August 30, 2015

6 Getting Medically retired whats next?

Getting Medically retired whats next?

Posted by Trent on August 28, 2015

7 Surgery Update

Surgery Update

Posted by Beth Ann on September 1, 2015

8 doctors

doctors

Posted by Zabbie on September 3, 2015

9 Uterine AVM

Uterine AVM

Posted by Lula1982 on August 29, 2015

10 Embolisering

Embolisering

Posted by Cilla on August 31, 2015

 
 
 

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Blog Posts

Avm 25 years ago on left side of brain. Now walking with a limp on right leg, could this be scar tissue? Had angiogram this week, no new developments thankfully! 5 mris on head, back, neck, spine fou…

Posted by Donna on August 28, 2015 at 1:30pm 3 Comments

Avm 25 years ago on left side of brain. Now walking with a limp on right leg, could this be scar tissue? Had angiogram this week, no new developments thankfully! 5 mris on head, back, neck, spine found nothing. Emg test done on nerves.. nothing.…

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