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I've had three angiograms for embolization since 2006...then a craniotomy for final obliteration. Since the last angiogram June 2013 I've been in excruciating pain the entire pathway of the angio from my groin all the way to my head. My abdomen, right breast, neck is painful with and without touch. There are days I can hardly function. I've had CT scans to check my internal organs which appears to be OK. However, I'm experiencing, stinging, burning and unexplained pain.…
Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.
In 2011/2012 I was seeing a psychiatrist who had told me I was beyond qualified for SSDI. I applied on my own and was denied , with the reasons being that "my condition had significantly improved" ummm no, it hasn't. (AVM bled 4 years ago)).I'm…Continue
Hi Everyone,I don't post on this site very often.... Not because I'm not interested or anything, I just "forget" about the site once in awhile as I move along in my every day life :)I thought of the site this morning because I received a message…Continue
Hello everyone. I like to believe that I am a very positive person, especially having an amazing recovery since my AVM surgery just over 5yrs ago; where I ended up with brain damage. Whilst still in hospital, I had an angiogram which showed that my…Continue
We have been using the following for memory aides, encouragement, to do lists, and reminders for how to destress.-Dry erase boards-Mirrors: to have me write date and time I took meds so I don't freak out later thinking I forgot to take them (you can…Continue
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Posted by Lesley S, Queensland on July 22, 2014