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Ben’s Friends is getting a great new look!
Very soon you'll log onto http://www.avmsurvivors.org/ and find that your community looks and works differently than it did before.
Your old friends and your familiar moderators will still be there, though, and the conversations will continue BUT your blogs and PM’s (email messages) are private so we are unable to access and transfer this data so anything you wish to save,…
Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.
I've been told that due to the location of my AVM that it is inoperable and the only treatment option is gamma knife (when we've decided treatment is 100% necessary). I was reading up on gamma knife and I kind of like the non-invasive route. But I…Continue
I have a 7cm cavernous hemangioma in my cervical spine. Is that considered large?It's symptomatic, but like everyone else, my neuros tell me it is not causing me issues, that is the one on my brain that I had gamma knife on 4 years ago. I know it's…Continue
Hi everyone, I'm new here. My 8 year old son suffered what his neurosurgeon BELIEVES to have been a ruptured cerebral AVM on May 5th of this year. I say "believes to be", as the AVM could never be 100% confirmed when he was admitted due to the…Continue
I'm somewhat new to this site. After reading a lot of posts, most people seem to have had a brain AVM. Mine was in the thoracic region (mid-back)and affected mostly my right leg (weakness, numbness, etc). I am looking for someone who has an AVM in…Continue
Hi fellow AVMers...I have a couple of quick questions regarding my AVM removal via craniotomy.I had my AVM (right frontal lobe) removed in February 2011 after a bleed...since then I have only had 1 angio after surgery with follow up CTs and MRI's…Continue
Interested in knowing if you have an avm or hemangioma and are RH negative? I'm RH negative. I'm asking because it seems as if our blood type has a lower blood pressure, lower blood flow, and may have an extra vertebrae. It seems our blood type may…Continue
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