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If your family has been affected by AVM, consider AVM Survivors Network your second home.
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"To Know the Joy of Giving"
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Hi there, i finally agreed to get radio surgery done. After reading the risks, i am super nervous and would love to hear peoples experiences :)
Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.
I am taking a big risk by putting this out here, but I need an outlet and this seems as good a place as any. One of the hardest parts about this whole diagnosis has been my struggle with the notion of death...not the fact that we all die, but the…Continue
Hi, I had my AVM surgery last summer and also have an untreated aneurysm. Since around December, I've been experiencing a very specific type of headache. It's above my left eyebrow. It's always the same spot. Always. They are not severe necessarily…Continue
Hi all,Been on this site for a while now ...since July last year when I had my 2 nocturnal grand mal seizures and discovery of a right frontal lobe AVM.so I dont even know where to start really!! suppose from when my life changed would be a…Continue
hello everyone, i had an cerebral AVM burst in 2011, by which i was send to coma later on i found to be safe, but i was parallized for 6 months and recover gradually, but still my left leg is feeling like tingle, can any one tell me when my leg will…Continue
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AVMSurvivors.org is in the process of preparing a guide for individuals that have been diagnosed with an AVM. The purpose of the approximate 20 page guide is to provide hope for a vibrant future, information about treatments, life expectations, and help for family members encouraging an AVM survivor. Read More...
Posted by VioletMaltese on April 10, 2014
Posted by darrenfrowley on April 13, 2014
Posted by mymomhasafauxhawk on April 13, 2014
Posted by momof3blt on April 15, 2014
Posted by dancermom on April 15, 2014
Jaz’s video on FB from the International Symposium on Head and Neck Malformation. We’re so proud of our AVMSurvivors.org members!
Great work Jaz!