AVM Survivors Network: Arteriovenous Malformation Support

We're AVM Survivors, Here For Your Support...

If you or a loved one has had an AVM, this AVM support group is for you. We are the AVM Survivors Network, here for your support.

Latest News

SoCal AVM Survivors Brunch, Saturday July 24
Details here

We walked for AVM Awareness! See pictures on Eric's page and here on my Picasa Page.

VIDEO
Watch video from last year's walk

BRACELETS And if you haven't ordered your AVM Awareness bracelet, now is a good time too!


Proceeds from bracelets benefit TAAF, which raises awareness and funds for research for those affected by an aneurysm or AVM.

Photos

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Latest AVMSurvivors.org News

4/8/10: Thanks to SavantMD for helping us spread the word about AVMSurvivors.org

3/19/10: March 2010 Community Newsletter

8/11/09: Web site of the Month.

8/11/09: OrganizedWisdom's Favorite AVM Community.

Members

  • John Hoarty
  • Rhonda(Brooke's Mom)
  • Barbara Durham
  • Beth
  • maria sierra
  • Stephanie Parish
  • Debra Bein
  • Chikeena Harrell
  • Marijo Fasano
  • ED BAKEWELL
  • Tori
  • Tony Lopez
  • Mare
  • Mary (Jaime's Mom)
  • William
  • Dewey M Reynolds
  • Alyssa Walker
  • Reiko Bradley
  • Thomas P Kral
  • Brian H
 

Welcome to AVMSurvivors.org

Welcome. We're glad you found us! Some things you can do on AVMSurvivors.org:

1. Share your AVM story with the community.
2. Ask an AVM question in the forums. If you're newly diagnosed, don't be shy about reaching out.
3. Keep everyone updated via your personal AVM Survivors blog.

If you have any suggestions on how to make this community even better, we'd love to hear. Read more about using AVMSurvivors.org.

*Keep in mind this is a support group of patients for patients (and friends and family). Unless a person states otherwise, we are not doctors.

This community is brought to you by BensFriends.org Patient Communities.

What's an AVM?

Arteriovenous malformation or AVM is an abnormal connection between veins and arteries, usually congenital.

AVM is not generally thought to be an inherited disorder, unless in the context of a specific hereditary syndrome.

The most general symptoms of a cerebral AVM include headache and epilepsy, with more specific symptoms occurring that normally depend on the location of the malformation and the individual.

An estimated 300,000 Americans have AVMs, of whom 12% (approximately 36,000) will exhibit symptoms of greatly varying severity.

Source: Wikipedia

Latest Activity

We're in Greensboro, NC. My daughter has the avm, it's in her left leg, from the knee to the hip bone.
2 minutes ago
This group is for AVM Survivor members who live in the Southeast ... for sharing, support and occassional get-togethers.
3 minutes ago
Joy and Mare, The purpose of this thread is to provide a forum for BALANCED information from a personal perspective in order to help others make informed decisions regarding treatment. It is not to pick on any medical facility or physician. I began…
9 minutes ago
14 minutes ago
15 minutes ago
20 minutes ago
25 minutes ago
Chikeena Harrell is now a member of AVM Survivors Network: Arteriovenous Malformation Support
51 minutes ago

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Forum

Beth

What do you think? 26 Replies

Started by Beth in General. Last reply by Beth 11 minutes ago.

Brian

Advance Directives & Medical Power Of Attorney 29 Replies

Started by Brian in General. Last reply by Tori 1 hour ago.

Ben Munoz

How to Organize a Meetup in Your City 1 Reply

Started by Ben Munoz in General. Last reply by Tori 2 hours ago.

Toni Yeomans

Exhaustion...anybody cleared back to work feel like maybe it was too soon? 11 Replies

Started by Toni Yeomans in General. Last reply by Beth 8 hours ago.

ashok rajamani

KING TUT

Started by ashok rajamani in General 8 hours ago.

Blog Posts

Allison S

6 Month Follow Up

Posted by Allison S on July 30, 2010 at 8:32am — 1 Comment

Mindy

post-surgery

Posted by Mindy on July 30, 2010 at 8:30am — 1 Comment

Crystal Boyd

Finally some good news.......

Posted by Crystal Boyd on July 29, 2010 at 9:27pm — 1 Comment

Kellyva

Hello, Fisrt blog.

Posted by Kellyva on July 29, 2010 at 9:00pm — 3 Comments

sheree d ellison

LETTER FROM SSI, HOW FUNNY

Posted by sheree d ellison on July 29, 2010 at 2:40pm — 8 Comments

 
 
 

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