Wow, hasn't this site grown. I haven't been on her for a while. I'm now about 15 months since my bleed and about 7 months since gamma knife treatment. I'm slowly plodding on with life. I do it all at my own pace these days. I haven't really had any problems at all with side effects from my treatment. Just a headache on and off (I had that before treatment), still have the hallucinations (Usually I just live with them. Occasionally they get me down a bit), still have low energy, but definitely im… Continue

“You can hold yourself back from the suffering of the world; this is something you are free to do, and is in accord with your nature. But perhaps it is precisely this holding back that is the only suffering you might be able to avoid.”

-Franz Kafka


Whenever I go to a bookstore I’m always struck by the size of the self-help section; obviously, those books hold someone else’s notion of what that hyphenation means. But truth be told, I don’t take very good care of myself—when I write, I often fo… Continue

After one cancellation and a few lies from our neurosurgeon to the radiologist(so that he would do the embo now and not make us wait longer than we already have) Jacob finally had an angiogram and embolization on 1/7/09. The results at first glance seem positive and a part that was thought to be AVM may only be malformed but not true AVM as it has no nidus and takes blood away from the brain.
We are booked for a craniotomy on 10/7/09 where Jacob's temporal lobe will be removed, we have been told… Continue

Hello to all. I log on infrequently, so I hope no one thinks that I do not care, it is just this trying to make everything normal and take on more at work so I do not fall in my "rankings." I had my angiogram last Friday and things look good. The doctor performing the angio was kind of weird. He asked me questions multiple times. I do not know if he was testing me or if he was the one with the brain issue. It is kind of funny now looking back and I am glad he was only in the other room looking a… Continue

I've been waiting to go for my cerebral angiogram, but the radiologist that my neurologist wanted me to go to still hasn't come to an agreement with my insurance company, so my neurologist is sending me for a CT angiogram in the meantime. Has anyone else had one? Can anyone tell me what to expect?