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Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.
Just curious-- I was a little in delerium after my brain bleed but I think I had 10-15 CT scans after my bleed. Anyone had the same experience? I know the radiation from the CT scans is not good! I'm wondering if it's "normal" to have so many scans!Continue
Hello All,I am due to start cyber knife radiation on June 1st - June 3rd (three treatments each lasting about 40 min). I will be on a steroid for roughly 2 weeks during the process to help reduce swelling of the AVM.Just wondering what anyone's…Continue
AVM free!!!! 4 weeks post op today!! Thank God!! So far, so good. Craniotomy was Thursday April 28th 2016. Removal of AVM in the right occipital lobe. Surgery took 7.5 hours. NICU for 48 hours, then "step-down neuro floor" for 4 more days. I only…Continue
Hi everybody, my name is Simone and I'm 22 and from the UK. I was diagnosed with an AVM in my upper left cheek, nostril and lower jaw when I was 14 years old. I can say I've been in good health over the years and the only symptom from the AVM in…Continue
Would anyone be willing to meet up to share theirstory for the world? I know we are all dealing with this but we have to be strong and spread awareness to others! Would anyone mind being onfilm to share their story?
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Posted by Lindsay G. on May 17, 2016