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If your family has been affected by AVM, consider AVM Survivors Network your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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Videos

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Featured Discussions

Signs and Symptoms of a Hemorrhagic Stroke

For those of us living with a brain AVM or that have a loved one living with a brain AVM, it is important from time to time to review the signs and symptoms of a hemorrhagic stroke.

Follow two links to articles that describe the Symptoms of a Hemorrhagic Stroke and Testing…

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What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.

Forum

I really really need to,get my Dr recognized

Started by kelley in General. Last reply by kelley 15 minutes ago. 3 Replies

Please please read this letter I wrote on his behalf let's get him recognized and get him what he deserves, If anyone needs an outstanding Dr He is the Dr to call, I have over 3 dozen maybe more of the AVM's in my right lung and I have some in my…Continue

Too many opinions?

Started by PKP in General. Last reply by jmerrell 3 hours ago. 23 Replies

Recently diagnosed with an AVM in my brain, thus far no surgeon will mess with it or give me a clear picture of what lies ahead. How does everyone deal with this unknown? I am a bit of a control freak, and this is driving me crazy. Are there doctors…Continue

AVM Members

Started by Louisa in General. Last reply by Leslye Wilson 7 hours ago. 6 Replies

Dearest AVM Friends,One thing I know, for sure, is that we are blessed to have each other on this Network!I've met the most amazing people on this Network. Where we meant to have an AVM to have such wonderful people in our lives? I believe that is…Continue

Social Security Disability Review

Started by Trish in General. Last reply by Tjohnson320 7 hours ago. 38 Replies

For anyone currently receiving SSDI, have you ever had your benefits reviewed by the Social Security Administration?I just received paperwork from SSA that my benefits are being reviewd. I'm a little (a lot) worried about this because I know how…Continue

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Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Learn how others cope and be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

kelley replied to kelley's discussion I really really need to,get my Dr recognized
"Is there anything else I can do to get him recognized for all his hard work, please any advice, I…"
15 minutes ago

Moderator
Barbara H. left a comment for Melissa
"Hi Melissa. Welcome to the site. You may wish to join this…"
1 hour ago

Moderator
Barbara H. left a comment for Violet
"Hi Violet. Welcome to the site. We have almost 7000 members here. You are not longer alone!"
1 hour ago
Melissa is now a member of AVMSurvivors.org
1 hour ago
Leslye Wilson left a comment for sergius south
"Hey Sergius! Remember me? :-) Welcome to the AVM Survivors Network. This Network has been a…"
2 hours ago
AMS joined Debra's group
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Southern California

This group is for AVM Survivor members who live in the Southern California area ... for sharing,…See More
2 hours ago
Patti left a comment for Sherry Stanley
"Hi & welcome, Sherry! A cavernoma (AKA cavernous malformation & cavernous angioma) are one…"
3 hours ago
jmerrell replied to PKP's discussion Too many opinions?
"PKP, You may receive just as many opinions from all of us who have been through this.I see one…"
3 hours ago
Leslye Wilson replied to Louisa's discussion AVM Members
"This network is such a blessing, and everyone here is a such a blessing. For me, one of the biggest…"
7 hours ago
Tjohnson320 replied to Trish's discussion Social Security Disability Review
"Thanks!"
7 hours ago
Leslye Wilson liked Louisa's discussion AVM Members
7 hours ago

Moderator
Mountain girl replied to PKP's discussion Too many opinions?
"LuLu, Well said. I hope that every member here can come to a place where they are confident in…"
8 hours ago

Most Popular Content 

1 Hard to think/talk about my avm journey

Hard to think/talk about my avm journey

Posted by Patrice on September 15, 2014

2 Too many opinions?

Too many opinions?

Posted by PKP on September 15, 2014

3 Hi!

Hi!

Posted by Loulou on September 14, 2014

4 Help me figure this out please. Feedback needed.

Help me figure this out please. Feedback needed.

Posted by MandyLou on September 13, 2014

5 Is Gamma-knife a good choice?

Is Gamma-knife a good choice?

Posted by liuwz on September 13, 2014

 
 
 

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Blog Posts

Results of 3rd procedure

Posted by Svetlana on September 10, 2014 at 2:49am 3 Comments

It's now 2 weeks after the 3rd trip to Arkansas that was the most successful. Dr Richter did lasers and bleomycin injections (he chose bleomycin again because it showed better result than doxycycline), it worked very well, with no complications,…

Continue

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