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Hey guys my wife is wondering what it is like recovery time after surgery. She is going to have surgery to have her AVM removed from her head after she has a couple of Embolization procedures done. She would like to know what it is like after they do the Embolization, any strange or different things that have happened. Also she is wondering if anyone has had one removed from their head and if they have what is it like in the weeks after? Do you have to wear or put some kind of protection…
I forgot to share what the surgery did for me. I had a craniotomy for a symptomatic CM in the brainstem (after 3 bleeds) and was having a lot of simple partial seizures. I had a petite mal seizure in the ambulance when I had my third bleed 10 days before my surgery. I have not had any seizures at all since the surgery. It's amazing. The tingling in my face and left foot and hand is gone too. :)
The recent discovery of my AVM has changed my way of thinking completely. My mind can be a very dark place. I really don't know what to do at times.
Does anyone else feel this way? If so, how do you deal or cope with this reality?
For those of you who aren't able to work any more. What do you like to do to fill your time? If you do crafts, what kind of a craft do you do?
I'm hoping all of us can share our ideas to help others (including myself) come up with new things that we can do to fill our time.
Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.
--------------------------------------------------------------------------------------------------------------------------------------"This is a Memorial Forum to remember our fellow AVM members, who came here for support, and gave support." "As…Continue
I had my radiation surgery yesterday, it was a crazy process, but it went really well over all. The major concern/curiosity I have is that the top of my head in a circle, pin spots being the diameter, has no feeling. Has anyone else had this happen?…Continue
Hi all,I had a fistula on my forehead that had been growing for 30 years. IT was successfully embolized in December, but I seem to be having an allergic reaction to something (either the glue or the oil in the glue). My forehead and eyes swell up…Continue
AVMSurvivors.org is in the process of preparing a guide for individuals that have been diagnosed with an AVM. The purpose of the approximate 20 page guide is to provide hope for a vibrant future, information about treatments, life expectations, and help for family members encouraging an AVM survivor. Read More...
Posted by mamaginof3 on May 19, 2013
Posted by Stuart on May 21, 2013
Posted by Revolutionmom on May 20, 2013
Posted by Acherilyn on May 23, 2013
Posted by Gerda Mullen on May 24, 2013
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Jaz’s video on FB from the International Symposium on Head and Neck Malformation. We’re so proud of our AVMSurvivors.org members!
Great work Jaz!
According to recent literature from Nat’l Institute of Stroke & Neurological Disorders, approximately 100,000 Americans (alone) are affected by CPS. So on a global scale, it’s unknown how many individuals are affected.
Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to firstname.lastname@example.org.