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Featured Discussions

Still afraid!

My husband is still in the ICU 15 days later! Still not talking or moving well they are now talking months in rehab. The dr is using a term called akinetic mutism :/ anyone else have an outcome like this? Any encouraging words or stories to help me feel positive for the man I love?

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What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.


April support group in San Francisco with Dr. Lawton

Started by monica in General 10 hours ago. 0 Replies

Hi! I would love to reach out to those who were in attendance ! It was great seeing, hearing, and meeting with many of you!

Successful obliterated?

Started by Desmonil in General. Last reply by Tjohnson320 11 hours ago. 12 Replies

Dear allWould anyone kind enough to post their successful obliterate about brain AVM by Radio surgery?Also please post the date of the procedure & when it obliterated.I believe it will be a boost to those who are waiting for recovery person like…Continue

Elk Grove, Ca support group

Started by monica in General 12 hours ago. 0 Replies

Hi everyone ! Hope all of you are having a great Saturday ! Im working with a doctor to have a support group for AVM/ aneurysm survivors in the Elk Grove/ Sacramento, Stockton, Lodi, and all over Northern California! How many of you would be…Continue


Started by Chonne in General. Last reply by Angela yesterday. 14 Replies

Just found out I need surgery yesterday. My doc is M. Lawton at UCSF. Is he good? How long is hospital stay after surgery? How much hair do they shave? Mine is very very long. How long does surgery take? Is there alot of pain after surgery? Anything…Continue

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Latest Activity

Louisa liked monica's discussion April support group in San Francisco with Dr. Lawton
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10 hours ago
Tjohnson320 replied to Desmonil's discussion Successful obliterated?
"I'm sorry but I don't have bad news so if you don't want to hear about it, I…"
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John P. and Pjnsbrgh are now friends
13 hours ago
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"John, U are the reason I joined this group. I was 53 when my AVM ruptured. Your recovery gave me…"
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14 hours ago

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"Hello Shane, and welcome! This site is full of supportive people, and offers a tremendous amount of…"
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Most Popular Content 

1 Scared


Posted by Chonne on April 16, 2015

2 Successful obliterated?

Successful obliterated?

Posted by Desmonil on April 17, 2015

3 What day is it?

What day is it?

Posted by Susan T. on April 11, 2015

4 Great news!!

Great news!!

Posted by munchkin on April 15, 2015

5 gamma knife - round 2!!

gamma knife - round 2!!

Posted by Williamsmummy4 on April 13, 2015


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Blog Posts

Pre Day Treatment

Posted by Deby62 on April 7, 2015 at 5:59am 2 Comments

OK So today is Tuesday April 7th. Post birthday for Joe which was awesome thanks to me the Girlfriend, I made sure he had all his favorites: Grilled Rockfish, Oysters, wild rice and lemon meringue pie!! So today we start a dose of steroids. 1 in…



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