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Featured Discussions

Cerebellar avm

Lisa had her bleed 18 months ago. She has been back home for 5 months now after 7 months rehab. Home has been good for her, her nights in hospital were traumatic, here she's got me, Bonbon the dog, Iso and Lilly the cats. She had gamma knife treatment in September, everything went well. Recovery is slow, so heartbreakingly slow and painful . But I get to see daily little miracles, I keep telling Lisa how far she's gone since that terrible day. Such a long way to go, what a struggle. I have…

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What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.

Forum

AVM & now a rare brain cancer called gliosarcoma

Started by Rose in Emotional Support. Last reply by Greg K 2 hours ago. 12 Replies

Hi all,I joined about a month ago for information and support when my Dad had an AVM that bled. About 3.5 weeks ago he had a craniotomy to remove it. All went well and these last 3 weeks we have been extremely happy with his recovery. Out of the…Continue

question for long term survivors of brain injury/haemmorrhage and/or surgery

Started by flower in General. Last reply by Martin Brooks 4 hours ago. 5 Replies

Does the fatigue ever stop?I think I know the answer to this.I am 20yrs plus post surgery, post brain haemorrhage and am extremely tired. Running a home, cooking, everything takes so much energy out of me (I live alone and am single so no husband to…Continue

Cerebellar avm

Started by cecile72 in General. Last reply by Current#17 5 hours ago. 4 Replies

Lisa had her bleed 18 months ago. She has been back home for 5 months now after 7 months rehab. Home has been good for her, her nights in hospital were traumatic, here she's got me, Bonbon the dog, Iso and Lilly the cats. She had gamma knife…Continue

Brain AVM video playlist

Started by dickkirkland in Symptoms & Treatment. Last reply by Louisa 12 hours ago. 3 Replies

In researching treatment after being recently diagnosed, I created a playlist on YouTube with what I think are good, educational videos on the treatment of brain AVMs. I thought others could benefit from the information.…Continue

Tags: reference, brain, AVM

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Latest Activity

marianne elizondo liked Bakingstud's blog post "Humor Can Help Heal" article written for Stanford Neurosurgery
2 hours ago
marianne elizondo liked Tony L Sydney's photo
2 hours ago
Greg K replied to Rose's discussion AVM & now a rare brain cancer called gliosarcoma
"So sorry to hear this about your dad, Rose. Did the oncologist explain to you the different types…"
2 hours ago
Martin Brooks replied to flower's discussion question for long term survivors of brain injury/haemmorrhage and/or surgery
"I'm very new to the AVM world and only had my rupture 31st Dec 2013 so not even a year ago,…"
4 hours ago
Current#17 replied to cecile72's discussion Cerebellar avm
"My doctor said. "Baby steps until one day strides." The steps do take time but are so…"
5 hours ago
sandpoet left a comment for dancermom
"Thanks, I will check it out david"
5 hours ago

Moderator
dancermom left a comment for sandpoet
"Actually, sandpoet, this group is the better fit for you: http://www.bafsupport.org/ I moderate…"
5 hours ago
sandpoet left a comment for dancermom
"I hope I am in the right group. I suffered an aneurysm at 53 which may/may not be a congenital…"
5 hours ago

Moderator
Suzy E left a comment for Ninibeth
"I had no idea today was your birthday till I saw Madere's message. Happy Birthday Ninibeth!!…"
6 hours ago
cecile72 and Danijo are now friends
7 hours ago

Moderator
Susan T. left a comment for sandpoet
"Welcome, sandpoet and I like your screen name. I echo Debra's suggestion on joining the…"
7 hours ago

Moderator
Susan T. left a comment for Jessica
"Welcome, Jessica. We love to see obliterated as the status of a member's AVM. Enjoy the…"
8 hours ago

Most Popular Content 

1 AVM & now a rare brain cancer called gliosarcoma

AVM & now a rare brain cancer called gliosarcoma

Posted by Rose on November 15, 2014

2 what can i expect after gamma knife radiation

what can i expect after gamma knife radiation

Posted by worried mom on November 16, 2014

3 Recovery

Recovery

Posted by Tawney on November 16, 2014

4 Happy Survivor's Day!

Happy Survivor's Day!

Posted by TinaPhx on November 17, 2014

5 Out of my mind with worry

Out of my mind with worry

Posted by Shirasaya on November 18, 2014

 
 
 

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