AVM Survivors Network: Arteriovenous Malformation Support - We're AVM Survivors, Here For Your Support...

We're AVM Survivors, Here For Your Support...

If you or a loved one has had an AVM, this AVM support group is for you. We are the AVM Survivors Network, here for your support.

Latest News

SoCal AVM Survivors Brunch, Saturday July 24
Details here

We walked for AVM Awareness! See pictures on Eric's page and here on my Picasa Page.

VIDEO
Watch video from last year's walk

BRACELETS And if you haven't ordered your AVM Awareness bracelet, now is a good time too!

Proceeds from bracelets benefit TAAF, which raises awareness and funds for research for those affected by an aneurysm or AVM.

Photos

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Latest AVMSurvivors.org News

4/8/10: Thanks to SavantMD for helping us spread the word about AVMSurvivors.org

3/19/10: March 2010 Community Newsletter

8/11/09: Web site of the Month.

8/11/09: OrganizedWisdom's Favorite AVM Community.

Members

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Community Moderators

	Alicia
	Ben
	Connie T
	Gordon D
	Hanne
	Kellie
	Ninibeth
	Kim (Jaclyn's Mom)
	Pauline
	Ron KS
	Scott
	Shalon

Powered by BensFriends.org

This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.

Patient Communities
* Aicardi Syndrome
* Adrenoleukodystrophy (ALD)
* Arteriovenous Malformation (AVM)
* Ataxia (International)
* Ataxia (U.S.A.)
* Atrial Septal Defect
* Brain Aneurysms
* Chiari Malformation
* Crohn's Disease
* Fibromyalgia
* Metastatic Breast Cancer
* Myositis
* Tourette's Syndrome
* Trigeminal Neuralgia (TN)
* Von Willebrand's Disease (VWD)

Welcome to AVMSurvivors.org

Welcome. We're glad you found us! Some things you can do on AVMSurvivors.org:

1. Share your AVM story with the community.
2. Ask an AVM question in the forums. If you're newly diagnosed, don't be shy about reaching out.
3. Keep everyone updated via your personal AVM Survivors blog.

If you have any suggestions on how to make this community even better, we'd love to hear. Read more about using AVMSurvivors.org.

*Keep in mind this is a support group of patients for patients (and friends and family). Unless a person states otherwise, we are not doctors.

This community is brought to you by BensFriends.org Patient Communities.

What's an AVM?

Arteriovenous malformation or AVM is an abnormal connection between veins and arteries, usually congenital.

AVM is not generally thought to be an inherited disorder, unless in the context of a specific hereditary syndrome.

The most general symptoms of a cerebral AVM include headache and epilepsy, with more specific symptoms occurring that normally depend on the location of the malformation and the individual.

An estimated 300,000 Americans have AVMs, of whom 12% (approximately 36,000) will exhibit symptoms of greatly varying severity.

Source: Wikipedia

Latest Activity

Barbara Durham commented on John Hoarty's group 'Southeast AVM Survivors'

We're in Greensboro, NC. My daughter has the avm, it's in her left leg, from the knee to the hip bone.

2 minutes ago

Barbara Durham joined John Hoarty's group

Southeast AVM Survivors

This group is for AVM Survivor members who live in the Southeast ... for sharing, support and occassional get-togethers.

3 minutes ago

Beth replied to Beth's discussion 'What do you think?'

Joy and Mare, The purpose of this thread is to provide a forum for BALANCED information from a personal perspective in order to help others make informed decisions regarding treatment. It is not to pick on any medical facility or physician. I began…

9 minutes ago

John Hoarty left a comment for maria sierra

14 minutes ago

John Hoarty left a comment for Stephanie Parish

15 minutes ago

Chikeena Harrell updated their profile

20 minutes ago