If you are concerned about privacy, please use your last initial in place of your last name. You are not required to use your real name at all here.
To change your name, click here.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
"To Know the Joy of Giving"
Brought to you by Patient Power.
Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.
Hallo everyone. I am new here and am still learning about my condition. I have what is called a posterior frontal AVM which was diagnosed 8 months ago (I am 49) after I had a seizure which was the scariest and most painful thing I have ever…Continue
I have been wondering this, and I'm not trying to be rude, have any of yall had AVMs as a teen or in your early 20s and started a normal life after that? If so what did yall do? Because I'm 17 and don't know what's going to happen to me. I don't…Continue
We will be traveling to London soon with my thirteen year old daughter who has a disappearing AVM (thanks to Proton beam and embolization). This is our first trip to London since her bleed and the discovery of her AVM. I would like the name of a…Continue
Hi everyone. I am 4 years post op. I'm wondering if any of you still having symptoms from youre avm. When I'm stressed my speech stop working or I sound like I'm drunk. Sometimes my right side get paralysed for a while. Thees are the symptoms I had…Continue
Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!
Learn how others cope and be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.
Posted by Bearcat on December 17, 2014
Posted by jg200 on December 15, 2014
Posted by chrisf on December 19, 2014
Posted by Jessica on December 18, 2014
Posted by Josh on December 15, 2014