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Featured Discussions

TREMENDOUS PAIN POST ANGIOGRAM

Hello,
I've had three angiograms for embolization since 2006...then a craniotomy for final obliteration. Since the last angiogram June 2013 I've been in excruciating pain the entire pathway of the angio from my groin all the way to my head. My abdomen, right breast, neck is painful with and without touch. There are days I can hardly function. I've had CT scans to check my internal organs which appears to be OK. However, I'm experiencing, stinging, burning and unexplained pain.…

Gift Store

 

What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.

Forum

Another disability question (denied first time)

Started by Toni Yeomans in General. Last reply by Barbara H. 2 hours ago. 7 Replies

In 2011/2012 I was seeing a psychiatrist who had told me I was beyond qualified for SSDI. I applied on my own and was denied , with the reasons being that "my condition had significantly improved" ummm no, it hasn't. (AVM bled 4 years ago)).I'm…Continue

Dealing with People that think your "Milking It" or "Faking" your Brain Injury....

Started by Michele with one L in Emotional Support. Last reply by Michele with one L 4 hours ago. 95 Replies

Hi Everyone,I don't post on this site very often.... Not because I'm not interested or anything, I just "forget" about the site once in awhile as I move along in my every day life :)I thought of the site this morning because I received a message…Continue

A Little Bit of Fear!

Started by Lesley S, Queensland in General. Last reply by Ninibeth 4 hours ago. 10 Replies

Hello everyone. I like to believe that I am a very positive person, especially having an amazing recovery since my AVM surgery just over 5yrs ago; where I ended up with brain damage. Whilst still in hospital, I had an angiogram which showed that my…Continue

Tools to use for memory and encouragement

Started by survivedavm in General. Last reply by Ann Ning Learning How 11 hours ago. 8 Replies

We have been using the following for memory aides, encouragement, to do lists, and reminders for how to destress.-Dry erase boards-Mirrors: to have me write date and time I took meds so I don't freak out later thinking I forgot to take them (you can…Continue

Mobile App and E-Book Available for Download!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Learn how others cope and be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

Kimi replied to Kimi's discussion Where are our Mid-West AVMers located? in the group Mid-West AVMers
"I'm familiar with that hospital. It's a good hospital. Unfortunately my husband's…"
1 hour ago

Moderator
Barbara H. replied to Toni Yeomans's discussion Another disability question (denied first time)
"Lawyer up my friend. Good Luck!"
2 hours ago
John P. commented on John P.'s blog post Returning to work after the AVM.
"Thank you Susan and Tim, This visit back to the office was more or less enjoyable to me, but later…"
3 hours ago
Toni Yeomans replied to Toni Yeomans's discussion Another disability question (denied first time)
"Thank you so much for your replies. I will definitely look into getting a lawyer for this, I…"
4 hours ago
Michele with one L replied to Michele with one L's discussion Dealing with People that think your "Milking It" or "Faking" your Brain Injury....
"Julie! What GREAT advice :) How true and thank you for posting it! It's actually very…"
4 hours ago
Julie replied to Michele with one L's discussion Dealing with People that think your "Milking It" or "Faking" your Brain Injury....
"I'm in the "some people will never get it" camp. Unfortunately, you can tell your…"
4 hours ago

Moderator
Ninibeth replied to Lesley S, Queensland's discussion A Little Bit of Fear!
"Dear Lesley, is normal that you are feeling scare. But please try to be positive. I suggest you,…"
4 hours ago
Daven replied to Lesley S, Queensland's discussion A Little Bit of Fear!
"I know where you are coming from my davf is gone 2 years ago but recently getting few dizzy spells…"
5 hours ago

Moderator
Tim commented on John P.'s blog post Returning to work after the AVM.
"John, it certainly took courage to return to work again. I enjoy reading your blogs and draw some…"
5 hours ago
Tank5252 replied to Kimi's discussion Where are our Mid-West AVMers located? in the group Mid-West AVMers
"Flint Michigan, treated at University of Michigan Medical Center Nov 2012."
5 hours ago
Tank5252 joined Jamie's group
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Mid-West AVMers

This group is for all of us in the Mid-West.See More
5 hours ago
Tank5252 liked Kimi's discussion Where are our Mid-West AVMers located?
5 hours ago

Most Popular Content 

1 How old were you when your avm was detected?

How old were you when your avm was detected?

Posted by Jpico99 on May 25, 2014

2 Surgery

Surgery

Posted by misty on July 17, 2014

3 Travel

Travel

Posted by mrs sarah major on July 21, 2014

4 Dealing with People that think your "Milking It" or "Faking" your Brain Injury....

Dealing with People that think your "Milking It" or "Faking" your Brain Injury....

Posted by Michele with one L on December 11, 2013

5 A Little Bit of Fear!

A Little Bit of Fear!

Posted by Lesley S, Queensland on July 22, 2014

 
 
 

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Blog Posts

looks like avm free

Posted by Martin Brooks on July 13, 2014 at 6:46am 7 Comments

So 10 hours surgery on Monday to cut out my avm and I woke with no movement or eye sight problem which is great !!!!!!!!, I did need a "drain" fitted which I think was due to bleeding. Surgery was estimated at 3 to 4 hours and turned out was 10 !…

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