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Featured Discussions

Radiation treatment for AVM

Hi, I am currently waiting to be treated for a large AVM on the left side that is coming out of the left Middle Cerebral Artery. Although large I was advised that radiation would be my best option. As the date approaches I'm a bit nervous. I was wondering if anyone has had something relatable to this scenario and can fill me in on what their experience was. I am seeing Drs at UCLA and they have advised me on perhaps what I can expect but thought might be helpful to read about other AVM patients…

What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.


I don't know what to do.

Started by Travisbritton91 in Symptoms & Treatment. Last reply by Debra 4 hours ago. 2 Replies

I have been seeing dr Daniel link at uc Davis and he was helpful in the beginning. I was told he is the best vascular specialist and interventional radiologist in California. I hit a block though. He did sclerotherapy in December and thought I was…Continue


Started by Greg H. in Emotional Support. Last reply by Greg H. 3 hours ago. 4 Replies

So I find myself fearing that a dream. A hope that I have will not be achieved. i, after much effort. Much like that of one becoming a doctor, or a priest, I achieved my goal of becoming an airline pilot. Ultimately becoming a captain for American…Continue

Help please

Started by MoMo in General. Last reply by Cmaz yesterday. 3 Replies

My 15 year old Granddaughter had her bleed on Feb 27th, the AVM is on her brain stem. She had gamma knife June 15th, everything seems to be going okay other that headaches. But now her right eye is a little droopy and has some numbness in her leg.…Continue

any help and insight would be appreciated. Thank you.

Started by paysondog in General. Last reply by Rich 2 hours ago. 1 Reply

1. How long does it usually take for the blood to be reabsorbed after a bleed?2. Can a CM still cause headache and speech problems years after a small bleed has occurred, even if there are no other bleeds after the initial bleed?3. Can a small CM…Continue

Quick question: paracetamol

Started by Reg Agu in General. Last reply by Martin Brooks yesterday. 3 Replies

Hello to everyone,Just a quick question: if you have an AVM but it hasn't bleed, and you are taking anti-seizure medication, what do you do if you have a toothache or a backache? In other words, is it ok to take paracetamol?Thank you. Cheers.Continue

Does anyone know?

Started by Melissa Joyce Lott Conner in General. Last reply by Melissa Joyce Lott Conner yesterday. 4 Replies

I can't remember who wrote a thing that describes how you feel as you start to have a seizure. I would like to post it to a site that I am on that supports other people who have seizures for various reasons. Seems like it was on the blog that used…Continue

Latest Activity

ModSupport left a comment for Jake Hunt
"Hi, JH! Welcome to our community! I notice that you are using what appears to be your real name. We take the online privacy of our members very seriously. In this era of Google, you should know that anybody (like employers, insurance companies or…"
1 hour ago
Rich replied to paysondog's discussion any help and insight would be appreciated. Thank you.
"hello! I will try to reply... 1) reabsorbed? The bleed kills the cells my friend. Some can grow back, but very rarely come back to full strength. It deoends in each case. 2) When i was 18, my second bleed, i lost the power of speech ENTIELY. I could…"
2 hours ago
Rich replied to Kimberlyra's discussion Radiation treatment for AVM
"ive had GKR, 2 doses. First was 2002, then a dose at 2007. Never had any problems at all. The day is long, the hardest part is getting the pin scrrewed in but once thats done, there is no real pain after that. But theres really nothing to worry. :)"
2 hours ago
Greg H. replied to Greg H.'s discussion Dating
"Brian, Thanks. It can be difficult for me to acknowledge the good things in my life that still remain. I am used to operating at a higher level. As for my past accomplishments, again, I tend to disregard them as I can no longer exercise the…"
3 hours ago
Greg H. replied to Greg H.'s discussion Dating
"Debra, Thanks. I have actually gotten in touch with a guy in Dallas who has an AVM. Should meet him next week. Greg"
3 hours ago
Greg H. commented on Greg K's blog post Finally gave in and got a medical bracelet......
"Greg, Been thinking I may need to get one. Anyway, before the bleed I was an avid cyclist. A typical ride would be at least 30 miles. Anyway, I wore a Road ID. It's for cyclists, runners, etc. It is a rubber bracelet with a stainless aluminum…"
3 hours ago

Debra replied to Greg H.'s discussion Dating
"Hi Greg - I can't comment on dating, but certainly based on what you have written here, there is a lot in your heart and you are certainly someone who has a lot to offer. Dating is hard for everybody and for anyone who has been through major…"
3 hours ago

Debra replied to Travisbritton91's discussion I don't know what to do.
"Hi Travis - Im sorry to hear that you have a great deal of pain right now and your doctor is unable to help you right now. Dr. Suen is an ENT so he would not be able to help you, but Dr. Wayne Yakes at Swedish Medical Center in Deniver should be…"
4 hours ago

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Most Popular Content 

1 hair?


Posted by Sophie Unsworth on February 5, 2016

2 Radiation treatment for AVM

Radiation treatment for AVM

Posted by Kimberlyra on February 8, 2016

3 Thailand


Posted by Mia on February 8, 2016

4 Does anyone know?

Does anyone know?

Posted by Melissa Joyce Lott Conner on February 9, 2016


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