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I had my avm removed from my right occipital lobe almost a year ago (in september) and I've been left with permanent vision loss in my lower left periphery. Just recently I had one cup of coffee too many and felt really dizzy at work and started noticing aura-like symptoms akin to a migraine, minus the head pain. I ended up going home sick and tried to rest and experienced what felt like visual hallucinations for a little bit.. and then I threw up. Anyway, since then, I've…
Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.
Hi all, I was getting ready to go for craniotomy early June and the day before surgery we did a final angio that revealed the awesome news that my avm had receded but the angio which was in depth and risky given location caused a stroke affecting…Continue
I'm the winner of 29 platinum coils endovascularly inserted in my dura- I feel like I just won the Showcase Showdown! On the serious side, I hope my insurance picks up most of the tab- that is to be determined..I had a small bleed on the 4th of July…Continue
hi everyone I am needing some advice on what to do . I have recently seen another vascular surgeon who has recommended me to an intervention radiologist who he thinks can put some embolisation coils inside my non brain avm . I am in two minds about…Continue
Hey guys,I had my avm removed from my right occipital lobe almost a year ago (in september) and I've been left with permanent vision loss in my lower left periphery. Just recently I had one cup of coffee too many and felt really dizzy at work and…Continue
just celebrated my 15th year after my cranium bleed. I have been blessed to be where I am and to share the experience I've encountered. I've been able to share a releaf to signicant others the actions of AVMSurvivors and enjoy sharing my journey and…Continue
hello all you beautiful survivors, just had my surgery last week and I'm already feeling great ! Dr. Lawton is amazing !
After a difficult start- 3 cancellations, my 4th date was on Thursday. I called in on Wednesday...can you call back, they said. So I did...still no bed...Can you come in starved tomorrow morning? So I did.But what a fantastic outcome! I had…Continue
I had my appt. With Dr.Barrow at Emory this week. I have to say, he was fantastic. Spent a good hour plus with him and his Fellow walking through all the treatment options and particulars about my AVM. I have a very small, app 2 cm AVM that is on…Continue
Dear community, Dear friends,after hernia surgery is completed, the next yearly check will come. They will make the yearly MRT, looking for things, suspects. Only then, if they see something suspected, they make a spinal angio (cause I said: after 5…Continue
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