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Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.
So I just had my 6 month angiogram to check and see if I was AVM free after my stroke in October. I was told that they did find another AVM growth that will need to be removed, they mentioned that they will discuss with the team whether to do…Continue
Hello All,Glad to be here and glad I joined this network. I recently was diagnosed with an AVM last month after a seizure. I am currently on anti-seizure meds called Keppra. It is about 4 cm on the right side of my brain and deeply rooted so surgery…Continue
Hi everyone, I chose proton radiation to treat my fourteen year old son. Now I'm concerned Bc he is not being himself. He is extremely quiet and very low on energy. His personality has changed so much. He doesn't care about much and doesn't laugh…Continue
Hi! Had a question for my stroke survivors! Randomly, I have these experiences when everything gets really loud around me. The have happened for years now. I could be doing anything ( reading, watching tv, washing dish) and all of a sudden my…Continue
Hello all, I hope everyone had a great weekend and are starting the week off right! As usual, I've been spending my time researching how I can continue to better myself post craniotomy and stroke. This July will mark 3 years since my rupture and…Continue
It's been a while since I've posted here and I hope this finds all you survivors and caregivers well. We are now twenty months into my son's post-rupture life and got great news last month that he is AVM free! This was confirmed by angiogram, we are…Continue
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