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Featured Discussions

Glue/onyx/PVA ..What was your reaction???

My daughter is set for the next eymbo that cannot wait due to the current swelling taking over her ability to open her eye. This is the only vision she has (the other eye there is little to no vision). I believe the onyx used during last eybmo is partially the cause of her swelling but cannot be sure. Truly afraid using the same product could seal her eye shut entirely and there is a lot of could be complications already in that area with the AVM's complexities. Please share your stories…


What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.


My Story

Started by Kristygirl in General. Last reply by John O 14 hours ago. 2 Replies

Hi Everyone, Well since I am new here I wanted to introduce myself. I am Kristy and I was diagnosed with AVM December 10,2000. I have went through MRI's, Angiograms, and Proton therapy. I went through MRI's every six months after the first course…Continue

Is it safe for me to fly?

Started by Nyanele in General. Last reply by Richard 6 hours ago. 8 Replies

Hi everyone!I have a simple question: December 10 I have a flight for London (I'm from Italy) but I am a little bit worried. I had a brain bleed due to my AMV (back left of head, 4cm big) in July. Doctors did not operate me because the bleed stopped…Continue

Tags: bleed, flight, fly

Gamma Knife

Started by Andy in General 22 hours ago. 0 Replies

Following surgery, is there and thing I need to know?Continue

Post Opp improvements welcome

Started by Andy in General 22 hours ago. 0 Replies

Noticed a slight improvement following Gamma Knife surgery, can anyone relate to that, also being able to comprehend things in a different way?Continue

Latest Activity

Lulu left a comment for AlohaWaimea
"Hi AlohaWaimea. Welcome to the site. I'm Lulu and I'm in the UK. I have an inoperable but unruptured brain (Cerebellar) AVM. I'm so sorry to hear about your AVM but hope your treatment goes well. You probably have questions and want…"
27 seconds ago
Profile IconAlohaWaimea, Allison and Mab1 joined AVMSurvivors.org
2 minutes ago
Richard replied to Chelsea's discussion AVM free!
"Congrats on your recovery! Wishing you a full, rich life ahead....."
6 hours ago
Richard replied to Nyanele's discussion Is it safe for me to fly?
"My doctor said there is always a risk of anything happening in the air, if it happens, it's just bad luck. Just prepare the best that you can for your peace of mind. Wishing you all the best"
6 hours ago

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Most Popular Content 

1 Post-op Pain

Post-op Pain

Posted by TLH on November 25, 2015

2 Contacts wanted

Contacts wanted

Posted by Paul on November 24, 2015

3 Is it safe for me to fly?

Is it safe for me to fly?

Posted by Nyanele on November 29, 2015

4 AVM free!

AVM free!

Posted by Chelsea on November 20, 2015

5 My Story

My Story

Posted by Kristygirl on November 29, 2015

6 Nerve Pain

Nerve Pain

Posted by Stephanie French on November 20, 2015

7 Glue/onyx/PVA ..What was your reaction???

Glue/onyx/PVA ..What was your reaction???

Posted by My childs mother on November 20, 2015

8 Peli lens

Peli lens

Posted by Angie on November 23, 2015

9 Insults?


Posted by Greg H. on August 25, 2015

10 Financial assistance advice

Financial assistance advice

Posted by Harvey on November 28, 2015


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Blog Posts

please help me my frends

Posted by Tomas on November 24, 2015 at 10:56pm 2 Comments

I have a few questions:
How do you feel awakened after head surgery
or severe pain after surgery?
thank you people!
Regards Zanas

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