AVM Survivors Network
Welcome to AVM Survivors Network. Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.
Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them
New Member Introductions
New members, start your experience here. Introduce yourself and share your story. Let us welcome you
Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information
General AVM Discussion
Open discussion about issues involved with Facial Pain
Types of Avm's
While brain AVM's are the most common type discussed there there are others. If you wish us to add a category please contact <a href="http://firstname.lastname@example.org">email@example.com</a> Please help start the discussion with your story and questions
Financial & Legal
Practical aspects of dealing with an AVM. Discussions about affordable medication, fighting health insurance companies.
Talk about upcoming walks, fundraisers, helping foundations.
Feeling down? Need to rant? This is the place
Symptoms & Treatment
Anything you have found that helps your symptoms.
This is the place to discuss all the healing modalities that help you cope with AVM and help you nourish your mind, body, and spirit. Please remember to discuss any new therapies you are considering trying with your physician.
Recommend a Doctor, Therapist, or Clinic (Positive
Want to recommend a doctor, therapist, or clinic? Positive review only, please.
News from Bens Friends
This is our new chat. Just reply. If you want to go to a private chat simply click on the mebers avatar and start messaging. You can invite others to join you. For now we don't have a "who's online" box but hope to add that feature soon!
Discussion about this site, its organization, how it works, and how we can improve it.
Wheres my Group? The new format didn't allow the old groups to come over complete. We have made a listing of the Regional groups that were active in the last 6 months so you can reconnect with your old friends and post your regions activities and meetings
Click here to enter chat