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Hey guys my wife is wondering what it is like recovery time after surgery. She is going to have surgery to have her AVM removed from her head after she has a couple of Embolization procedures done. She would like to know what it is like after they do the Embolization, any strange or different things that have happened. Also she is wondering if anyone has had one removed from their head and if they have what is it like in the weeks after? Do you have to wear or put some kind of protection…
I forgot to share what the surgery did for me. I had a craniotomy for a symptomatic CM in the brainstem (after 3 bleeds) and was having a lot of simple partial seizures. I had a petite mal seizure in the ambulance when I had my third bleed 10 days before my surgery. I have not had any seizures at all since the surgery. It's amazing. The tingling in my face and left foot and hand is gone too. :)
The recent discovery of my AVM has changed my way of thinking completely. My mind can be a very dark place. I really don't know what to do at times.
Does anyone else feel this way? If so, how do you deal or cope with this reality?
For those of you who aren't able to work any more. What do you like to do to fill your time? If you do crafts, what kind of a craft do you do?
I'm hoping all of us can share our ideas to help others (including myself) come up with new things that we can do to fill our time.
Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.
I have talked to numerous surgeons and every time I am paying $100 - $400 a pop for film reviews for all of them to say oh my, you need to have something done but we cant, its to risky! Then followed up by a...I suggest you call Dr. _________ so we…Continue
Hey guys my wife is wondering what it is like recovery time after surgery. She is going to have surgery to have her AVM removed from her head after she has a couple of Embolization procedures done. She would like to know what it is like after they…Continue
Last month I had my avm removed via craniotomy and I felt amazingly well with a good sight to recovery, a few jitters with an infection but I'm getting there. The past two weeks I seem to be going down hill feeling a bit down and not my usual cheery…Continue
Hello, I am writing this discussion post, not so much for myself, but for anyone else down the line that may be looking for a story similar to their own (as I didnt find much.)In May of 2012 around the time I was under extreme (somewhat…Continue
AVMSurvivors.org is in the process of preparing a guide for individuals that have been diagnosed with an AVM. The purpose of the approximate 20 page guide is to provide hope for a vibrant future, information about treatments, life expectations, and help for family members encouraging an AVM survivor. Read More...
Posted by Jaanachka on April 24, 2013
Posted by Tina White on May 12, 2013
Posted by Lyla on May 17, 2013
Posted by Scotswoman on May 12, 2013
Posted by Coolj45 on May 9, 2013
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Jaz’s video on FB from the International Symposium on Head and Neck Malformation. We’re so proud of our AVMSurvivors.org members!
Great work Jaz!
According to recent literature from Nat’l Institute of Stroke & Neurological Disorders, approximately 100,000 Americans (alone) are affected by CPS. So on a global scale, it’s unknown how many individuals are affected.
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