We're AVM Survivors, Here For Your Support...
If you or a loved one has had an AVM, this AVM support group is for you. We are the AVM Survivors Network, here for your support.
Photos
Birthdays
Birthdays Today
Birthdays Tomorrow
Events
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Sydney, Australia CATCH UP 16TH APRIL 2010
April 16, 2010 from 12pm to 3pm – SYDNEY, AUSTRALIA
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TAAF's 5th Annual Aneurysm & AVM Walk!
May 8, 2010 from 10am to 2:30pm – San Francisco- Fort Mason's Great Meadow
Latest AVMSurvivors.org News
1/9/10: Member Survey: How are we doing?
10/1/09: 300 AVM Bracelets sold! Don't have your's yet? Get it here!
8/11/09: July/August AVM Community Newsletter
8/16/09: 1000 members strong!
8/11/09: Our Facebook Fan Page
8/11/09: May/June Community Newsletter
8/11/09: Web site of the Month.
8/11/09: OrganizedWisdom's Favorite AVM Community.
8/11/09: $11,035 Raised for TAAF
Community Moderators
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Patient Communities
* Aicardi Syndrome
* Adrenoleukodystrophy (ALD)
* Arteriovenous Malformation (AVM)
* Ataxia (International)
* Ataxia (U.S.A.)
* Brain Aneurysms
* Chiari Malformation
* Crohn's Disease
* Fibromyalgia
* Myositis
* Trigeminal Neuralgia (TN)
Welcome to AVMSurvivors.org
1. Share your AVM story with the community.
2. Ask an AVM question in the forums. If you're newly diagnosed, don't be shy about reaching out.
3. Keep everyone updated via your personal AVM Survivors blog.
If you have any suggestions on how to make this community even better, we'd love to hear. Read more about using AVMSurvivors.org.
*Keep in mind this is a support group of patients for patients (and friends and family). Unless a person states otherwise, we are not doctors.
This community is brought to you by BensFriends.org Patient Communities.
What's an AVM?
Latest Activity
Chat
Sign up to chat on AVM Survivors Network: Arteriovenous Malformation Support
Videos
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Amit's Story
Added by Ben Munoz
Forum
Headaches after surgery 9 Replies
Started by Amanda in General. Last reply by missa andrews 46 minutes ago.
Any one live in the Houston area? 19 Replies
Started by Daniel A Sadler in General. Last reply by Caryn Dupree 1 hour ago.
Has anyone suffered a bleed in the cerebellum? 11 Replies
Started by Monica Buchanan in General. Last reply by Cindy Nelson 3 hours ago.
newly diagnosed 9 Replies
Started by tinamarie in General. Last reply by missa andrews 4 hours ago.
Spinal AVMs 25 Replies
Started by Edmundo Rodriguez in General. Last reply by Connie Ruuska 5 hours ago.
Blog Posts
Feeling Better After Gamma Knife
Posted by Shana Mysko on March 17, 2010 at 11:23am — 2 Comments
FEEL GOOD GOWNS!
Posted by Shalon on March 17, 2010 at 12:22am — 10 Comments
Going to Chicago, IL in April
Posted by Carolina Lopez on March 16, 2010 at 11:09pm — 4 Comments
March 2010 AVMSurvivors.org Newsletter
Posted by Ben Munoz on March 16, 2010 at 10:10pm — 1 Comment
Hi everyone! I miss you!
Posted by nathan's mom ( jaimee ) on March 15, 2010 at 7:42pm — 2 Comments
Buy an AVM Bracelet!
Click here to buy!
Groups
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Parents of AVM
101 members
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Extremity AVM's
95 members
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Inoperable AVMs
60 members
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Europe AVM Survivors
19 members
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Canada AVM Survivors
17 members
Badge
Rest In Peace Baby Nathan
Family and friends celebrated his life as he was laid to rest January 17th at Oak Hill Funeral Home & Memorial Park in San Jose, CA.
© 2010 Created by Ben Munoz on Ning. Create a Ning Network!
