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Featured Discussions

Permanent Scotoma.. a little worried

Hey guys,

I had my avm removed from my right occipital lobe almost a year ago (in september) and I've been left with permanent vision loss in my lower left periphery. Just recently I had one cup of coffee too many and felt really dizzy at work and started noticing aura-like symptoms akin to a migraine, minus the head pain. I ended up going home sick and tried to rest and experienced what felt like visual hallucinations for a little bit.. and then I threw up. Anyway, since then, I've…

 

What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.

Forum

AVM receded but stroke during angio

Started by T_Chicago in General yesterday. 0 Replies

Hi all, I was getting ready to go for craniotomy early June and the day before surgery we did a final angio that revealed the awesome news that my avm had receded but the angio which was in depth and risky given location caused a stroke affecting…Continue

Recent DAVF endovascular coil recipient

Started by SL404 in General yesterday. 0 Replies

I'm the winner of 29 platinum coils endovascularly inserted in my dura- I feel like I just won the Showcase Showdown! On the serious side, I hope my insurance picks up most of the tab- that is to be determined..I had a small bleed on the 4th of July…Continue

I don't know what to do

Started by Lis in General on Wednesday. 0 Replies

hi everyone I am needing some advice on what to do . I have recently seen another vascular surgeon who has recommended me to an intervention radiologist who he thinks can put some embolisation coils inside my non brain avm . I am in two minds about…Continue

Permanent Scotoma.. a little worried

Started by JamesAVM in General. Last reply by Trish on Tuesday. 2 Replies

Hey guys,I had my avm removed from my right occipital lobe almost a year ago (in september) and I've been left with permanent vision loss in my lower left periphery. Just recently I had one cup of coffee too many and felt really dizzy at work and…Continue

Tags: avm, occipital, scotoma

Hey everyone

Started by Jerrod Black in Emotional Support. Last reply by Ninibeth on Monday. 1 Reply

just celebrated my 15th year after my cranium bleed. I have been blessed to be where I am and to share the experience I've encountered. I've been able to share a releaf to signicant others the actions of AVMSurvivors and enjoy sharing my journey and…Continue

Craniotomy can now be checked off my list of things to do :)

Started by monica in General. Last reply by BeatleChick on Monday. 4 Replies

hello all you beautiful survivors, just had my surgery last week and I'm already feeling great ! Dr. Lawton is amazing !

On top of the world!

Started by Chopsiegirl in General. Last reply by Martin Brooks on Monday. 11 Replies

After a difficult start- 3 cancellations, my 4th date was on Thursday. I called in on Wednesday...can you call back, they said. So I did...still no bed...Can you come in starved tomorrow morning? So I did.But what a fantastic outcome! I had…Continue

Finally saw the Dr...pending test result, looks like surgery

Started by Kathy in General. Last reply by SL404 yesterday. 6 Replies

I had my appt. With Dr.Barrow at Emory this week. I have to say, he was fantastic. Spent a good hour plus with him and his Fellow walking through all the treatment options and particulars about my AVM. I have a very small, app 2 cm AVM that is on…Continue

Medical Alert Bracelets

Started by PKP in General. Last reply by Karen W on Monday. 3 Replies

I have a large inoperable AVM, should I be wearing a alert bracelet in case I have an issue with being unconscious? What should it say?Continue

Who else: BSS - Brown-Sequard Syndrom

Started by Michael in Symptoms & Treatment. Last reply by Ninibeth on Tuesday. 4 Replies

Dear community, Dear friends,after hernia surgery is completed, the next yearly check will come. They will make the yearly MRT, looking for things, suspects. Only then, if they see something suspected, they make a spinal angio (cause I said: after 5…Continue

Latest Activity


Moderator
Debra left a comment for Victoria
"Hi Victoria and welcome to the site. Best of luck on your upcoming surgery in August and it sounds like it is time to have the surgery on your leg. Please be sure to join our Extremity group and the Texan group as well. Below are the links for you…"
6 hours ago
Kate updated their profile
7 hours ago

Moderator
Tim left a comment for Victoria
"Hello Victoria, and welcome! This site is full of supportive people, and offers a tremendous amount of information. There are thousands of survivors here, so stay positive and have hope. All the best!"
10 hours ago
Victoria is now a member of AVMSurvivors.org
10 hours ago
Susan T. commented on tdz103m's blog post Changes in latitude
"Best wishes to your wife and you, tdz103m, in your new location."
12 hours ago
Dave replied to Dave's discussion Getting bad again in the group UK AVM AWARENESS & RESEARCH GROUP
"update. over the last few days have been shouting from the highest rooftops, as the onyx was coming out. Went back to my GP, letters being written to plastic and radiology for answers, as well as maybe a complaint from me as she say that works…"
16 hours ago

Moderator
Debra left a comment for Mac777
"Hi Mac777 and welcome to the site. How have you been doing since your surgery last year? We are certainly glad you are a member of our wonderful community of Survivors."
yesterday
T_Chicago posted a discussion

AVM receded but stroke during angio

Hi all, I was getting ready to go for craniotomy early June and the day before surgery we did a final angio that revealed the awesome news that my avm had receded but the angio which was in depth and risky given location caused a stroke affecting…See More
yesterday

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Most Popular Content 

1 On top of the world!

On top of the world!

Posted by Chopsiegirl on July 25, 2015

2 Getting bad again

Getting bad again

Posted by Dave on July 27, 2015

3 facial AVM and pregnancy

facial AVM and pregnancy

Posted by Zabbie on July 28, 2015

4 Finally saw the Dr...pending test result, looks like surgery

Finally saw the Dr...pending test result, looks like surgery

Posted by Kathy on July 24, 2015

5 Craniotomy can now be checked off my list of things to do :)

Craniotomy can now be checked off my list of things to do :)

Posted by monica on July 27, 2015

6 Embolisation and craniotomy dates confirmed!

Embolisation and craniotomy dates confirmed!

Posted by Kate on June 29, 2015

7 Anyone having NHS problems?

Anyone having NHS problems?

Posted by KaynGaz on July 12, 2012

8 Please help with some questions about cognard 111 brain fistula

Please help with some questions about cognard 111 brain fistula

Posted by tazgran on July 24, 2015

9 Who else: BSS - Brown-Sequard Syndrom

Who else: BSS - Brown-Sequard Syndrom

Posted by Michael on July 24, 2015

10 Permanent Scotoma.. a little worried

Permanent Scotoma.. a little worried

Posted by JamesAVM on July 28, 2015

 
 
 

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Blog Posts

Changes in latitude

Posted by tdz103m on July 29, 2015 at 3:00am 1 Comment

My wife and I recently located from NJ to SC (USA). We had been planning on it for the past few years but I had a stroke a few years back so I was still a bit under doctor's care. Wanted to make everything was okay.

I had a pretty good…

Continue

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