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Events
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
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AVM BBQ, Friends and food!
May 26, 2012 from 12pm to 9pm – Houston, TX
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Forum
SSDI Medical Review
Started by Coconut in General 4 minutes ago.
Whooshing Sounds- 7 Replies
Started by Lori in Symptoms & Treatment. Last reply by Lori 8 minutes ago.
Dating Post AVM 6 Replies
Started by julie in General. Last reply by Michele_A 39 minutes ago.
Brain Avm Survivors 49 Replies
Started by min in General. Last reply by min 1 hour ago.
Lucky 9 Replies
Started by Nicole L. Hulbert in General. Last reply by Trish 1 hour ago.
Guilty Feelings 7 Replies
Started by krd in General. Last reply by Melissa 2 hours ago.
Grandma has AVM- Need your help with your experience & knowledge 6 Replies
Started by Hopeful in General. Last reply by Angela 3 hours ago.
reply thing 3 Replies
Started by LAURA BESSER in General. Last reply by Suzy E 7 hours ago.
Surgery before having a bleed 17 Replies
Started by Matt W. in Symptoms & Treatment. Last reply by Patti G 8 hours ago.
Angiogram and Embolization on a baby 3 Replies
Started by hch in General. Last reply by hch 8 hours ago.
Craniotomy on Monday!! 33 Replies
Started by Tawnya Sherbondy in General. Last reply by Louisa 9 hours ago.
Chances of survival from a brain bleed 11 Replies
Started by Jay in General. Last reply by Louisa 9 hours ago.
If you've got a spare 7 minutes could you answer this survey for a project I'm doing plse.
Started by flower in General 9 hours ago.
Cybernife treatment while being a college student. 15 Replies
Started by JPuente in Symptoms & Treatment. Last reply by ruthevans41 10 hours ago.
Suggestions on what pain meds work for people that do not cause vomitting 19 Replies
Started by Angela in General. Last reply by Daniel A Sadler 11 hours ago.
Latest Activity
Blog Posts
FRUSTRATED!!!!
Posted by DeAndra on February 14, 2012 at 11:36pm — 5 Comments
Improvement
Posted by DeAndra on February 14, 2012 at 10:38pm — 5 Comments
In the Short Rows
Posted by Elizabeth's Mom & Dad on February 14, 2012 at 4:46pm — 4 Comments
First visit in school
Posted by Anne Karin on February 14, 2012 at 4:23pm — 2 Comments
Valentine's Day Note
Posted by Suzy E on February 14, 2012 at 10:38am — 3 Comments
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Jug Monkey trailer
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CLIMBING 2010
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Living With Erythromelalgia Support Group
New member says:
“Thanks for the welcome, I’ve been looking for an EM forum for some time … finally found this one!”
Living With Fibromyalgia - Online Support Group
New member says:
“Thank you for helping to make this site possible. I need to get into a support group badly as no one around here has FMS and it’s so difficult to get out of the house sometimes to go to the meetings over an hour away.”
Trials and Tribute: Patient Support Communities Powered by Bensfriends.org
Trials and Tribute: Patient Support Communities Powered by Bensfriends.org:These communities are a part of the Ben’s Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
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…
Featured Discussions
Aphasia - Trade secrets
Hi all, his my first go at this - none of this will instantly solve your aphasic im afraid, but sometimes u can get pass it. We all have different degrees of aphasia - but if you can get to be around 75% back, its possible to work in an office....and not even have to tell them your aphasic! Well, i have anyway lol :)Hope this could be useful............Aphasia - an aggressive, bad tempted beast that never gives up - it can attack without warning! As communication is the key of all things…
AVM Free after just 1 year post GK
As some of you know on Monday I went into the ER with really bad headaches that had been progressively getting worse over a week up to a pain scale 10 I was also throwing up. I have the pain and swelling under control with steroids and just had a angio which confirmed I'm now AVM free. Yay. Update since coming home I sent my records to The Gamma Team at USC for them to take a look for me. I got a call and they said there is a new cyst near the AMV site. 1.4mm. The Dr's at the ER did mention…MRI/MRA VS ANGIO?
Hey everyone!!! I was originaly scheduled to have an MRI/MRA for my 6 month follow up from my old Dr, which has relocated and now the Dr that took over is sched an angio. Has anyone had either of these for check ups? I am feeling hesitant about the angio since my orig Dr didnt order this. Thanks for your answers. MhikeyAVM FREE!!!
I am now AVM Free!!!!!!!! Very blessed!!!!!!! Went in Aug 22 for Embolization! Then was 2nd case Aug 23 for REMOVAL! I was wide awake after with most of my vision loss in right eye gone. Woke up the next morning with most of my vision back! Was expected to be in ICU 2 days after removal I was in for one night. Was expected to be in reg room for a week was in for 2 1/2 days. I DO NOT have to have ANY therapy. The Emory Hospital in Atlanta and staff is AMAZING! Dr. Barrows team along woth Dr.…Neuro Film Fest - 2012
For anyone unable to participate in the 2011 Film Fest, perhaps you will be inspired to share your story in a video and help bring awareness to the many disabling, unknown neurological disorders that affect so many lives!
Best of Ben's Friends
What is Best of Ben's Friends?
Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to info@bensfriends.org.
Most Popular Content
| 1 |
Craniotomy on Monday!!Posted by Tawnya Sherbondy on February 8, 2012 |
| 2 |
Calling all Avmers in the UK !!Posted by George Christou (Nicoles Dad) on February 9, 2012 |
| 3 |
What AVM made me give upPosted by Katrina on February 12, 2012 |
| 4 |
frustration to the max...just ventingPosted by julie on February 8, 2012 |
| 5 |
Not knowing whenPosted by Jana on February 9, 2012 |
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Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
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Ataxia (International)
Ataxia (U.S.A.)
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Groups
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Parents of AVM
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Extremity AVM's
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Inoperable AVMs
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Unruptured AVM
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Radiosurgery Patients (G…
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