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Featured Discussions

AVM surgery

Hi,

This is with regards to my daughter who had undergone AVM surgery two years back on the right frontal side and has left side hemiplegia unable to lift or hold any thing from her left hand and also lift her leg while walking.

we have been giving her physiotherapy since 2 years and finding not much improvement now.

Any one who has undergo similar surgery and undergo treatment can please share there views with me

Gift Store

 

What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.

Forum

Post AVM surgery and can't open mouth all the way

Started by Hokuagility in Symptoms & Treatment 54 minutes ago. 0 Replies

I had a left side AVM removed on June 26. Over the last week I noticed that my jaw on that side got more and more tight. While I can still eat, I'm noticing that I have to struggle to open my mouth all the way. Anyone else have this experience?…Continue

Tags: jaw, Mouth

AVM doctors in Houston? Moving and need to find a doctor

Started by Erin Kamery in General 2 hours ago. 0 Replies

I am about to move across the country from Buffalo NY to Houston TX. I have an amazing doctor here in buffalo that saved my life. After a bad experience with the first neurosurgeon I saw (he told me to go home and do anything that I wanted to do…Continue

Post Embloization side effects

Started by avmaltese in General. Last reply by avmaltese 7 hours ago. 3 Replies

Just had a bleed this pat February and had an emergency partial embolization. Just had second stage embo this past June and was wondering if anyone has side effects like easily fatigued, sleepiness, moody, numbness , concentration problems,…Continue

AVM Surgery 7 years ago now a Fistula

Started by Stacy in Symptoms & Treatment. Last reply by momma3 19 hours ago. 12 Replies

Hello, Thanks for the add... I am 30 years old. At 23 I have a left occipital AVM and had it cortorized with onyx. I thought everything was gone and done and had a follow up Angio last month and was told there is a Fistula right next to the original…Continue

Uncertainty of what treatment will be done

Started by Gammy in General. Last reply by Gammy 5 hours ago. 8 Replies

Hi I was diagnosed with an AVM on 25/4/15 following a bleed on the brain, I'd had a dizzy spell and whooshing noise and don't remember much of the day it happened. I had an angiogram whilst there but no other treatment in the 19 days I was…Continue

AV fistulas and sildenafil (Viagra) use.

Started by DonInDavis in General yesterday. 0 Replies

I am wondering what the community thinks of my belief that long-term use (years of prescribed, normal dose use) of sildenafil (Viagra) could cause or worsen the development of a fistula (arterial leak) in an AVM. Has anyone experienced (or know of…Continue

Dating

Started by Yaanachka in General. Last reply by Musemica 14 hours ago. 5 Replies

Dear fellow avmers -I'm interested in hearing your experiences in the dating world. When is the right time to tell someone about your avm?(especially if it's untreated/untreatable)? Do you even have to tell them at all?(especially if it doesn't…Continue

AVM surgery

Started by akilasha in General. Last reply by Shirasaya on Wednesday. 1 Reply

Hi,This is with regards to my daughter who had undergone AVM surgery two years back on the right frontal side and has left side hemiplegia unable to lift or hold any thing from her left hand and also lift her leg while walking.we have been giving…Continue

Starting a Local Support Group

Started by Fire Spinner in General. Last reply by Madere (dancermom) on Tuesday. 1 Reply

So to begin with, I know this may be a monumental task. I was curious if anyone has set up local support groups for AVM/Epileptics/etc. for their areas in the past and what the rough logistics are. I live near OHSU, a neurological specialty hospital…Continue

Vision Therapy

Started by Danijo in General. Last reply by Gavin's mom 3 hours ago. 8 Replies

I have had a few members and one OT recommend Vision Therapy for Scott. His vision has improved tremendously from the beginning but still needs a lot of work. But when I asked the neuro opthamologist,they seemed to act like there was no point. Being…Continue

Latest Activity

Hokuagility posted a discussion

Post AVM surgery and can't open mouth all the way

I had a left side AVM removed on June 26. Over the last week I noticed that my jaw on that side got more and more tight. While I can still eat, I'm noticing that I have to struggle to open my mouth all the way. Anyone else have this experience?…See More
54 minutes ago
Erin Kamery posted a discussion

AVM doctors in Houston? Moving and need to find a doctor

I am about to move across the country from Buffalo NY to Houston TX. I have an amazing doctor here in buffalo that saved my life. After a bad experience with the first neurosurgeon I saw (he told me to go home and do anything that I wanted to do…See More
2 hours ago
Gavin's mom replied to Danijo's discussion Vision Therapy
3 hours ago
Gavin's mom replied to Danijo's discussion Vision Therapy
"I find this topic very interesting as a school based occupational therapist and as a mom to Gavin, who had suffered huge vision difficulties from 3 bleeds, with one bleed causing a massive stroke at the age of 6 (leaving him with right hemiparesis…"
4 hours ago
Gammy replied to Gammy's discussion Uncertainty of what treatment will be done
"Thank you for this, Now to find the right neurosurgeon, I'm unsure how I go about this though."
5 hours ago
TLo replied to Gammy's discussion Uncertainty of what treatment will be done
"I had the bleed of my avm in august 2014 and didn't end up having a craniotomy to remove it until this past january. It's all about finding the right neurosurgeon to do the right thing. All they insist is that you take it as easy as you…"
5 hours ago
avmaltese replied to avmaltese's discussion Post Embloization side effects
"I am scheduling a third stage embo and then radiation right after that to completely shrink the AVM, anything you can let me know about the radiation, how did that affect you"
7 hours ago
Gammy replied to Gammy's discussion Uncertainty of what treatment will be done
"Thanks for this, I know the 'ticking time bomb' feeling only too well, I do hope you doing well now."
10 hours ago

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Most Popular Content 

1 AVM Surgery 7 years ago now a Fistula

AVM Surgery 7 years ago now a Fistula

Posted by Stacy on July 2, 2015

2 Abandoned by other systems

Abandoned by other systems

Posted by Unbelievable1 on June 28, 2015

3 all this from one missed dose of medicine

all this from one missed dose of medicine

Posted by Melissa Joyce Lott Conner on June 28, 2015

4 Vision Therapy

Vision Therapy

Posted by Danijo on June 30, 2015

5 Uncertainty of what treatment will be done

Uncertainty of what treatment will be done

Posted by Gammy on July 2, 2015

6 Worried and Scared

Worried and Scared

Posted by Gary Railman on June 30, 2015

7 elevated in Gamma GT

elevated in Gamma GT

Posted by Desmonil on June 26, 2015

8 AVM and visual symptoms

AVM and visual symptoms

Posted by cpmdude on June 17, 2015

9 Embolisation and craniotomy dates confirmed!

Embolisation and craniotomy dates confirmed!

Posted by Kate on June 29, 2015

10 Dating

Dating

Posted by Yaanachka on July 2, 2015

 
 
 

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