AVM Survivors Network: Arteriovenous Malformation Support

We're AVM Survivors, Here For Your Support...

If you or a loved one has had an AVM, this AVM support group is for you. We are the AVM Survivors Network, here for your support.

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Members

  • Christine
  • Heather A
  • kevin matthews
  • Sharon Renshaw
  • Mario Ontiveros
  • Loretta Selkirk
  • Toni Yeomans
  • Luke G
  • amber trammell
  • Debbie Considine
  • Anne Dyson
  • Samuel Shoesmith
  • ECE POR
  • Yesenia
  • Martha Johnson
  • Looking for now
  • CAROLYN J GATTEN
  • Ramona C. Cohen
  • John Proctor
  • Nathan Santiago

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Welcome to AVMSurvivors.org

Welcome. We're glad you found us! Some things you can do on AVMSurvivors.org:

1. Share your AVM story with the community.
2. Ask an AVM question in the forums. If you're newly diagnosed, don't be shy about reaching out.
3. Keep everyone updated via your personal AVM Survivors blog.

If you have any suggestions on how to make this community even better, we'd love to hear. Read more about using AVMSurvivors.org.

*Keep in mind this is a support group of patients for patients (and friends and family). Unless a person states otherwise, we are not doctors.

This community is brought to you by BensFriends.org Patient Communities.

What's an AVM?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. They are comprised of snarled tangles of arteries and veins. AVMs of the brain or spinal cord (neurological AVMs) are believed to affect approximately 300,000 Americans. (read more...)

Latest Activity

4 minutes ago
6 minutes ago
33 minutes ago
37 minutes ago
Toni Yeomans updated their profile photo
56 minutes ago
Yes hang in there. There is a lot of new technology and knowledge of this condition today. Thank you Jolene for the You Tube link.
56 minutes ago
Toni Yeomans updated their profile
56 minutes ago
1 hour ago

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Forum

Jolene rogers

New 5 Replies

Started by Jolene rogers in General. Last reply by Loretta Selkirk 56 minutes ago.

Looking for now

Research Your Doctors. 4 Replies

Started by Looking for now in Surgeon/Hospital/Mental Health Recommendations. Last reply by Looking for now 2 hours ago.

Shalon

1000 Members Strong...and growing! 28 Replies

Started by Shalon in General. Last reply by Ben Munoz 14 hours ago.

SHERRY NEEL

where to go 4 Replies

Started by SHERRY NEEL in General. Last reply by JH 17 hours ago.

Rachel

Who is AVM free after treatments? Please post here in this new post. Thanks 62 Replies

Started by Rachel in General. Last reply by Loretta Selkirk 18 hours ago.

Blog Posts

Mario Ontiveros

Great News For Lacey

Posted by Mario Ontiveros on March 11, 2010 at 12:39pm

Toni

bracelets

Posted by Toni on March 10, 2010 at 10:31pm — 2 Comments

stella

3-9-10 YOU KNOW I LOVE YOU ALL

Posted by stella on March 10, 2010 at 7:02pm

Katrina Rigdon

Entry #3

Posted by Katrina Rigdon on March 10, 2010 at 3:36pm — 2 Comments

Mario Ontiveros

Still Waiting

Posted by Mario Ontiveros on March 10, 2010 at 5:17am — 3 Comments

 
 

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Rest In Peace Baby Nathan

January 11, 2009, despite a courageous fight against his AVM, Baby Nathan lost his battle.

Family and friends celebrated his life as he was laid to rest January 17th at Oak Hill Funeral Home & Memorial Park in San Jose, CA.
 

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