AVM Survivors Network: Arteriovenous Malformation Support

We're AVM Survivors, Here For Your Support...

If you or a loved one has had an AVM, this AVM support group is for you. We are the AVM Survivors Network, here for your support.

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Members

  • Amanda
  • Filipa Goncalves
  • missa andrews
  • Shane Crotty
  • Marco V Guillen
  • Caryn Dupree
  • Shalon
  • Maria  Fernandez
  • cristina matias
  • Frank Fennessey
  • Cherie Mae Tumulak Sobredo
  • Jerry Osterhoudt
  • MARIA   CRUZ
  • michelle alvarez
  • Suzi Santamaria-Kono
  • Alan Wubenhorst
  • Sean Toves (Wife: Sallie Toves)
  • Char Landes
  • Sarah
  • chris milne

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Welcome to AVMSurvivors.org

Welcome. We're glad you found us! Some things you can do on AVMSurvivors.org:

1. Share your AVM story with the community.
2. Ask an AVM question in the forums. If you're newly diagnosed, don't be shy about reaching out.
3. Keep everyone updated via your personal AVM Survivors blog.

If you have any suggestions on how to make this community even better, we'd love to hear. Read more about using AVMSurvivors.org.

*Keep in mind this is a support group of patients for patients (and friends and family). Unless a person states otherwise, we are not doctors.

This community is brought to you by BensFriends.org Patient Communities.

What's an AVM?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. They are comprised of snarled tangles of arteries and veins. AVMs of the brain or spinal cord (neurological AVMs) are believed to affect approximately 300,000 Americans. (read more...)

Latest Activity

the level varies from about a five to a nine..symptoms... nausea. sensitivity to light and sound, pain moving, tiredness, sleeplessness. Frankly, i go to sleep with a headache and i wake with a headache. its hard to eat and equally hard to sleep. it…
46 minutes ago
Sounds good-keep me posted. We can all bring something.
1 hour ago
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3 hours ago
Shana I am happy for you that you are having a positive affect from the GK and hope you have a fun filled weekend !!!
3 hours ago

Chat

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Forum

Amanda

Headaches after surgery 9 Replies

Started by Amanda in General. Last reply by missa andrews 46 minutes ago.

Daniel A Sadler

Any one live in the Houston area? 19 Replies

Started by Daniel A Sadler in General. Last reply by Caryn Dupree 1 hour ago.

Monica Buchanan

Has anyone suffered a bleed in the cerebellum? 11 Replies

Started by Monica Buchanan in General. Last reply by Cindy Nelson 3 hours ago.

tinamarie

newly diagnosed 9 Replies

Started by tinamarie in General. Last reply by missa andrews 4 hours ago.

Edmundo Rodriguez

Spinal AVMs 25 Replies

Started by Edmundo Rodriguez in General. Last reply by Connie Ruuska 5 hours ago.

Blog Posts

Shana Mysko

Feeling Better After Gamma Knife

Posted by Shana Mysko on March 17, 2010 at 11:23am — 2 Comments

Shalon

FEEL GOOD GOWNS!

Posted by Shalon on March 17, 2010 at 12:22am — 10 Comments

Carolina Lopez

Going to Chicago, IL in April

Posted by Carolina Lopez on March 16, 2010 at 11:09pm — 4 Comments

Ben Munoz

March 2010 AVMSurvivors.org Newsletter

Posted by Ben Munoz on March 16, 2010 at 10:10pm — 1 Comment

nathan's mom ( jaimee )

Hi everyone! I miss you!

Posted by nathan's mom ( jaimee ) on March 15, 2010 at 7:42pm — 2 Comments

 
 

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Rest In Peace Baby Nathan

January 11, 2009, despite a courageous fight against his AVM, Baby Nathan lost his battle.

Family and friends celebrated his life as he was laid to rest January 17th at Oak Hill Funeral Home & Memorial Park in San Jose, CA.
 

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