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This is with regards to my daughter who had undergone AVM surgery two years back on the right frontal side and has left side hemiplegia unable to lift or hold any thing from her left hand and also lift her leg while walking.
we have been giving her physiotherapy since 2 years and finding not much improvement now.
Any one who has undergo similar surgery and undergo treatment can please share there views with me
Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.
I had a left side AVM removed on June 26. Over the last week I noticed that my jaw on that side got more and more tight. While I can still eat, I'm noticing that I have to struggle to open my mouth all the way. Anyone else have this experience?…Continue
I am about to move across the country from Buffalo NY to Houston TX. I have an amazing doctor here in buffalo that saved my life. After a bad experience with the first neurosurgeon I saw (he told me to go home and do anything that I wanted to do…Continue
Just had a bleed this pat February and had an emergency partial embolization. Just had second stage embo this past June and was wondering if anyone has side effects like easily fatigued, sleepiness, moody, numbness , concentration problems,…Continue
Hello, Thanks for the add... I am 30 years old. At 23 I have a left occipital AVM and had it cortorized with onyx. I thought everything was gone and done and had a follow up Angio last month and was told there is a Fistula right next to the original…Continue
Hi I was diagnosed with an AVM on 25/4/15 following a bleed on the brain, I'd had a dizzy spell and whooshing noise and don't remember much of the day it happened. I had an angiogram whilst there but no other treatment in the 19 days I was…Continue
I am wondering what the community thinks of my belief that long-term use (years of prescribed, normal dose use) of sildenafil (Viagra) could cause or worsen the development of a fistula (arterial leak) in an AVM. Has anyone experienced (or know of…Continue
Dear fellow avmers -I'm interested in hearing your experiences in the dating world. When is the right time to tell someone about your avm?(especially if it's untreated/untreatable)? Do you even have to tell them at all?(especially if it doesn't…Continue
Hi,This is with regards to my daughter who had undergone AVM surgery two years back on the right frontal side and has left side hemiplegia unable to lift or hold any thing from her left hand and also lift her leg while walking.we have been giving…Continue
So to begin with, I know this may be a monumental task. I was curious if anyone has set up local support groups for AVM/Epileptics/etc. for their areas in the past and what the rough logistics are. I live near OHSU, a neurological specialty hospital…Continue
I have had a few members and one OT recommend Vision Therapy for Scott. His vision has improved tremendously from the beginning but still needs a lot of work. But when I asked the neuro opthamologist,they seemed to act like there was no point. Being…Continue
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