14 months post GK mild swelling returns
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
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AVM BBQ, Friends and food!
May 26, 2012 from 12pm to 9pm – Houston, TX
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Forum
How do I get someone to hear me?... 8 Replies
Started by Whitney Driskill in General. Last reply by Patti G 36 minutes ago.
Can't shake this headache!!! 1 Reply
Started by Emily K in General. Last reply by Trish 53 minutes ago.
Vision Problems 13 Replies
Started by Manux in General. Last reply by Greg H. 1 hour ago.
Night Terrors 2 Replies
Started by Kim in General. Last reply by Barbara H. 1 hour ago.
Post Op problems 7 Replies
Started by MarinaWC in General. Last reply by Stefanie 12 hours ago.
Working out and side effects of AVM afterwards? 2 Replies
Started by Kellie in General. Last reply by Kellie 12 hours ago.
groin pain 8 Replies
Started by karen schumacher in Symptoms & Treatment. Last reply by Ben Morrell 13 hours ago.
AVM vs ROOT CANAL 7 Replies
Started by sla in General. Last reply by Ben Morrell 13 hours ago.
I need a new neurologist 4 Replies
Started by Briana Sandoval in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Swami Jim 13 hours ago.
Sleeping issues.. 7 Replies
Started by Nay in General. Last reply by Ben Morrell 14 hours ago.
Surgery with no results 12 Replies
Started by Zoe in General. Last reply by Angela 15 hours ago.
What is to be expected... 11 Replies
Started by Nay in General. Last reply by Trish 19 hours ago.
Help for Low Income Americans 16 Replies
Started by Ron, Kansas in General. Last reply by Lisa yesterday.
Time between embolization treatments. 16 Replies
Started by lakersfan86 in General. Last reply by lakersfan86 yesterday.
Smile Though Your Heart is Breaking 15 Replies
Started by julie anderson in General. Last reply by Swami Jim yesterday.
Latest Activity
Patti G replied to Whitney Driskill's discussion 'How do I get someone to hear me?...'
Trish commented on Whitney Driskill's blog post 'Every day of an AVM patient...'
Trish replied to Emily K's discussion 'Can't shake this headache!!!'
Blog Posts
Every day of an AVM patient...
Posted by Whitney Driskill on January 27, 2012 at 5:34pm — 3 Comments
January 2012 Community Newsletter
Posted by Ben Munoz on January 26, 2012 at 10:00am
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Posted by Remy Bernier on January 26, 2012 at 8:07am — 2 Comments
Photography
Posted by Tasha Hill on January 24, 2012 at 10:06am — 3 Comments
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Living With Fibromyalgia - Online Support Group
New member says:
“Thanks so muc for the nice welcome. This seems like a great place to hang out. I have been trying to pretend i don;t have Fibro in order to take my life back. But lately the flareups are too much. I try to hide it from everyone so i really need a place to talk about this BIG part of my life.”
Trigeminal Neuralgia (TN) - Online Support Group
New member says:
“Thanks ….I actually felt so happy this morning when I remembered about the site….and I hurried up and logged in to see faces that KNOW!!!!!!! Thanks for being here for support!”
Trigeminal Neuralgia (TN) - Online Support Group
New member says:
“Thank you for the welcome on here. I am amazed at this site and so happy I found it. It is good to realize that I am not alone in dealing with this issue and by sharing, maybe we can all help each other. Thank you again!”
Featured Discussions
Aphasia - Trade secrets
Hi all, his my first go at this - none of this will instantly solve your aphasic im afraid, but sometimes u can get pass it. We all have different degrees of aphasia - but if you can get to be around 75% back, its possible to work in an office....and not even have to tell them your aphasic! Well, i have anyway lol :)Hope this could be useful............Aphasia - an aggressive, bad tempted beast that never gives up - it can attack without warning! As communication is the key of all things…
AVM Free after just 1 year post GK
As some of you know on Monday I went into the ER with really bad headaches that had been progressively getting worse over a week up to a pain scale 10 I was also throwing up. I have the pain and swelling under control with steroids and just had a angio which confirmed I'm now AVM free. Yay. Update since coming home I sent my records to The Gamma Team at USC for them to take a look for me. I got a call and they said there is a new cyst near the AMV site. 1.4mm. The Dr's at the ER did mention…MRI/MRA VS ANGIO?
Hey everyone!!! I was originaly scheduled to have an MRI/MRA for my 6 month follow up from my old Dr, which has relocated and now the Dr that took over is sched an angio. Has anyone had either of these for check ups? I am feeling hesitant about the angio since my orig Dr didnt order this. Thanks for your answers. MhikeyAVM FREE!!!
I am now AVM Free!!!!!!!! Very blessed!!!!!!! Went in Aug 22 for Embolization! Then was 2nd case Aug 23 for REMOVAL! I was wide awake after with most of my vision loss in right eye gone. Woke up the next morning with most of my vision back! Was expected to be in ICU 2 days after removal I was in for one night. Was expected to be in reg room for a week was in for 2 1/2 days. I DO NOT have to have ANY therapy. The Emory Hospital in Atlanta and staff is AMAZING! Dr. Barrows team along woth Dr.…Neuro Film Fest - 2012
For anyone unable to participate in the 2011 Film Fest, perhaps you will be inspired to share your story in a video and help bring awareness to the many disabling, unknown neurological disorders that affect so many lives!
Best of Ben's Friends
What is Best of Ben's Friends?
Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to info@bensfriends.org.
Most Popular Content
| 1 |
Risks of having an angiogram?Posted by Jami on January 24, 2012 |
| 2 |
Smile Though Your Heart is BreakingPosted by julie anderson on January 25, 2012 |
| 3 |
Happening right nowPosted by GinaL on January 25, 2012 |
| 4 |
What is to be expected...Posted by Nay on January 26, 2012 |
| 5 |
Time between embolization treatments.Posted by lakersfan86 on January 23, 2012 |
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