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Featured Discussions

My experience and lifestyle, but what about yours?

Hello, I'm Armando from Texas. This is the first time I post a discussion or even share my experience with others. I feel comfortable sharing it here because people have experienced the same situation or relate to it. I would like to share my experience and lifestyle and obtain a respond from you guys. Currently I'm 24years old. It's been about 6 six years since I had the head surgery. I'm walking alive, married,have 5 year old son and expecting another baby late October. I feel normal, like if…

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What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.

Forum

Still looking for relief!

Started by Niyani in General. Last reply by Susan T. 3 hours ago. 5 Replies

Still have a headache but the pain in my right eye has increased.Both stated to increase after the gamma knife. The pain in the eye is a sharp pain like something is strapping it. That pain comes and goes. The head pain is always there it increases…Continue

My experience and lifestyle, but what about yours?

Started by Armando in General. Last reply by Angie 3 hours ago. 3 Replies

Hello, I'm Armando from Texas. This is the first time I post a discussion or even share my experience with others. I feel comfortable sharing it here because people have experienced the same situation or relate to it. I would like to share my…Continue

AVM Headaches - how will I now if its due to a Rupture?

Started by Angel in Symptoms & Treatment. Last reply by Musemica 15 hours ago. 4 Replies

Good day everyone,I just want to find out / figure out how I will know if one has had a rupture of a AVM?I know that most people says that it will feel like the worse headache of you life, but does it have any after affects? Like maybe memory loss,…Continue

head aches after AVM surgery

Started by Rebecca in General. Last reply by Madere (dancermom) yesterday. 2 Replies

hello. My 10 year

pictures

Started by Chonne in General. Last reply by Chonne yesterday. 2 Replies

How do I add a pic to my profile

Spinal Aneurysm - Symptoms of Rupture

Started by Rosario Salinas in General. Last reply by Madere (dancermom) yesterday. 1 Reply

Could you please inform me what are these symptoms? I have been diagnosed with a 2x3 cm aneurysm on spinal artery (left-lumbar area). Hope you can provide with information.Thanks for your support.Continue

Spinal Aneurysm - Symptoms of Rupture

Started by Rosario Salinas in General on Wednesday. 0 Replies

Can anybody inform me what are these symptoms? I have been diagnosed with a 2x3 cm aneurysm on spinal artery (left). Hope you can provide with information.Continue

23 years following an AVM--questions

Started by seercat in Symptoms & Treatment. Last reply by seercat yesterday. 6 Replies

Hi everyone;I am SOOO glad to have found this site. Being new, I have some questions and concerns for which I would like any comments, support, or feedback from those of you with similar experiences.My AVM was diagnosed and treated in 1992; back in…Continue

Tags: clip, movement, NIR, craniotomy, heating

Right pons DVA/AVM

Started by backwoodsnation in General. Last reply by AVMmom yesterday. 8 Replies

Hey all, So 3 years ago, when I still live in Southwest VA, the left side of my face and fingertips on my left hand went partially numb on a Sunday afternoon. The next day nothing had changed, so I went to my local ER. After an initial MRI,…Continue

Tags: mid, stem, brain, pons

Any info relating to 10 y/o boy w/rupture, still in ICU after 3 weeks

Started by ConcernedDad in General. Last reply by Gavin's mom 17 hours ago. 16 Replies

Hi all,My son had a rupture just over 3 weeks ago, and is now minimally responsive in the PICU. Anyone with a similar experience who might be able to,offer some insights or perspectives? Thanks in advance.CDContinue

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Learn how others cope and be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Most Popular Content 

1 Any info relating to 10 y/o boy w/rupture, still in ICU after 3 weeks

Any info relating to 10 y/o boy w/rupture, still in ICU after 3 weeks

Posted by ConcernedDad on May 26, 2015

2 What age were you?

What age were you?

Posted by Spots02 on January 28, 2015

3 Planning for my AVM resection

Planning for my AVM resection

Posted by Jose on May 21, 2015

4 Flying Restrictions

Flying Restrictions

Posted by Helena on May 25, 2015

5 Right pons DVA/AVM

Right pons DVA/AVM

Posted by backwoodsnation on May 26, 2015

6 Time To Say Goodbye

Time To Say Goodbye

Posted by Susan T. on May 19, 2015

7 My husband Juan

My husband Juan

Posted by Sara on May 26, 2015

8 23 years following an AVM--questions

23 years following an AVM--questions

Posted by seercat on May 27, 2015

9 My experience and lifestyle, but what about yours?

My experience and lifestyle, but what about yours?

Posted by Armando on May 28, 2015

10 Still looking for relief!

Still looking for relief!

Posted by Niyani on May 28, 2015

 
 
 

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Blog Posts

Thalamus Stroke

Posted by Danijo on May 29, 2015 at 6:08am 0 Comments

This is a great article. Really explains Scott's stroke after the AVM rupture.…

Continue

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