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Featured Discussions

Burning pains in chest and back

Does anyone walk with a cane as a result of AVM surgery and have burning and pain in chest and back? Several doctors have no clue as to what is wrong with me.

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What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.



Started by Luz in General. Last reply by Luz 3 hours ago. 10 Replies

I will like to know if any others AVM sufferers have the same condition as I do... Means not Symptoms at all... I have an active AVM with almost no Symtoms. I do not feel any discomfort at all, no pains of any kind... Please if any of you…Continue

I've been gone a while

Started by Brooke Spinner in Emotional Support. Last reply by Trish 16 hours ago. 6 Replies

You guys, I'm worried. My left pupil has been dilated on and off for the past three days so I had a ct scan and they saw something. Now I have to go back to my neurologist and I'm afraid I'm going to go through hell again.

Social security being cancelled.

Started by Deagles in General. Last reply by Deagles 17 hours ago. 4 Replies

I was receiving my medical through social security since 2010 and I got a letter in the mail saying it would be stopped next month because I worked too much and went over the amount. I was wondering if it is possible to fight to to regain it? I also…Continue

Cardiologist Appointment

Started by Abbys Mom in General. Last reply by Nicholas. 18 hours ago. 5 Replies

Abby had her appointment with the Cardiologist yesterday and is on a heart monitor for a month. Her pulse is very weak on her left side (the side with all of her AVMS). Has anyone else experienced heart problems with AVMs?Continue

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Latest Activity

Daniel Wilson commented on wozza's blog post Spinal AVM's - Cyberknife - 4 months on...
"Hi Andy I have just read your post. Hope your feeling better mate. No two days are the same. I have…"
1 minute ago
wozza replied to Williamsmummy4's discussion Newly diagnosed in the group UK AVM AWARENESS & RESEARCH GROUP
"Williamsmummy4 I feel for you. Others here have posted really good advice and comment. My…"
5 minutes ago

dancermom commented on maria's blog post so much headache that the pills do not help
"Maria, if the pain is severe or it is worse than your usual, the first step needs to be to call…"
7 minutes ago
maria posted a blog post

so much headache that the pills do not help

I fall asleep and wake up with pain maybe you can follow any responses to advise that a?See More
41 minutes ago
james commented on wozza's blog post Spinal AVM's - Cyberknife - 4 months on...
"Hi Wozza, I wish you can keep hanging up as it can be a lengthy process. I had AVM bleed about 8…"
1 hour ago

dancermom commented on Nikki's group UK AVM AWARENESS & RESEARCH GROUP
"Seek emergency care, WM -- better to be safe."
2 hours ago

dancermom commented on Nikki's group UK AVM AWARENESS & RESEARCH GROUP
"Williams'mummy: AVMs in certain critical locations may stop the circulation of the…"
2 hours ago
Williamsmummy4 and wozza are now friends
2 hours ago
sandeepg0007 commented on wozza's blog post Spinal AVM's - Cyberknife - 4 months on...
"Hi Wozza; I read your full story. kind of my story too. and you are right about friends. But that…"
2 hours ago
Michael commented on wozza's blog post Spinal AVM's - Cyberknife - 4 months on...
"Hey Wozza thx for your post ! Yes everything you write is so true. My spinal angios with embolism…"
2 hours ago

dancermom replied to Williamsmummy4's discussion Newly diagnosed in the group UK AVM AWARENESS & RESEARCH GROUP
"William'smummy, can you get copies of your scans, choose some doctors from the Recommended…"
2 hours ago
Williamsmummy4's discussion was featured

Newly diagnosed

Hi, I was diagnosed with a large cerebellum avm yesterday and I am feeling very scared about what…See More
2 hours ago

Most Popular Content 

1 Newly diagnosed

Newly diagnosed

Posted by Williamsmummy4 on October 14, 2014

2 Burning pains in chest and back

Burning pains in chest and back

Posted by Marcy Johnson on October 17, 2014



Posted by Luz on October 19, 2014

4 Let’s Talk About Apraxia and Aphasia

Let’s Talk About Apraxia and Aphasia

Posted by Louisa on October 14, 2014

5 I've been gone a while

I've been gone a while

Posted by Brooke Spinner on October 17, 2014


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Blog Posts

Spinal AVM's - Cyberknife - 4 months on...

Posted by wozza on October 21, 2014 at 3:36am 5 Comments

4 months now since I had the Cyberknife focussed radiation on my 2 remaining sub dura spinal AVM's at L3 & L5, it's been a roller coaster of physical and mental health.

I found that my mobility declined and I was very depressed, feeling…




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