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What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.


Sclerotherapy side effects

Started by Heather Alp in Symptoms & Treatment. Last reply by Carol Stark 12 hours ago. 8 Replies

So... A lot has happened since I've last updated my profile (like getting my thumb amputated) and I need to update but I've been undergoing another series of sclerotherapy treatments ever 6 weeks. I just had number 3 of this series about a week ago.…Continue

Tags: sideeffects, treatment, Sclerotherapy

Sleeping or Lying down after Craniotomy ?

Started by Martin Brooks in General. Last reply by Martin Brooks 14 hours ago. 9 Replies

Hi guys, Hope you are all doing good. I had a rupture which led to craniotomy then another craniotomy 7 months later to remove the AVM all on my right temp lobe side, I still have issues lying in bed on my right hand side. It feels weird and…Continue

Tags: Craniotomy, Sleeping, Lobe, Teporal, Right


Started by Tatiana in Emotional Support. Last reply by Martin Brooks 17 hours ago. 3 Replies

I am a student. I had a bleed and crainotomy five months before I had to go to college. (I have no consequences, I function normaly now) I have trouble studying and now I dont know if it¨s because of the medications or the crainotomy I had 10 months…Continue

Steroids almost 18 months after gamma knife

Started by Niyani in General. Last reply by Niyani yesterday. 7 Replies

Still trying to get rid of headaches to where I can at least function.First they gave me a occipital nerve block without steroids. This consisted of two shots in my head and two in my neck. I went two weeks and it did not work.I have tried…Continue

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Latest Activity

Erin H replied to mandirenee's discussion AVM in knee in the group Extremity and Other Non-Brain AVMs
"Hi Mandirenee, AVMs can be internal or external- the internal ones don't always show- except…"
4 hours ago
Ashleeyy Hudson liked honeybeeB's discussion Uterine AVM?
4 hours ago

Debra and woolcool321 are now friends
5 hours ago
mollysmom left a comment for Susan T.
"I told the neurologists before Gamma Knife that I had grandchildren I wanted to watch graduate so…"
6 hours ago
mandirenee added a discussion to the group Extremity and Other Non-Brain AVMs

AVM in knee

In 2007 after 1 1/2 years of knee pain I noticed a small bump by my knee cap. Ortho Dr. ordered MRI…See More
6 hours ago
woolcool321 posted a photo
9 hours ago
mandirenee joined Shalon's group

Extremity and Other Non-Brain AVMs

For those of us with AVM's outside the brain. Facial, Spinal, Lungs, Arms, Legs...wherever!See More
11 hours ago
Carol Stark posted a status
"Sclerotherapy side effects pics I've added below. At first my foot looked like a dark purple almost black"
11 hours ago
Carol Stark posted photos
12 hours ago
Carol Stark replied to Heather Alp's discussion Sclerotherapy side effects
"Hi, I had a horrible burn like that on the bottom of my foot after the second sclerotherapy. It has…"
12 hours ago
tinkersyl replied to Heather Alp's discussion Sclerotherapy side effects
"the first pic is after the blisters popped, the second pic is after I saw a wound specialist, all…"
13 hours ago
Heather Alp replied to Heather Alp's discussion Sclerotherapy side effects
"It's quite painful where I can see blisters forming under the skin. It's very sensitive…"
14 hours ago

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Blog Posts

Radiation hair loss

Posted by Kosta on February 21, 2015 at 6:56pm 1 Comment

doing ok but I have a question I had my radiation Jan 27th, my hair started falling a week ago or so. How long it will before they grow back. will they ever grow back? What should I expect from the radiation. So far I felt nothing my life is…



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