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Featured Discussions

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What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.


AVM came back

Started by Lindsay G. in General. Last reply by Adrian 7 hours ago. 1 Reply

So I just had my 6 month angiogram to check and see if I was AVM free after my stroke in October. I was told that they did find another AVM growth that will need to be removed, they mentioned that they will discuss with the team whether to do…Continue

AVM Emotional Support

Started by amcoffey in Emotional Support. Last reply by amcoffey 4 hours ago. 10 Replies

Hello All,Glad to be here and glad I joined this network. I recently was diagnosed with an AVM last month after a seizure. I am currently on anti-seizure meds called Keppra. It is about 4 cm on the right side of my brain and deeply rooted so surgery…Continue

Proton radiation made my son dazed and very quiet

Started by titos in General. Last reply by LouisaC on Wednesday. 2 Replies

Hi everyone, I chose proton radiation to treat my fourteen year old son. Now I'm concerned Bc he is not being himself. He is extremely quiet and very low on energy. His personality has changed so much. He doesn't care about much and doesn't laugh…Continue

exploding head syndrome

Started by BD20 in Symptoms & Treatment. Last reply by HB2013 6 hours ago. 6 Replies

Hi! Had a question for my stroke survivors! Randomly, I have these experiences when everything gets really loud around me. The have happened for years now. I could be doing anything ( reading, watching tv, washing dish) and all of a sudden my…Continue

Hyperbaric oxygen chamber?

Started by monica in General. Last reply by Angela yesterday. 7 Replies

Hello all, I hope everyone had a great weekend and are starting the week off right! As usual, I've been spending my time researching how I can continue to better myself post craniotomy and stroke. This July will mark 3 years since my rupture and…Continue

Angiogram questions

Started by Bojo in Symptoms & Treatment. Last reply by TMZ yesterday. 4 Replies

It's been a while since I've posted here and I hope this finds all you survivors and caregivers well. We are now twenty months into my son's post-rupture life and got great news last month that he is AVM free! This was confirmed by angiogram, we are…Continue

Latest Activity

dina replied to dina's discussion Craniotomy Questions
"Thanks Lindsay! Sorry your recovery was long, I hope you are doing well and stay healthy. Thanks for the advice, I truly appreciate all the info and advise I can get. :-)"
1 hour ago
dina replied to dina's discussion Craniotomy Questions
"Thanks Louisa! I appreciate all the info and best wishes :-)"
1 hour ago
dina replied to dina's discussion Craniotomy Questions
"Thanks Barbara! :-)"
1 hour ago
dina replied to dina's discussion Craniotomy Questions
"Hi Adrian and Thank you so much for taking the time to comment! So glad you are doing well and wishing you all the best for the future! I will update on surgery :-)"
1 hour ago
dina and LouisaC are now friends
1 hour ago
amcoffey replied to amcoffey's discussion AVM Emotional Support
"Thank you for sharing I appreciate it! That is so amazing that you have a lot of functionality back in the left side! Congrats! Thank you for your advice. Maybe try asking the doctors what risk is higher, doing the surgery or doing the radiation?…"
4 hours ago
amcoffey replied to amcoffey's discussion AVM Emotional Support
"Thank you for sharing your story! I'm glad you are okay. You're absolutely right! I'm trying not to stress out to much so it doesn't trigger it."
4 hours ago
amcoffey and Adrian are now friends
5 hours ago

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Most Popular Content 

1 AVM Emotional Support

AVM Emotional Support

Posted by amcoffey on April 28, 2016

2 AVM recurrence

AVM recurrence

Posted by Sam on April 24, 2016

3 AVM Free!!!!!

AVM Free!!!!!

Posted by Chopsiegirl on April 20, 2016

4 Surgery soon...Need housing near Lenox Hill Hospital in Manhattan

Surgery soon...Need housing near Lenox Hill Hospital in Manhattan

Posted by Lisa Weber on April 16, 2016


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