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Featured Discussions

Grand Mal Seizure

I had my first Grand Mal seizure, less than a week before my first year anniversary of the AVM hemmorage and stroke. I'd been weaning off Keppra under the direction of a Neurologist. I started at 500 mg twice a day, and over the course of three months got down to 250 mg once a day. I finally finished the Keppra on Monday so I thought I had it beat, then WHAM!
I'd never had a seizure before. The Grand Mal Seizure was scary to go through for both me and my wife. I'd like to see what others have…

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What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.


Suppressed Sneezes - a danger to Cerebral AVM's?

Started by Carrie A. Neff in General. Last reply by kristi menke 2 hours ago. 14 Replies

Hi everyone - I just joined AVM Survivors Network this week after being diagnosed with an active unruptured AVM in my right thalmus/basal ganglia.  Since I am fairly new, I wanted to pose a discussion question to those with cerebral AVM's - has…Continue

Tags: AVM, cerebral, sneezing

High blood pressure 140/96

Started by Sandra Smith in General. Last reply by Tim 2 hours ago. 4 Replies

Just wondering if I should be concerned that my blood pressure has gone up to 140/96 recently? Only life style change is that I have started Palates. Could this reading have any effect on my untreated AVM?ThanksSandraContinue

coming off dilantin

Started by mike54 in General. Last reply by Barbara H. 2 hours ago. 4 Replies

I go in 2 weeks to neuro doc to discuss reducing my dilantin dosage - currently 400 mg for the last year. Any feedback on doing this I've never had seizures and don't want them to start now.

life expectancy after AVM

Started by Martin Brooks in General. Last reply by Adrian 4 hours ago. 15 Replies

Hi guys, I'm sure some of you have asked this question and I am planning on asking my Neuro but hes on vacation ... so curiosity has taken over. Does my life expectancy change after having a haemorrhage and then surgical removal of my AVM ?.Continue

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kristi menke replied to Carrie A. Neff's discussion Suppressed Sneezes - a danger to Cerebral AVM's?
"My daughter has two cerebellum avms and nearly died from two bleeds. Right now she is waiting…"
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Tim replied to Sandra Smith's discussion High blood pressure 140/96
"I've had SRS, just waiting for the AVM to become obliterated. My blood pressure was never…"
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Barbara H. replied to mike54's discussion coming off dilantin
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Tim replied to mike54's discussion coming off dilantin
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Most Popular Content 

1 Decisions


Posted by Laura on July 31, 2014

2 life expectancy after AVM

life expectancy after AVM

Posted by Martin Brooks on July 26, 2014

3 3 years later, many changes....

3 years later, many changes....

Posted by SD991 on July 28, 2014

4 Grand Mal Seizure

Grand Mal Seizure

Posted by Tim on July 31, 2014

5 New and have some questions.

New and have some questions.

Posted by PouncingPaws on July 16, 2014


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Blog Posts

Today I Celebrate 10 Years...

Posted by James Larken Smith on July 28, 2014 at 3:47pm 19 Comments

Today I celebrate 10 years of survival after suffering a massive brain hemmorage and stroke due to an AVM and aneurysm that was located in my brain. It is always easy to talk about the negative changes that took place because of this. But today, I… Continue



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