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Featured Discussions

A Letter From Your Brain



I'm glad to see that you are awake! This is your brain talking. I had to find some way to communicate with you. I feel like I barely survived WWIII and am still not quite all in one piece. That's why I need you. I need you to take care of me. As time passes and you and I feel better and better, people, even doctors, will tell you that we are fine, "it's time to get on with life." That sounds good to me and probably even better to you. But…

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What are Arteriovenous Malformations (AVM)?

Arteriovenous malformations (AVMs) are defects of the circulatory system that are generally believed to arise during embryonic or fetal development or soon after birth. Although AVMs can develop in many different sites, those located in the brain or spinal cord can have especially widespread effects on the body.



Started by beansy in General. Last reply by dancermom 53 minutes ago. 8 Replies

I had a knee replacement well over a year ago. I am still going to PT for it because it won't bend as it should, and when it does bend, it hurts a lot. So, I protect my knees as much as I can. I have a guide dog for vision, (which I lost a lot of…Continue

Almost a year since my brain AVM ruptured

Started by O.C.Taylor in General. Last reply by beansy 1 hour ago. 40 Replies

I'm coming up to a year anniversy of my brain AVM rupturing, but hospital only seems like yesterday. Can anyone relate??Continue

There IS Hope (This is about to get personal)

Started by silverbeach in Emotional Support. Last reply by Jo Snuggler 1 hour ago. 13 Replies

My mother was diagnosed stage IV colon cancer on April 1st. A few weeks later she went to ACS to pick out her wig. I had very long hair and knew I wanted to donate it. I promised my parents that I was going to donate my hair before I moved from Fl…Continue

Tags: recovery


Started by InAwe in General 2 hours ago. 0 Replies

Partly because it’s not politically correct to ask a person about his or her medical history, and partly because it’s self-centered to raise the topic unsolicited, I rarely talk about the effect that two brain hemorrhages and three brain surgeries…Continue

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Latest Activity

Melissa Joyce Lott Conner liked Jaime G.'s blog post Cured
3 minutes ago
Jaime G. and TIMBOS09 are now friends
51 minutes ago

dancermom replied to beansy's discussion NOT AN AVM PROBLEM
"Two broken arms -- yikes, Beansy. We miss you here, and wish you well. Hopefully, this will pass…"
53 minutes ago
Profile IconJudy Brandl and rainer joined Louisa's group

Temporal/Parietal Lobe AVMs

Support Group for all members with Temporal and Parietal Lobe AVMsSee More
1 hour ago
rainer joined Louisa's group

Aphasia Friends

Having a place where those of us that have Aphasia can support each other.See More
1 hour ago
Profile Iconrainer and Hege joined raveon's group

Coping with Headaches

Please share your strategies for coping with headaches. Which medications have worked for you? Have…See More
1 hour ago

beansy replied to O.C.Taylor's discussion Almost a year since my brain AVM ruptured
"For me the memories are like they were from yesterday. It all happened over 50 years ago. i will…"
1 hour ago
Jo Snuggler replied to silverbeach's discussion There IS Hope (This is about to get personal)
"Truly inspirational! Keep taking care of you .x."
1 hour ago

beansy commented on Lori Kay Cahen's blog post Of All The Things I Miss The Most
"I had the AVM bleed and cranio over 50 years ago. I was 8, so I just remember the me when I was a…"
1 hour ago

beansy replied to beansy's discussion NOT AN AVM PROBLEM
"Greg I wrote 4 times and everytime could not senf the reply, and they got lost. i have two broken…"
1 hour ago

Suzy E left a comment for Crystal
"Happy 50th Crystal!! We have the age thing in common. I am turning 50 on January 5th! Have an…"
2 hours ago

Suzy E commented on Suzy E's group Southwest AVM Survivors
"Yes I know, not being a fan of country music in absolutely anti-Texan. But hey, I am an enigma ;)"
2 hours ago

Most Popular Content 

1 Almost a year since my brain AVM ruptured

Almost a year since my brain AVM ruptured

Posted by O.C.Taylor on October 25, 2014

2 Seizures post bleed and crani

Seizures post bleed and crani

Posted by kristi on October 25, 2014

3 There IS Hope (This is about to get personal)

There IS Hope (This is about to get personal)

Posted by silverbeach on October 28, 2014

4 My struggle and an interesting fact I just learned

My struggle and an interesting fact I just learned

Posted by Dapotsil on October 26, 2014

5 Apasia recovery

Apasia recovery

Posted by Bojo on October 26, 2014


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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

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Blog Posts

The Dream

Posted by John P. on October 29, 2014 at 8:27am 0 Comments

After suffering an AVM and major cerebral bleed and

eight hour craniotomy I read at a website like this one

that some patients with difficult histories like mine,

or worse, sometimes do not have dreams while asleep any…




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