Kate,
So there are definitely people on here who are on seizure meds and everyone says that Keppra is often not tolerated and there are other seizure meds if you find that you don’t get on with Keppra one way or another. My own pragmatic approach to these things is generally to see how you get on with it (because you’ll only know how you get on with it by trying) and if you really don’t get on with it, then chat further with the doc.
Are there lots of examples of people having seizures post embolisation? No. But there’s one main reason for that and that’s that it is still quite rare for an AVM to be treated by embolisation alone. @mike_az_21 is one of the few I know of (and very few seem to be undertaken in the US) it seems a little more common elsewhere. I think @AlwaysCurious also had embo only, as have I. My embolisation was in April 2017, so I’m about the same distance out as you.
What else can I tell you?
I can tell you that @JD12 had a big seizure a week or two ago, 6 years post radiotherapy (so not embolisation-related but definitely quite a long time post op). I’ll link his recent conversation below. It’s been just as much of a shock to him as to you but he’s started the Keppra and I think getting on with it ok so far. (He might be on a low titration so far).
So I don’t think we have a broad span of colleague patients to share with you but you’re definitely not alone.
Here’s the link: Not a Great Day
Best wishes
Richard