Most of you know that my 10-year-old has needed three surgeries to remove her AVM (the first surgery was in 2009). This year will be the first since 2009 in which she hasn’t had a craniotomy.
So for those of you who have dealt with this a bit … We have been told that there is a “persistent anteriovenous shunting” but no apparent nidus. The doctors are telling us that my daughter wouldn’t need to be rechecked again for 5-8 years and that there is “very little chance of this bleeding.”
What do you think? To be honest, I am apprehensive. She had a massive bleed that nearly killed her in 2009. I am not sure “very little” is good enough.
Thanks for your opinions,