Your Experience With Regaining VISION Post-AVM

Hi all of you. I am starting this discussion because I see so many posts about vision loss and if it ever comes back. What is your outcome?


My understanding is if your brain has seen before it can remember to see and rewire. If it has little or no memory of vision it can not.

Hey beansy; I can only speak on my own experiences after brain surgery & damage. When I was in rehab, I couldn’t read or talk etc, so when I was able to look at words I could only see half of each word. I learned how to make sure I checked the edge of every sentence and now, 12mths later, my vision is back to normal. It took time and work to get here now, and I am SO glad that I had such a great speech therapist. It’s a bit funny now as I still check the end of sentences!! lol.
My surgery was just over 2 yrs ago but I was in hospital for 3mths, then didn’t found this site till just over 1 yr ago.
Good luck and keep working on it my friend. I Never say Never!!!

Hi Beansy, Sorry I didn’t see this sooner. It’s been 3 1/2 years since my brain bleed. I would say that the vision loss has not changed in the 3 1/2 years. Maybe some, but not much. I believe that I’ve just learned to move my eyes in a different way than I did before. Hang in there…and Keep the Faith!

I didn’t see this one either, sorry. It’s been 3 1/2 years since my bleed. I’ve lost vision to the left, both sides. It has not improved any unfortunately. Some things I can compensate for, others I cannot and never will. My doctors believe that if it hasn’t come back by now it probably isn’t. I just recently saw a opthalmologist who specializes in helping people with low vision as a result of brain injury. He gave me a couple of exercises to do to help improve the visual field cut. It hasn’t really helped a lot. What he did do for me was prescribe a pair of prism glasses. These have allowed me to read, finally after 3 years! I can’t really wear them to walk around in, they are very distorting to anything but books. I do also use them when I cook to help me see the things on my left. This doctor was the only one I’ve seen who told me he could help me, and I’ve been to lots. Even the neuro-opthalmologist told me there was nothing she could do. All I wanted was to be able to read again, I wasn’t expected a miracle. I’ve pretty much resigned myself to the fact that my vision will probably never return. But that doesn’t mean we can’t improve our quality of life. I recommend seeking a low vision specialist, if you can!

I had double vision after the surgery which the opthamologist said would improve over time hence no surgery to correct it. Well, I still have double vision today and come October it will be 5 years since the surgery. Like Trish I was prescribed prism glasses and that’s helped me a lot. As far as vision loss…no. But as you know vision can be affected by age. That complicates things a bit because I don’t know if the after effects of my surgery worsening or me just getting older. :slight_smile: Hope this helps and best of luck to you.

Hi Beans, I have some slight vision issues now, a little over 2 years post bleed. when I came out of my surgery I couldnt focus on anything that moved. It really strained my eyes to watch the tv and I couldnt focus on reading at all. It was just the most annoying feeling to try to focus on anything. Now I have alot of fatigue when I am on the computer too long or read too much, but I can do it. driving was pretty hard too. Everything felt like it was moving just a little too fast for my eyes to pick up perfectly, like I was spacey or floaty. Doing fine driving now even though its mostly at night because sunlight still bother me.

Hi Beans,
I had my surgery about 10 years ago and have lost the vision in my lower left quadrant of the left eye. The blind spot has not changed over the years but you adjust. Most of the time I don’t notice it much, but I am still aware it is there. At this point my doctors don’t think my vision will come back but I’m ok with it.