Welcome to avmsurvivors. It’s very good to meet you!
I have/had a DAVF which was discharging into my transverse sinus, and gave me a pulsatile tinnitus in both ears. I’ve also had mild regular tinnitus for probably 20 years, which I think was damage from going to a nightclub. I had the DAVF embolised in 2017 and when the operation was done, I had increased regular tinnitus and a pretty loud pulse that I could hear – I think perhaps even louder than the pulsatile tinnitus pre op.
I’d say that pulse has faded quite a bit over the intervening years (or I’m better at ignoring it) and the tinnitus I’m better at ignoring, too.
From hanging around here for the last 4 years and taking an interest in particular in DAVFs, I do feel that increased tinnitus is pretty common post op. I don’t know this – I couldn’t give you hard statistics – but I just think quite a lot of the DAVF patients still have some increased tinnitus.
I also know a decent number of folk here who have either a loud pulse or pulsatile tinnitus post DAVF treatment. I think @tinysilky was reporting such things only the other day. So, you’re definitely not alone. Whether it indicates danger or further intervention needed or benign tinnitus that is to be ignored, I don’t know but if you find out, I’ll be very interested to follow what you learn!
I’ll have a dig around to see who I remember our can find who is in a similar situation.