To my favorite AVM Group:
No, I have not fallen off the edge of the earth.
No, I haven’t checked back into the hospital.
Then where has TJ been? A couple of things that have been going on:
- fatigue - I have been dealing with a constantly growing amount of fatigue and sleepiness. I could make you laugh at some of the unique places I have fallen asleep in the last 4 to 6 weeks. I won’t get into the details but let’s just say that it’s quite something I haven’t fallen off my desk chair when I’ve fallen asleep while attempting to type…
- Most of the time, those sudden sleep episodes don’t last very long - a minute or two - but sometimes they can be longer. If no one else is at home other than me and my dog, they can be an hour or more.
- At the same time that I am falling asleep multiple times during the day, I’m having a hard time staying asleep at night.
Go figure, huh?
And then to make it more of a challenge, as the sleep issues have been getting worse, the depression that I’ve been struggling with for quite some time (years, not weeks or months) has also been getting worse.
Are we having fun yet? Uh, no, not really.
This morning, I’m listening to a podcast by Brene’ Brown and her guest was talking about her own life and how she had a bad accident when she was in college and she got thrown from the car she was in and her head basically bounced down the road a ways. She said that because it was a series of bounces rather than one major smash, it is a lot harder to disagnose and a lot harder to treat than one major bruise would be.
That got me thinking, after my embolizations and surgery in 2018, I went through and found that 8 out of 13 cranial nerves were at least indirectly related to the symptoms/pain/nerve damage that showed up. Basically, that appears to show that one of the reasons that the pain and also the nerve damage are rather wide spread is because the trauma that was done to my brain was rather wide spread and therefore a lot harder to figure out.
I’ve got my doctors on this idea, trying to figure out if it makes any sense and if it does, what do we do about it.
Do any of you all have any insight into it?
P.S. If any of you have any thoughts on what to do, let us know, we’d love to hear more of the collective brain power of the group. Thanks!