Currently I’m in my mid fifties, and I thought the biggest fight was behind Me. But I guess not.
Had my AVM ruptured on left side of brain and totally engulfed the entire brain in blood. Unfortunately the fine motor skills, speech, and other skilled sections were severely damaged. Completely Right sided paralysis. This took place 3 days after my 27th birthday. 2 years later, I was back to work. Worked 3 different jobs, the last for 3 1/2 years. Then the relapse started. I could not even turn on a computer, just stared at it, in frustration. Forgot every thing I went to school for a few years before, it was gone! Okay, I’ve dealt with everything my AVM had to give, or so I thought.
Now amongst troubles with speaking, controlling my brain, walking, and memory. I guess I’m having circulation issues. My hands are turning blue at the nails, then my hands. Body temperature goes from boiling to frozen. Went to the hospital on the 1/11/19, they ran every test, except an MRI. Everything checked out. The whole time I kept asking “Why are my hands turning blue?”, they kept saying “cause you smoke.”
Does that make ANY sense to ANYONE else? Need more info, just ask, please.
Getting closer to the answer. Had a lot of people say circulation issues, heart issues, and/or vascular. And when I mentioned Botox therapies had been receiving, the conversation took a serious & warning tone. She said it’s starting to become evident that AVM patients should not receive Botox, in their opinion. It causes issues sooner or later, unintended, but still happens. Contacting a Vascular Specialist asap. Hope this “reaction” isn’t getting any worse.
Can they not see vascular stuff with a sonogram? Just asking.