So first let me introduce myself. My name is Peter Lobo and I live in Toronto (GO RAPTORS!) as a 20 year old in school with an inoperable AVM in the right side of my brain. I discovered it due to a seizure when I was 15 (I’ve been blessed to not have anymore seizures), and I get migraines around once a month, except when I’m really stressed when I get them around once or twice a week.
Though I have been a member on this forum for awhile, I’ve strayed away from utilizing it, because honestly, it scares me to read up on what awaits me. I’ve not had a single bleed, nor has my AVM ruptured, which I am very grateful for, and reading up on these things and the impacts they have is something I would just like to imagine won’t effect me. A very silly ideology, I know, but it helps me sleep at night.
Regardless, as I’m getting older and more concerned of when or how a bleed or rupture will affect me, I feel it’s time I stop being so scared and I hope to be a bit more active on this site.
My question for today is, what do you use as outlets besides this website (has this website really helped you alot?)? I feel like I can’t talk about my condition with anyone. I never like bringing it up with my girlfriend of two years because she cries easily when it comes to this stuff, and I feel like all my friends say the same thing to me. like “I’m sorry, can I do anything, how can I help?” the rare “Man that sucks, that’s life” which used to be a refreshing statement away from the norm, no longer is very relieving for me.
I hope this website and forum becomes a great outlet for me, and I hope I can give my own personal experiences and feedback to help some of you. But in case it’s not, what else do you guys use as outlets?