Welcome post

Thanks for the welcome!!! We are working hard at building a bigger awareness for pediatric AVMs. We have partnered with The Aneurysm and AVM Foundation. We are trying to take the negative parts of our experience and help others, and we felt by creating The Rylan Project and sharing our personal story we might help someone else in the process. We have already met a few survivors at some events but we want to be more public and are making a bigger effort to link up more pediatric families.