I have had 3 bleeds from a cavernous malformation in my brainstem. My doctor and I have agreed that surgery is the best course of action and we have set a date for March 9th.
This seems so far away. It's odd that I simultaneously want to just get this over with, but at the same time take pause. I'm nervous. I'm scared of the outcome. I'm trying not to think of what could happen, but focus on what will happen. The result I plan for is to be rid of this malformation, never have to worry about a bleed again, and to provide for my family for as long as they need me.
I don't know if it will help anyone, but I've written about my story, and will continue to do so as I have surgery and onto my recovery. If you have any advice, can find comfort in my story, provide strength to me and my family, or take strength from watching a community rally (which I am blessed for the support) - I hope my story will help: http://goodness-to-go.blogspot.com/
Thanks for listening.