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AVM Survivors Network

Very frustrating Dr appt

#21

Just wanted to give an update from my appt today. Saw the head of neurosurgery at USF in Tampa. He showed me my scans, confirmed it did bleed & because of where it’s located in the brainstem is what’s causing my symptoms. He said they will likely subside within six months, although it’s always possible that may not happen. Surgery is really the only treatment option, so they will monitor it every 3-4 months with scans. If it comes closer to the surface where it’s more accessible, or bleeds again is when they will do surgery.

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#22

Oh my gosh, I am sure not wanting to hurry in for any surgery. Guess I’d just like to know if people have the SAME symptoms I am having now. :slight_smile: