I am currently trying to find a neurosurgeon I trust and am in the investigation process of deciding which path to take. I have had 2 seizures this year (one month apart, now taking seizure medications) and have differing opinions of what my brain lesion is. Some say it is an AVM, Occult Vascular Lesion, or a brain tumor. The neurosurgeons that believe the lesion is a tumor want to remove it in the very near future because the 2017 vs 2019 Brain MRI shows (what they believe to be) growth.
Other neurosurgeons say to just watch it and continue taking seizure medications. The lesion is in my left frontal lobe and partially includes my speech (brocas) area so if we do proceed with surgery they will only remove what doesn’t completely stop my speech. I am conflicted because I don’t want to possibly become a vegetable post surgery, but if they only remove partial of the tumor then we would be doing the same thing pre surgery as we would be post surgery… AKA: keep a watch with Brain MRI’s and make sure nothing is growing more.
I have a wonderful husband, a 15 month old baby, and I work full time. I love being a mom. My husband and I have a strong desire to grow our family, but don’t want to have a seizure while I’m pregnant. Also, one cannot have MRI contrast while pregnant which means if we choose to just watch the lesion then everything has to be timed out appropriately.
Trying to see if anyone else on this site has had an experience of neurosurgeons not being able to 100% tell what their “brain lesion” is and what they did to proceed with treatment. Thank you for caring and taking the time to help.