Uterine avm

Hi everyone I just wanted to speak to someone who is maybe going through something similar to me. I have been diagnosed 6 or 7 weeks ago with uterine avm after giving birth to my stillborn son in November. I’m so lost scared and confused. I have 2 little girls and never ever imagined I would be in this position, I guess no one does. I think I’m still in shock. I randomly started haemorrhaging 7 weeks after giving birth and it took me 3 or 4 days of going back and forth into hospital before being diagnosed. I’m now on high levels of progesterone (injecting and taking orally) in hope that it will heal over by itself and won’t need embolisation, I have my check up next month. I want another baby so bad but I’m scared of leaving my 2 girls I already have. My mind is all over the place. It’s just so unfair. Is there anyone here with a uterine avm who has gone on to have a successful pregnancy?! Thanks for reading :slight_smile: x

I don't know anyone who has a Uterine AVM. Sorry you have to go through this. My only advice to you would be to think of your two little girls and not about having another baby, although you would like to have one. Research it and follow the Drs. recommendation if you trust him/her. Just concentrate on getting rid of, or managing the AVM. It is important for your girls to have their mother--having another baby---Not so much.

I don't have a uterine AVM but I would strongly advise you to go to an AVM specialist for AVM treatment as I've been told by an AVM doctor that hormones, especially progesterone cause AVM growth. Concentrate on getting the AVM managed safely first. I lost a baby and I know you are grieving the loss of your son. And you are probably on a hormonal roller coaster also because of the hormones. Give yourself time to grieve and try not to think too far into the future right now. You have enough to deal with in the present. You probably had an AVM when you gave birth to your daughters because AVMs don't just suddenly appear so you might be able to have another child in the future. You don't know if you should or shouldn't at this point so you don't need to give up all hope but just take things one step at a time and get as healthy as you can

Barbara, I’m sorry to hear this. I had wanted to have another child after I had my first one, but I ended up having a hysterectomy because my uterus kept getting bigger, and it was causing other problems. I’d concentrate on getting better. Hope everything works out so you can have another child.

Hi Barbara. I found this old post…http://www.avmsurvivors.org/group/pregnancyandavm/forum/topics/uterine-avm-and-successful-pregnancy?commentId=1543517%3AComment%3A520028&groupId=1543517%3AGroup%3A273059

Hi Barbara, I suffered a uterine AVM back in 2008 a few weeks after the birth of my 2nd son so I totally understand your fear - I am sorry to hear about your son. I haemorrhaged twice within days of each other (and in and out of hospital after 2 transfusions) before they made the decision to do an embolization. I to this day believed the embolization saved my life. I had a young baby at home with a 3 year old and it was a very traumatic time not knowing if I was going to come through it but I did and I DID go on to have another baby in 2012. I didn't have a period for a long time leading up to the birth of my daughter in 2012 and even with specialist help I couldn't fall pregnant so had given in, until I thought I had a nasty virus which turned out to I was pregnant. I hope this gives you some hope my friend and again if you want to chat I am here (I haven't been on here in ages, but for some reason stopped to check the message in my email and saw it was about a uterine AVM) I used the same obstetrician etc for this birth as they knew my history and they monitored me right throughout the pregnancy etc and were fantastic. Happy to chat further with you! Tish

Thanks everyone for the replies! It’s very kind of you. I’m still to find someone treated with just progesterone and not embolisation. Feel so lost and alone. Tish I have friend requested you and sent you my email if you would chat with me? Xx

Barbara, have you used the search box to find and friend other members with uterine avms? They may not be visiting the group regularly, but if you send a friend request, they may respond to you. Search box is in the upper right corner.