Update

Went to neurosurgeon in June and my previous one had retired so it was a catch up and discussion on what stage we were at…he agreed with my previous neurosurgeons that it was inoperable however they want to do one last spinal angio to triple check - they feel however that the outcome will be the same…ive had a busy summer of festivals, weekends away and weddings and so far have managed them all - have been pacing myself and looking after myself…pain still the same although there have been a few times recently where here have been a few hours of relief!! amazing the difference! All is good jst now and hope everyone is doing well too x