AVM Survivors Network



Thanks for the reply Jaycee. Mia is such a beautiful name. I hope she is feeling better. We are meeting with our doctor's next week. I will keep you posted if I learn something new. Until then, big hugs to Mia and lots of strength. We all need it.


Hi, I came across your comment regarding foot AVM. How are you?
Have you taken sirolimus? How was it? My son (9 y/o) has foot avm too and the doctor advised as per 1st option to take sirolimus for 4 months.

Thank you.


I have never had trouble with Ulcers. I have an AVM in my quadricep muscle in my right leg. It is very painful, I have had sclerotherapy. I have never had Ulcers though. Ulcers are common?