(I am a 25 year old female with an AVM under my right buttock. Yep, looks like I've got one long butt cheek. The AVM seems to be non-threatening. Just a scary thing with lack of solid information on these things.)
For people who have long withstanding AVMs (I suppose that's all of use, right?) and have gotten some type of treatment... who you suggest treatment to a person that has intermittent pain at AVM site, but nothing more consistent that a few weeks. The pain comes and goes. And I'm trying to ascertain wether or not this is something that can or should be messed with. A previous doctor said that the pain may come from a natural emobilization process. I was lined up for ethanol treatment, but didn't have the funds to cover what my insurance wouldn't cover. However, now, I have the opportunity and money to seek treatment again, but my insurance expires in July. It seems like there might be a lot of residual dealings and that it may be a bad idea to mess with this thing when my insurance is so close to expiring.
As far as I know, my AVM is harmless (other than the pain). Are these things really harmless when they aren't in a harmful area? I would be really fine with the pain and not seek treatment if I had some amount of confidence that this thing really is okay. I try to trust it a little since I've had it since I was born and it has hurt for ten years now and nothing bad has happened.
What do people think? Is treatment worth it when it doesn't seem life threatening. Are these things really harmless even if they are painful? Has anyone else experienced a "natural emobilization"?
-Much thanks and love,