Three weeks into recovery from AVM removal after a bleed

General
1

My boyfriend is saying a few words like yes , no , alright , still no movement on the right side. I also did a letter chart with him today and he could not say any of the alphabet even when I pointed at the letter A and gave him a choice of A or B. He couldn’t do it. I can see the frustration. I hope he can regain his speech. But mostly hoping that he regains his mobility. He was in great shape before this happened and only 53 years old.

Deb

2

Hi Goldilocks,

Those few words are a good sign. What are the drs. saying? I'll say some prayers for him (and you).

Ben

3

Hi Ben, The doctors don’t say much on recovery outlook. They always say that everyone is different. He is at a stroke rehab center, so I now you get out of therapy what you put into it. Bye is not afraid to work hard. I am getting more out of this site and the members here than any doctor could tell me. People her share their specific stories of where the bleed was and their deficits. I have read the success stories and those give me hope. I also read the memorial forum and that gave me a reality check that I could have lost him.

Thanks for your concern,

Deb

4

Deb, While every case is different, stay hopeful! It has been 6 years since my brain bleed and I'm going great. The doctors told my family that they had no idea were I would end up..and here I am! Stay Strong & Positive!

5

Thanks for the hope Louisa, I got a reality check after I read the memorial page on here. I am lucky he is alive. I really want him to be mobile for his own independence. I have received more help here on this site than the doctors could ever tell me.

Deb

6

Hi Deb, I continue to admire you as a girlfriend and I will keep your boyfriend and you in my prayers. It has been over 2.5 years since my brain bleed and I continue to recover albeit at a slower pace. Still, the cognitive improvement helps me deal with the physical limitations. Stay strong and God give you strength!

7

Hi Goldilocksrox. Please read my friend Lesley’s profile. http://www.avmsurvivors.org/profile/LesleyElizabethSkelton
She could not speak after her bleed either. She is a moderator on here and we chat all the time on FB.
Positive healing thoughts heading your way!

8

Thanks Barbara. I just sent her a note with some questions. Thanks for the reply and concern.

Deb

9

Thanks for your reply Susan. I really appreciate your concern and support. I will not give up on him. He is worth it. He always said I was bossy, well he hasn’t seen bossy yet! We are watching the football game and during the commercials I am doing the alphabet with him. It’s Sunday and the hospital doesn’t do therapy today. There shouldn’t be a day without it.

Deb