AVM Survivors Network

Thoughts on discontinuing treatment


You’re right. You remind me of Letter from Doctor to Patients with Chronic Illness.

Though I also get that when it takes several diagnoses to get from more common stuff to this thing called an AVM, sometimes it feels like they’re practicing in that less complimentary way. So I see it both ways.

But the letter above is a great reminder of the problem :slight_smile:

Lots of love. And you’re right. :stuck_out_tongue_winking_eye:


But, you see, everyone is different and by having a facial AVM, you can understand others who have them as well. I’m a brainer but if I had a facial, I would appreciate sharing/learning with you. Stop or not, up to you. I can not imagine your situation but sharing your information/experience might mean so much to someone else who is struggling…