I thought I’d share a bit more… I seem to be into the third stage of my “AVM journey” by which I mean to say that I’m starting to feel a bit poorly again.
First stage of my journey was diagnosis and waiting for treatment…
Second stage was getting a date for my embolisation, going through that and being allowed to drive again.
Stage three is that I have not felt, for the last few weeks, that I was getting better. On Monday, I finally cracked and went back to my General Practitioner (GP) to say “I think my head is feeling worse over time, not better”. I feel a bit pressured in the head, I can hear a clear pulse at night. Motion, in the car especially, is disturbing. He agreed to refer me back to neurosurgery for an outpatient assessment.
I can’t quite feel a pulse on the back of my head, as I could before my embolisation, but I do feel with my head on the pillow at night there is a bit of a pulse, a bit of head-lifting going on. The GP had a listen with his stethoscope but couldn’t hear anything untoward. Although, I think the effect is more in my neck than my skull this time and he was listening to my head.
As the week has progressed, I’ve become worse. I would say from some point on Wednesday I felt noticeably worse and I decided not to drive to work on Thursday. I’ve not driven since. I stayed off work on Fri morning to see if good food, a good lie-in, etc. would help me feel OK. I do work hard, so maybe I was burning the candle too much. No, I was just as funny in the head on Friday, and for that matter on Saturday and today. Darn, eh?
I’ve been having brief deafness from time to time, as well. Not sure if that is relevant.
So, I thought I’d share with you guys and see how I get on in my next set of appointments going back to see the various doctors and the interminable waiting it all brings… I’m slightly disappointed that I’ve managed to wait till the cold weather hits before needing to queue for a bus in the mornings! But then, I’ve never been lucky. If I buy an investment, it goes down; if I sell, it goes up.
I hope by sharing my next bit of the journey, it will help others one day. It also helps me keep a bit of a log.
Lots of love,