I have requested that we link up with Angioma Alliance or at least have a link for more information. Well, Patti has already done that and more. Sometimes it is just finding the link for CCM information. Here is the link.
http://www.avmsurvivors.org/group/cavernousmalformationsupportnetwork/page/resources
Taking a moment to thank her for her support throughout the years of healing. Sending you healing thoughts Patti.