AVM Survivors Network

Survivor-17 years

Had an AVM 17 years ago. Hi everyone I am a 38 year old female who survived a burst AVM in my sleep when I was in college. It was a long recovery but I worked at it and graduated college 5 years after. I am now a Director for the Boys and Girls Club, married with a little boy. I still have side effects and am so happy I found this site.


Welcome to the site a remarkable comeback from an AVM burst! … I’m glad mine happened after I was 50 and had established a family and career.

Welcome to our community! I echo Mike, great to hear where you are. It is great you are here with us! Take Care, John.

Thanks for the welcome!


Welcome to the family and so happy you have been living your best life survivor… God bless!

What John said…

Thank you!

You inspire me to recover and pick up where I left off in my life aka school, job, etc :slight_smile:

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You can do it!! Its hard sometimes but you can do it!

Wonderful! Heartening! And how nice that your career heals and uplifts others. Beautiful.

Really great to hear you’re doing okay! Mine [frontal lobe] burst at 17, with smashing headache, and straight to long surgery. I’m now 58, an IT Project Manager. Just occasional nocturnal epilepsy, but eternally thankful I’m okay, as I’m sure you are! Hopefully our stories can give encouragement all here.


Welcome to the tribe, feel free to post any questions you would like to ask regarding your condition and we’ll try our best to answer them.

Thank you