It’s been a few months since I met with my new neurosurgeon and heard her plan for further treatment. The plan is to get another embolization (only 1/3 was glued during the last embo), and then look into surgery if it doesn’t fully glue the AVM. Unfortunately the hospital I am going to only books two weeks in advanced, and surgery time is determined by urgency. I guess it’s a good thing that they haven’t had me in yet, because that means they must not think I’m in any huge risk. However I can’t help but to be frustrated - waiting is frustrating! Only two more months until I go off to University, and I’m really hoping to get this embolization soon before school starts. Or else I may have an even longer wait.
Waiting is very frustrating, isn’t it? I hope you can get it scheduled soon so that you can get it over with before school starts!
Hi Becky:
I finanily found a nerosurgen that is talking about glueing. My AVM is inoperable because of where my AVM is situated. I went to Emory in Atlanta and had my anuranism coiled and the AVM treated with Gamma Knife. The anurism has gone away hower the AVM has only shrunk 1cm.
Becky:
sorry about not completing my. comment. I really want to know as much as possible about this glueing procedure. My appointmet is set for June 28, and I am getting more and more nervious as the day’s pass by. I feel you pain with the waiting game.
Hi Becky,
With everything that you’re going through, I don’t blame you for freaking yourself out…and waiting can be a frustrating thing, especially with a situation as serious as yours. I hope that you’ll get your embo scheduled soon, and that you’ll be well enough to go to college.
Take care,
Leslye