Hello everyone. My name is Brent. I joined this forum a week ago. I have been reading various posts and getting a sense of the community.
Firstly, I commend all of you for the willingness to share the ordeals you have endured and the support you give others as they reach out with their AVM struggles.
Secondly, I feel fortunate I stumbled upon this forum but, at the same time, am saddened this forum needs to exist at all. Prior to April 11th, I didn’t even know what an AVM was let alone how devastating they can be to an individual’s existence.
I provided a synopsis of the onset of symptoms in 2010 through to the diagnosis a month ago on my profile so I won’t rehash that in this introduction. The MRI/MRA showed spinal cord swelling from T7 to the Conus; enlarged veins surrounding the spinal cord from T4 to the Conus; and the SDAVF likely positioned on the left T11-T12 intervertebral cord passageway. The angiogram slated for June 19th will delineate the malformation so my neurovascular surgeon can properly plan his surgical approach on June 20th.
The intensity and severity of the symptoms have been accelerating in recent months and as late as three days ago I stopped driving due to an increased loss of sensory perception and control in my legs and feet.
My surgery date in June seems like an eternity away.
I don’t know what post-surgery will look like. I don’t know how much permanent damage has been done, but the statistics are not in my favour due to the length of time between the onset of symptoms and treatment.
But, I have a rather strong “Don’t give in - Don’t give up” mentality which I trust will carry me through the post-op physio process.
I doubt I will have much, if anything, to post until after surgery but I plan to post regular updates in the Spinal Group as I recover. Anything I learn I plan to share.
I’m 64 years young and I still have goals.