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AVM Survivors Network

Spinal AVM


#1

Oct. 2013 had angiogram and the next day was operated on to fix veins that put pressure on my spinal cord which before surgery , i was paralized from waist down.. After surgety i could walk again but with help of a cane. My balance is not good even 2 yrs + . I have numbness waist down and some pain but bearable. I feel lucky to be able to walk. Also for about 6 months i had to catheter once a day and my bowels were not fonctioning properly. Now these 2 problems are almost normal again. I would like to talk to others with same problems so we can hopefully help each other understand this better. .. Richard.


#2

Richard, it really does help hearing from you and I thank you for sharing. You remind me, I’m not the only one.


#3

What a nice post to see Richard. Glad to see that you have made great strides over the last few years. Love the positive and encouraging post :).


#4


#5

Thx for the comments. We all need to communicate about spinal AVM's cause Doctors don't really know for sure what will happen after surgeries. So i am here to hear others and also to try to help. Take care all.


#6

Hi Richard
My Boyfriend has been diagonised with spinal AVM not fully sure of all the details yet.
Got another appointment tomorrow.
I was wandering how you are coping now and if things have got better for you?
I hope they have.
Has there been anything perticuly that has helped you?
I’m sorry for all the questions.
Daniella