WELL ITS BEEN A FEW MONTHS SINCE I HAVE BEEN ON. SO I THOUGHT I WOULD START BY SAYING HAPPY NEWYEAR. ITS BEEN A TOUGH FEW MONTHS FOR ME IN AND OUT OF THE HOSPITAL ALMOST EVERY FEW WEEKS.I HAVE HAD 3 BLEEDS IN 4 WEEKS AND THE LAST ONE IS NOT STOPING. SO THE SURGEN SAYS THE TIME HAS COME TO DO SOMETHING .THIS WE HAVE BEEN DREDDING. NOT TOO MANY OPTIONS. HE HAS TOLD ME THAT WE HAD TWO OPTIONS. I COULD GO HOME AND SEE HOW LONG I MIGHT LAST OR DO SURGEY . BUT MINE IS 3 AND ONEHALF INCHES DEEP IN THE BRAIN. SO IT IS GOING TO BE REALLY DANGEROUS TO DO IT.BECAUSE IT IS RIGHT AGAINST THE MOTOR CORTEX SORRY FOR MY SPELLING.HE ALSO TOLD ME THAT AS CLOSE AS IT IS I WOULD PROBLEY BE PARALIZED ON MY INTIRE RIGHT SIDE.I KEEP PASSING OUT AND FALLING AND IT IS HAPPENING MORE EVERYDAY. THEY HAVE ME ON TWO KINDS OF MEDS FOR THE SEZERS BUT ALL THEY DO IS KEEP ME SICK AND IN BED MOST ALL THE TIME.HE TOLD ME THIS ONE IS GOING TO BE UP TO ME .THE ONLY WAY HE WOULD BACK OUT IS IF HE THOUGHT HE COULDNT DO IT WITHOUT MAKEING IT WORSE OR KILLING ME. SO WE WENT BACK TO NASVILLE TN TO THE HOSPITAL FOR WHAT THEY CALLED A BRAIN MAPPING .HE TOLD US THAT IF HE ORDERED THE MAPPING HE COULD DO IT SAFELY ENOUGH.SO HE IS GOING TO TALK TO US MONDAY MORNING THE 4TH.BUT HE SAID EVEN IF HE COULD DO THE SURGEY IS DOES MEAN I STILL MAY COME OUT PARALIZED. SO HERE WE GO I GUESS UNLESS HE CALLS IT OFF MONDAY. SO WISH US LUCK.WE DO READ ON HERE MOST EVERY DAY SO WE DO HAVE YOU ALL IN OUR PRAYERS AND WISH NOTHING BUT THE BEST FOR EVERYONE. SORRY I HAVE WENT ON SO LONG BUT I JUST NEEDED TO TALK.
I thank God every day for all he has done for my son and I say that to say to you. You are not in charge and neither is the doctor. There is someone or something, however you look at, on high and in charge. When my son went into surgery they told he he would not make it but if he somehow did he would definitely be paralyzed on the right side. My son by the grace of God made it. He has limited mobility right now. He has regained useage of his right leg and will soon be receiving treatment to regain movement in the right arm. By no means am i saying dont listen to your doctors. The are great and saved my son’s life. However there is a higher power and it decides what and when you lose. I love you and I will keep you in my prayers. The 4th is right around the corner dont let the bad dream or thoughts take over. It is so easy to let go. But it takes real strength to hang in there. God Bless and Stay Strong!!
Hey Handsome , you and Liz certainly keep things moving in an intriguing manner . Reads as if the fourth will bring to you and you to it - decisions of a magnitude few can comprehend . This is a long hard journey-that is the truth of it . No matter what decision you come to there are risks , perils and the always unknown to factor in with the reward of any treatment/procedure . You are here , you are a fighter , you are the possibilities . You trust in you and your physicians and Liz and God …that sounds like an excellent team to me .
May God guide , guard and hold you ( all ) in the palm of His hand as always .
I just want to encourage you my friend. For all intensive purposes, I am close to paralyzed on my left side. And life is good. I ask God to grant you the courage to get through this ordeal. He is with you, as we avm survivors are with you in spirit…
God bless you!
Take care,
Debbie
Good luck, I really hope it goes well xx
Hi Avery. Sounds like your AVM is on your left side. God bless you. My was too, I’ve had the anerysm, then a year later the surgery. They couldn’t get all of mine out either, and I went thru the paralized state for a bit. But I had to fight my way back to health and not give up. I’ve had over 150 seizures and part stroke on right side, and take 22 pills a day. I take Carbamazepine 200mg 3 times a day and Dilantin 100mg 4 times a day for the seizures, I still have after the surgery, besides BP & pain ones for my lower spine; & they’re all sleepy. Take a nap if you need it; you’re allowed.And prepare everyone to your recovery time. I will pray for you, have faith, that all will turn out OK. Linda
I hope everything went well yesterday!
Good Luck,you will be in my thoughts!