So frustrated at attitudes :(

Boy do I know what you mean! Some days, if I get asked “how are you feeling?”, one more time I’ll scream! I think if someone has not had an AVM it’s almost impossible to understand how it feels… I know I had no idea what an AVM was much less how it feels before this all happened. I guess we have to remember that it’s a good thing that people we love really don’t know what it feels like; I wouldn’t wish this on anyone.
Please keep hanging on, if we can handle an AVM, we can handle anything!

Mare my friend; I am sorry about how you feel. Forgive those who are ignorant; for they know not what you or any of us are going through. I understand. It’s frustrating always being ill. I get tired of asking for time off for this or that. As stupid as it may sound, when I lost the eyesight to my left eye, I was so grateful that the retina specialist was related to my Sgt. I thought to myself, well now they know Im not lying-----Cuz they dont know what I have been through! If people avoid you, let them. Its because they dont know what to say. Hang in there. There is lots of love here.
Many many blessing for you,
Loretta

Mare,

Here’s the place to vent. At least everybody here can understand. I have had relatives who have criticized my family for giving my youngest daughter (ruptured AVM and resection, plus another resection) too much attention and telling my kids to treat their youngest sister like she has nothing more than a cold. They don’t understand. It’s a sad thing, but find someone you can talk to. That’s what I keep trying to do. It’s very tough. Just vent here when you feel the need :slight_smile:

– Tina White

Mere,
I have been so frustrated with attitudes as work too. This really helped me feel better about myslef, accepting that I am disabled and that is takes me more time to do things and that other people NEED to understand it better. This articple “the spoon theroy” has helped me explain it to people. Make them read it! some will get it after this!

http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/