I know I can add this discuss as I am sure so many of us experience what I am about to discuss as I need to vent. I am at a point wherein I feel as if I am so tired of people not totally understanding what we are going through.... I do my best to be psitive each and every day and I will always be grateful for the day; I an not sitting around feeling sorry for myself. Actually was told by my dr. nothing more could be done but am going for another embo....as I continued to seek treatment.. I went back to work full time and its challegning but I push and push but why do people seem to treat us differently..... we need support not pity.... we didn't ask to become sick and when I feel the strength from each of us on this journey of AVMs I know I can through people stupid comments, pity. I know my life will never be normal again whateer that means nor do I want it as I found out who my true friends are and my priorities are so much more prioritzed! Is anyone else going through it.... I could scream at times...I feel as if some people are avoiding me or dn't want to call as " you might not feel well"..... I was up all night as I had a situation with a group of friends and was so incredibly hurt cried myself to sleep. I try to be positive and I know this has been a blessing but again, do people think we asked to be on this journey... I go back to "if you don't have anything nice to say....don't say it
thanks for listening...such a relief to go to a place where I can speak my mind and know we all get it.
Lov eyou all,