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AVM Survivors Network

Sleep apnea and avm of the ear and scalp


#1

I have an ear and scalp AVM and I also have sleep apnea and use a CPAP machine to sleep. The Headgear straps of the full face mask I use are so hard, that they are hurting my scalp AVM and making it bleed.
Is there somebody out there with a similar problem. Do you know of any softer straps or headgear for this masks? The problem is that if you do not tight the straps close to your head the air leaks and therapy is not effective. PLEASE HELP!
thanks