Hello my sister had an unknown avm burst 1 year ago. She was rushed to our local level 2 trauma center where she was intubated, and ended up being driven about 2 hours away to a level on trauma center in a bigger city. They had to do a permanent craniotomy to allow the swelling in her brain to go down. She was in that hospital for about a month and brought back closer to home to help her get off her tracheostomy.
After about another month she went to a rehab facility to try and get better, she wasn’t able to speak and could hardly move her arms, and her ankles were in almost extreme plantar flexion. She was discharged from that facility because she was not making much progress and ended up going to the er because she had some upper respiratory infections.
About 4-5 months in she was taken to a nursing home type facility (she is currently 21) to be taken care of closer to home where she has made some progress. She is able to speak some words and sentences but she is still unable to walk. She is still currently there but my family and the staff at the facility she is in are trying to get her sent to Shepherds Center in Atlanta. They refused to take her because she was aggressive towards people. She still is but that is only because people try to get way too close to her comfort zone.
I am posting this because I was wanting to know if anyone has been in the position my sister is in or if anyone has known someone that was in this kind of situation and what could possibly help them get better. We try talking to her all the time but she hardly ever wants to talk to us, and she has been laying in a bed a majority of this past year. She gets into a wheelchair but that is maybe up a 2-3 hours a day if we’re lucky.