I went to a program tonight put on by the hospital that my wife works at, I have been a patient at and so forth about Traumatic Brain Injuries. A couple of interesting things I learned:
- Those of us who are dealing with brain issues, they are not traumatic brain injuries, they are acquired brain injuries. What’s the difference? No violent action (car crash etc.) and a more challenging recovery.
- It is possible to have either type of brain injury and they won’t show up on any scans. That makes it harder to understand so anxiety is a much bigger issue in increasing brain health.
- A a general guideline, somewhere in the 4 to 6 month range, they try to move the focus from rehabilitation (bringing back what was lost) and to “abilitation” as a focus - meaning that you and your med team need to focus not on getting back what you lost but on trying to figure out how you can do it in a different way.
- time frames make no sense. What works for someone else, might be no where close to what you are going to see. The majority of improvement will come in the first year but it’'s very possible to see symptoms show up later and/or to experience things going away long past the 1 year mark. He said he has seen it as far as 5 to 7 years.
So that means the fact that my eyes are getting worse right now is not a major cause for concern and it’s not necessarily a sign that the AVM is getting worse. It could very well be a shuffling of blood flow - even this far out - and probabl even farther.
The brain is very irregular in terms of its healing process and while the first 12-18 months hold the majority of the healing, it’s not everything by any means.
Logical progression in healing from a brain injury? Forget about it!
Thought I’d share the wisdom. I hope I took good notes…