Anyone suffer these after a few months of the bleed so far its been a couple of months and not had any at all apart from a strange rubber burning smell which might be related to my iPad burning only happened today though but no other symptoms -:
Are you currently on antiseizure medications?
Seizures are a 'common' symptom of an AVM & can represent changes, so please let your drs. know of your new symptoms.
None at all never have been I have currently not suffered any seizures even when I bled maybe smell thing nothing to worry about
About 4 months after I had my craniotomy (I had a bleed 2 months before the crani) we had moved to a new house/apartment, whatever. I was unpacking and I kept saying, "Man, it smells like burning wires up in this place." We just thought it was the boxes or maybe the A/C because it was a new place and we had only been here like Idk 2 weeks maybe. My sense of smell has been really intense since my crani so it wasn't unusual for me to smell something everyone else couldn't. Then I woke up in the back of an ambulance, not knowing where I was and was confused because the guy was asking about my kids and I told him I didn't have any. I had just had a baby a month before that...so, I obviously had kids. Every now and then I smell like this burning dust smell, like when you turn your heat on for the first time in winter. But I only had the one big seizure. None since...that I can say for sure anyway.
I had a nocturnal grand mal seizure 3.5 years after surgery. The seizure is thought to be related to my brain damage, and I will be on medicine for the rest of my life. When I had the seizure, I was extremely sleep deprived which is also considered a cause of seizures. So maybe it was related, maybe it wasn't. In any case, no further seizures.
Hi Daven it's been 5 weeks since my bleed and a month since operation. i've notice that smell and burned dirt, dry sand. I live in San Diego, Ca my family said I'm the only one smelling that stuff. Never thought of posting the topic, thanks you're not alone.
Is all very odd said I am unlikely to get seizures not sure how they can actually be sure and what odds are of having them frightening thought but at least treatable with tablets. I was wondering if you was only having mild ones do you still need to take anything.
Has your neurologist ordered an EEG http://www.epilepsy.com/EPILEPSY/testing_eeg to check for seizure activity?
none guessing see me as low risk guess best to avod meds if you can I believe if you just have a couple of mild ones not too concerned just if they continue need to get meds I think I may of read somewhere 30percent risk of having them but dependent on things like overall health in general,size of bleed and location and what treatment you had if any.